Nemours Blog - Powered by Nemours Children's Health System

In October 2016, three-year-old Gabriella’s and her family’s world changed in an instant. She was diagnosed with rhabdomyosarcoma, a type of cancer that affects soft tissue. For her parents, Melissa and Shawn, time seemed to stand still. “So many emotions to describe that minute and the minutes, days, hours, weeks, months, and years since…” Melissa shares. But as they look back, their focus is on gratitude—on the people who stood beside them, the care that lifted them up, and the hope that carried them forward. Gabriella’s journey began under the care of Dr. Thacker, orthopedic surgeon at Nemours Children’s Hospital, Delaware. “We remember the words he spoke to us,” Melissa recalled. “But more importantly, we remember that his tone and demeanor were filled with sympathy, concern, and hope.” From the very beginning, Dr. Thacker was more than a physician—he was a constant source of support. Through chemotherapy, amputation, infections, and […]

Finding Support at Nemours Children’s: Zoey’s Story

At 19 years old, Zoey is pursuing her dream of becoming a hairstylist while managing a complex medical condition. For the past seven years, she has dealt with frequent bathroom trips, urinary retention, and persistent pelvic pain—challenges that have impacted her daily life. But through it all, she has found expert care and unwavering support at Nemours Children’s Health. Zoey’s symptoms began when she was just 13. She noticed she was using the restroom 15-30 times a day, with nights just as difficult. Despite constantly feeling like she needed to use the restroom, she was often unable to release urine. The discomfort affected her ability to focus in school, spend time with friends, and simply go about her day. “This condition has taken over the way I live,” Zoey shared. Zoey’s search for answers led her to Nemours Children’s Hospital, Florida, where she was connected with Dr. Hagerty, a urologist […]

Following His Dreams: Kollin’s Journey

At 12 years old, Kollin isn’t letting anything slow him down. A lifelong patient at Nemours Children’s Hospital, Delaware, Kollin’s journey to his narcolepsy diagnosis started when he found himself constantly exhausted. “My father has narcolepsy, so when I was tired all the time, my mom requested to have a sleep study done,” Kollin shares. A sleep study, also called a polysomnogram, is an overnight test that helps doctors diagnose sleep disorders, including narcolepsy. During the study, sensors are placed on different parts of the body to monitor breathing, brain activity, heart rate, and movement while a child sleeps. It provides essential information to guide treatment and improve sleep health. “I really don’t like sleep studies because of all the wires and goop in my hair,” shares Kollin. But after his second long sleep study, the results were clear—he had narcolepsy, just like his dad. The diagnosis meant he could […]

A Bright Future Ahead: Piper’s Story

When Piper was just four months old, her parents faced an unexpected concern: their pediatrician noticed her head size was not typical. After a series of tests, Piper was diagnosed with microcephaly. By the time she was nine months old, she was missing developmental milestones, and by her second birthday, she had also been diagnosed with cerebral palsy. Piper’s journey also brought unique challenges with communication and mobility. As a nonverbal child, Piper relies on creative ways to express herself, and her family has embraced learning to understand her cues. Piper is also not yet mobile, affecting her ability to move around and get from one place to another on her own. In 2022, the family relocated to Florida and began researching the best care options for Piper. “We spent a lot of time looking for facilities that could meet Piper’s needs,” her mother, Christy explains. “Nemours was the best […]

Luca: Lactation Consultation

“…finding a good pediatrician is really important. It’s because of [this] we were able to discover Luca’s milk allergy so quickly.” – Luca’s mom, Meghan Luca was diagnosed [with cow milk protein intolerance, GERD and soy allergy] at 3 weeks when Dr. Kelly Brower decided to test his stool for blood, which came back positive. This, along with other symptoms he was experiencing like low weight gain, inconsolable crying and excessive loose stools, confirmed the diagnosis. In those early weeks, we saw Dr. Brower once or twice a week for weight checks and lactation support.  We have received nothing but exceptional care from Dr. Brower. We were so fortunate to see her for Luca’s first appointment after bringing him home. During that visit, she took the time to answer all our new-parent questions and even helped me with my breastfeeding challenges. I was struggling to get Luca to latch, and […]

