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Patient Stories

Sigue la trayectoria de Ashley Garcia, una niña de 10 años que supera la microtia con cuidado personalizado en el hospital infantil de Nemours en Delaware.

Meghan’s journey with Bladder Neck Dysfunction unfolded over the course of several years, involving many visits to urologists. It was only when she sought the expertise of Dr. Hagerty, making the journey all the way from Rhode Island to Nemours Children’s Hospital, Delaware, that a diagnosis was finally made. Before treatment at Nemours Children’s, bladder issues had caused many complications throughout Meghan’s life. Pain, discomfort, urinary retention, and bladder spasms were constant obstacles, making it difficult for her to attend school and participate in social activities. Her condition had become a barrier to living her teenage life. However, Nemours proved to be a place of hope for Meghan and her family. The kindness and compassion given by every staff member, from the front desk to the medical professionals, left a lasting impression. So much so that Meghan even suggested relocating to Delaware upon leaving the hospital – a testament to […]

At the age of 13, Zoe received a diagnosis of scoliosis during a routine check-up at her primary care physician’s office. A noticeable hump in her shoulder raised concerns, prompting a referral to Nemours Children’s Health at Lakeland Regional Health. There, X-rays revealed severe scoliosis. The results were sent to Dr. Joseph Khoury‘s office, and an appointment with him was quickly scheduled. Before receiving treatment at Nemours, Zoe’s scoliosis had a great impact on her life. It affected her self-esteem, as the curve in her back and waist made her feel uncomfortable in her own skin. She expressed that her clothes didn’t fit right, and she often experienced discomfort while sleeping. The path to Nemours for Zoe and her family was driven by both trust and research. Zoe’s primary care physician recommended Dr. Khoury, who was known for his successful treatments of scoliosis. Furthermore, a family friend who worked at […]

Join Ryan’s inspiring journey through epilepsy and Tuberous Sclerosis Complex, as his mother shares about navigating uncertainties, embracing therapies, and finding strength in the support of Nemours Children’s Hospital.

Follow Kaden’s inspiring journey through Burkitt’s Lymphoma, from a devastating diagnosis to overcoming challenges with chemotherapy, lumbar punctures, and the unwavering support of family and Nemours Children’s Hospital.

At Marcella’s 20-week ultrasound, she learned that her unborn child, Brody, had skeletal dysplasia. This news caused a whirlwind of emotions, but little did she know that this journey would lead her to the incredible team at Nemours Children’s Hospital, Delaware, setting them on a path of resilience and discovery. With this news, Marcella dove into gathering information to understand the unique challenges that Brody might face. Although they lived in Wichita, KS, her research led her to the Nemours Children’s Orthopedics team. Brody’s first appointment at Nemours didn’t come until six months, although Marcella was in touch with the skeletal dysplasia team shortly after he was born. She connected with Colleen Ditro, DNP, CPNP who would become an integral part of Brody’s journey. As Brody came into the world, so did a definitive diagnosis of diastrophic dysplasia, a rare genetic condition that causes dwarfism. Their local NICU was ill-equipped to […]