Guest Contributor, Author at Nemours Blog | Expert Advice on Children’s Health & Wellness - Page 27 of 33

POSTED BY:
Guest Contributor

Getting back to Champion Level Caliber — Ryan’s Story

Ryan has been a gymnast for 10 years, growing into a top competitor on her team. When she suffered a dislocated shoulder and instability injury, she met Dr. Alvin Su, sports orthopedic surgeon at Nemours Children’s Health, Deptford. She had instability in both of her shoulders, and the right shoulder bothered her more in the beginning. Dr. Su first fixed Ryan’s right shoulder with surgery in 2019. Ryan completed physical therapy and was able to return to gymnastics. To help Ryan reach her full potential, Dr. Su subsequently fixed her left shoulder in 2021. Over time, Dr. Su helped her reach champion-level caliber once again to bring home the gold. Ryan completed her physical therapy sessions and before being released, her therapist let her go back into the gym. She’s doing great now; both shoulders are healed, and she is a world, state, and regional champ! Ryan loves school, cooking, […]

Myah the Fighter

Myah has been a fighter since the day she was born. If two parents each have their own form of skeletal dysplasia, it is possible for their child to inherit both types. This was the case for lovely Myah who carries a diagnosis of both achondroplasia and Kniest dysplasia. Given her complex medical needs, at 5 months of age her parents transferred her inpatient care across the country to Delaware to receive guidance from the Nemours skeletal dysplasia team.  She required coordinated multidisciplinary care from multiple specialists over her months-long hospital stay, which was possible given the specialized expertise of Nemours providers. Nemours offers care to individuals with skeletal dysplasia until the age of 35, so during Myah’s admission, her parents Brian and Alana also received multidisciplinary evaluations with the Nemours skeletal dysplasia team.  We cannot wait to see what the future holds for Myah and her family, and will be here to support them along the […]

10 Years Later — Max’s Story

Max Paul turned 18 in July this year. But several months after he was born at Arnold Palmer Hospital for Children in 2004, he vomited blood and went to the emergency room there. Max was admitted, but they didn’t have a bed for him, so he and his mom spent the night in the ER at Arnold Palmer, sleeping on a stretcher. Mom Lori remembers a geneticist from Nemours was added to Max’s care team, and Max was diagnosed with cystic fibrosis. He joined the CF clinic at Nemours.  Around that time, mom remembered Nemours was applying to build the hospital in Orlando, and so when the question would arise, “Does Central Florida need another children’s hospital?,” the answer in her mind was a resounding, “Yes!”   “We were at the right place, at the right time to become part of Nemours,” said Lori.  When it came time for the groundbreaking ceremony […]

Worth the Wait — Edwin’s Story

Edwin was born with Pierre Robin sequence, a rare and serious condition where a baby’s jaw is so small that the tongue blocks the airway.  Because of the complexity of his case, Edwin was monitored closely in the NICU until our craniofacial airway team, including a plastic surgeon and otolaryngologist, were able to open his airway by bringing his jaw forward. “My initial goal, after making sure Edwin was safe, was to reassure his parents that everything was going to be okay. We had many discussions about the options and decided that mandibular distraction—bringing the jaw forward slowly over time—was the right option for Edwin and his family,” explains Dr. Brian Kellogg, division chief of plastic surgery, Nemours Children’s Hospital, Florida. “Using a customized computer model, I was able to carefully plan Edwin’s surgery and the movements of his jaw bone.”  Because Edwin had been in the NICU since the day he was […]

The Primmer Family Story

Karalyn first came to Nemours after she was suffering from some abdominal pain, which led to a visit at an ER in their hometown of Titusville. Something didn’t satisfy her parents about that visit, and they were concerned that something else was wrong.   They immediately sought help at Nemours Children’s Hospital, Florida. There, an ultrasound found a tumor associated with a genetic disease called Von Hippel-Lindau (VHL) that was in her adrenal gland. In 2020, the 8-year-old she had an 8-hour surgery and stayed for a few days afterward for observation.   It turned out Karalyn was the first one in her family to be diagnosed with VHL. Later, younger brother Westin had a similar issue when he was 6, and also required surgery with the same surgeon at Nemours. Then, dad got a diagnosis, but had to have an adult surgeon at a hospital for adults, lamented mom. […]

Jay on his wakeboard

In the Wake of Injury, A National Champion Triumphs — Jay’s Story

Jay loves wakeboarding—in fact, he’s a wakeboarding national champion! But when he fractured his right femur in June 2020 during a wakeboarding accident, he was brought emergently to Nemours Children’s Hospital, Florida to see Dr. Zachary Stinson, who specializes in pediatric orthopedic trauma and sports medicine surgery. Jay had his femur surgically repaired with a metal rod, and he began the gradual journey to walking, running, and wakeboarding again.  Following his surgery, Jay was determined every single day in therapy, and he was cleared to start running just months following surgery, and eventually to full wakeboarding activities by six months!  Jay had the metal rod removed 18 months following his initial surgery, and he was completely cleared by Dr. Stinson a few weeks later.   Jay’s mom Ashley credits Nemours doctors, physical therapists, and nurses for being comforting not only to their patients, but also patient families. “The nurses and doctors explained treatments to Jay and me,” she said. “They would also […]

