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Born at 27-weeks, weighing 1 pound and 15 ounces, Marjorie spent her first two and half months of life in the NICU. Following discharge, she was seen at Nemours Children’s Health, Jacksonville for hip dysplasia and eye checkups. When she was 7 months old, Marjorie’s parents noticed her belly was very distended. It continued to swell quickly, so her parents brought her to the pediatrician. After an ultrasound confirmed a mass, the family was rushed via ambulance to Wolfson Children’s Hospital where she first met Dr. Gauger. “Following multiple scans and tests, we heard the words you never want to hear, ‘Your child has cancer,’” says Marjorie’s mom, McCall. “Marjorie was diagnosed with neuroblastoma 4S. She spent three weeks in the hospital and was readmitted for more chemotherapy before being discharged on July 11, 2015.” After discharging, Marjorie continued to be followed by her oncology team at Nemours Children’s. “Through […]

Keeping your child healthy and strong. Children with sickle cell disease (SCD) have lower levels of certain vitamins, minerals, proteins and other nutrients. That’s because their bodies turn over red blood cells so fast that nutrients are broken down faster than normal. When the body doesn’t get the nutrients it needs, it leads to malnourishment, anemia (low iron), frequent infections, poor growth and development, and other complications. At the Nemours Children’s Center for Cancer and Blood Disorders, our team incorporates nutrition into the overall treatment plan for kids with SCD. We know that good nutrition helps to support growth, restore energy, improve immunity and strengthen muscles and bones. Good nutrition can also reduce pain crisis and the side effects of certain treatments. This can help decrease the number of hospital visits and improve overall health as your child grows. Essential Vitamins and Minerals for SCD A child with SCD takes […]

Infantile spasms (IS) is a rare, but serious type of seizure associated with a unique, very abnormal brain wave pattern that can have a catastrophic effect on a young, developing brain.  What do these seizures look like? These seizures can be subtle and consist of repetitive movements occurring in clusters. These movements are brief and consist of head drops or head bobs with brief jerks followed by flexion or extension in the child’s extremities. The eyes may widen and roll up.  How are they different from sudden startles? These seizures typically occur in clusters of repetitive movements, often when the child is waking up from sleep. After these clusters, the child may cry or become irritable.  What are other symptoms that I may see? At times, the child may cease to make further developmental gains, or have regression in their developmental milestones. What age does Infantile Spasms tend to occur? At any […]

Being diagnosed with epilepsy (a nervous system condition that causes seizures) can be alarming and frightening for parents and caretakers. Part of this worry is likely due to some misconceptions about this disease. Let’s talk about 5 myths surrounding epilepsy that should be debunked.  1. We’re alone. You’re not alone. Epilepsy is not rare. In fact, it’s one of the most common diseases we see in neurology. More people live with epilepsy than people with autism spectrum disorders, Parkinson’s disease, multiple sclerosis, and cerebral palsy – combined! A study published in 2011 found 1 in 26 people will develop epilepsy during their lifetime. That’s like one child in each classroom at a typical school! So it’s not as rare as you may think. Because of this, there are several support groups to help people who are newly diagnosed become familiar with epilepsy and help them navigate their life with this new disease.  2. I cannot be successful […]

Questions about osteogenesis imperfecta (OI), or “brittle bone disease,” are answered by pediatric orthopedics experts at Nemours Children’s Health. Q: When should people with OI get rods in the bones in the legs? A: We view realigning and rodding the bones in the legs, femurs and the tibias as a way to address deformity or bowing that is interfering with each patient’s motor development or causing recurrent fractures. We feel there is no minimum age, this is something that we really do value, continually assessing on an individualized basis to help each patient reach their potential. Q: How would you describe the use of orthotics in patients with OI? A: The word orthotics generally refers to all types of braces or things we put on patients’ arms or legs to help them function better. We use them on a case-by-case basis. Years ago we used to use heavy long leg […]

In this Q&A, pediatric ENT physician Steven Andreoli, MD, and pediatric interventional radiologist, Craig Johnson, DO, discuss and answer parents’ questions about vascular anomalies. The experts begin by discussing common types of vascular anomalies. An infantile hemangioma is a type of birthmark that happens when a tangled group of blood vessels grows in or under a baby’s skin. Infantile hemangiomas become visible in the first few days to weeks after a baby is born. Hemangiomas that are visible at birth are called congenital hemangiomas. They grow differently and are treated differently. Infantile hemangiomas are much more common than congenital hemangiomas. There are two main types of infantile hemangiomas: infantile and deep. A lymphatic malformation is a clump of abnormal lymph vessels that form a growing, disorganized, spongy cluster of cysts. Lymphatic malformations appear as masses (unusual growths), but they are benign (not cancerous). A venous malformation is a place in the body where veins haven’t developed in the usual […]