Home Sweet Home: Seth’s Story

At just seven years old, Seth has already overcome more challenges than most face in a lifetime. Seth’s health challenges began when he was just three years old. What initially seemed like persistent allergies turned out to be something much more serious. After multiple doctor visits, his family discovered a tumor growing in his sinus tract. The day after Christmas in 2020, they rushed to the Nemours Children’s Hospital, Delaware emergency department, expecting a routine visit. Instead, they never went home. Seth was diagnosed with rhabdomyosarcoma, a rare and aggressive cancer. The tumor not only blocked his airway but also led to severe complications, including serious blood clots. Within his first week at Nemours Children’s, he underwent multiple emergency surgeries. “He had surgery Monday, Wednesday, Friday, and Sunday that week,” shares Deborah, his great-aunt who has cared for him since infancy, and has been by his side throughout his entire […]

Building a Healthy Lifestyle: Bryan’s Story

For 15-year-old Bryan, his journey toward better health has been a collaborative effort powered by determination and expert care. Diagnosed with Down syndrome at birth, Bryan has faced challenges his entire life, but as he’s gotten older it’s been his obesity related fatigue that has significantly affected and limited his daily activities. With the support from his family and the dedicated team at Nemours Children’s Hospital, Delaware, Bryan is now thriving. Bryan joined Nemours Children’s Bariatric Program in 2022 after transitioning from another hospital to be closer to home. The bariatric program is dedicated to helping teens with obesity achieve better health through expert care and support. The program specializes in laparoscopic sleeve gastrectomy, a minimally invasive weight loss surgery that reduces the size of the stomach to help teens eat less and feel less hungry. As the only pediatric weight management program and hospital accredited by the Metabolic and […]

Jenna: Thyroid Cancer

“Dr. Gannon and the whole team changed my life … Dr. Berman is incredible at what she does. She saved my life and I’m forever grateful for her.” – Jenna, patient When I was 13 years old, I went for a routine well visit. My doctor was doing an examination on my neck and noticed my thyroid felt enlarged. She sent me to get labs and an ultrasound. My labs confirmed that I had Hashimoto’s thyroiditis. Then, we received the results from my ultrasound. It showed that I had two thyroid nodules. I had a small one on my left side, and then a bigger one on my right. The border of the nodule was irregular and calcified. This looked suspicious. I was referred to a Nemours endocrinologist, Dr. Doyle. He told my mom and I that he recommends another ultrasound and to visit another endocrinologist who specializes in treating […]

Navigating Crohn’s Disease: Conner’s Story

For Conner and his family, the path to a Crohn’s disease diagnosis came unexpectedly. Conner, an active 11-year-old, was living life to the fullest until sudden symptoms disrupted his world. Stomach pain, rapid weight loss, and an inability to have a bowel movement led Conner to the emergency room. After initial treatment, he was transferred to a local hospital, where an endoscopy and colonoscopy in September 2023 confirmed the diagnosis of Crohn’s disease. Conner’s mom, Charity, shares that the abrupt change in her son’s health was unanticipated. “He was very active right up until about a week before he was hospitalized,” she shared, reflecting on how sudden the symptoms appeared. After diagnosis, Conner and his family were referred to Nemours Children’s Hospital, Florida, by their local physician. There, they found a team of specialists ready to support Conner through every step of his journey. Under the care of Dr. Palomo, […]

A Life Changed by Cochlear Implants: Moksh’s Story

Throughout 8-year-old, Moksh’s life, his mother, Rina and her family, noticed something was different. “He wasn’t able to give a response when we called to him or clapped,” Rina recalls. Concerned, they sought answers from numerous doctors, and one thing became clear—Moksh needed cochlear implants. After a year of searching for answers to help with his hearing loss, Moksh underwent the life-changing surgery that would set him on a new path. Nemours Children’s Hospital, Florida, became a critical part of that journey. After researching their options online and receiving recommendations from other doctors, Rina and her family turned to Nemours for their son’s care. What they found exceeded their expectations. “They are so intelligent,” says Rina about the audiology team. “They did a really good job with surgery and had accurate results. Everyone, from the nurses to the surgeons, were helpful and kind.” Moksh was born with profound sensorineural hearing […]

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