Little League Elbow – Michael’s Story

My name is Michael Shucoski. I’m 12 years old and am starting the 7th grade. I really love baseball and my favorite positions are pitcher and first base. This past spring, I developed a sharp pain in my elbow that would not go away. It was very irritating, and I couldn’t even throw the ball without pain.   My mom took me to Nemours Children’s Health, Deptford for treatment, where I met Dr. William Emanuele (Dr. Bill), a sports medicine specialist. After he performed tests and took x-rays, my diagnosis was medial elbow apophysitis, otherwise known as “little league elbow.” It’s an inflammation of the growth plate that occurs in young baseball players from the constant throwing motion. It’s fairly common in pitchers like myself. The treatment was a rehab program consisting of targeted strengthening and stretches as well as six weeks of rest, which meant no throwing, but for me, […]

World Heart Day- Greyson’s Story

Caring for critically ill infants with congenital heart defects using an app Greyson was born at 39 weeks on August 3, 2020, and just 24 hours later arrived home to meet his two, very excited older siblings.  A week later, Greyson wouldn’t eat. His parents, sensing something was wrong, brought him to Nemours Children’s Hospital, Delaware where he was admitted to the intensive care unit and put on oxygen.  At first, doctors thought it was a viral infection, but an echo of Greyson’s heart revealed that he was in heart failure.  The diagnosis was hypoplastic left heart syndrome (HLHS), a severe congenital heart defect, requiring a series of three highly complex surgeries to correct it.  With Greyson just 10 days old, Dr. Christian Pizarro performed the first surgery. All went well.  Greyson spent the next 7 weeks recovering in the hospital and as discharge planning began, acute care pediatric cardiologist, Dr. Erica Del Grippo cautioned his parents that the […]

ADP Celebrates 100th Delivery

Nemours’ Advance Delivery Program is designed for healthy moms-to-be whose babies will need complex care from the moment they’re born.

Should Parents Worry About Parechovirus?

It may feel like viruses are in the news a lot these days. And perhaps you just heard about parechovirus (puh-REH-ko-veye-rus). Well, it turns out that parechovirus isn’t new! What Is Parechovirus? Parechovirus is a virus that’s been around for many years. Parechovirus infection is pretty common, especially in kids. Did you know that most kids get a parechovirus infection by the time they turn five years old? You probably weren’t even aware if your child has had a parechovirus infection. That’s because kids usually have no symptoms or just mild ones.  Parechovirus can spread when someone comes in contact with infected poop or infected droplets of saliva or mucus that come out in a cough or sneeze. It can also spread when someone touches a contaminated surface or object. Symptoms of parechovirus infection are like symptoms that come with other cold viruses, such as a sore throat, runny nose, […]

A Tale of Two Roccos- Father & Son Kidney Transplant

Rocco started his freshman year in September 2021, excited to be in high school and ready for a new school year. Two weeks into the school year, Rocco and his family went to their favorite skate park. Rocco fell off his skateboard and injured his leg. His parents took him to the emergency room, where they found out he fractured his right ankle. During his workup in the emergency room, the care team noticed that Rocco’s blood pressure was high. Stacey, Rocco’s mom, initially did not think much of it, considering he had just broken his ankle. But the ER nurse was very insistent that they make a follow up appointment with Rocco’s pediatrician. Stacey took note and monitored Rocco’s blood pressure over the next few days. When Rocco’s blood pressure did not return to normal, Stacey immediately made an appointment with their pediatrician. At the pediatrician’s office, Stacey made […]

Quinn’s Scoliosis Journey

“We are so happy with Dr. Khoury and what he’s been able to do for our son. He is an amazing doctor. He always treats everyone with respect. We are excited to continue our scoliosis journey with Dr. Khoury and Nemours.” –Mom to Quinn (age 4) Quinn’s mom first noticed something was wrong with his back when he was just 2 months old. “I could feel a bump on one side of his back,” she explains. “I thought it was lack of muscle tone…I didn’t know that what I was feeling was the rib hump.” When she mentioned this to Quinn’s pediatrician, she diagnosed him with torticollis and Quinn began doing physical therapy. His torticollis eventually got better, but mom knew there was still something wrong with his back. That was because Quinn didn’t sit on his own until around 8 months, and he didn’t crawl until after 9 months. […]

Page 27 of 33

Page 27 of 33

Page 27 of 33