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Gluten: Ending Common Misconceptions

The gluten free diet has become a popular diet trend over recent years. The most common conditions that require a gluten free diet include celiac disease, wheat allergy, non-celiac gluten sensitivity, gluten ataxia, and dermatitis herpetiformis. Some individuals may choose to adhere to a gluten free diet for other reasons. Gluten is the protein found in the grains wheat, rye, and barley. A gluten free diet requires avoidance of these grains. When foods are removed from the diet, it can make it more difficult to maintain a healthy and balanced diet, so if gluten is removed from the diet it is important to do so with the guidance of  a Registered Dietitian. The purpose of this article is to clear up some common misconceptions surrounding gluten and the gluten free diet. Do I need to avoid all gluten if I have a wheat allergy? -No. Only the grain, wheat, needs […]

Epilepsy Awareness Month- Chloe M’s Story (Mother’s Words)

On May 30th, 2021, Chloe was having a typical night playing with her toys. She was smiling and giggling like always, and suddenly she stopped her energetic pacing between toys and randomly fell to the floor. She became limp and stopped breathing. Her lips and feet turned purple right before she became conscious again. No one knew why this happened because she’d never experienced anything like it before. An ambulance arrived, and Chloe was taken to Nemours, where she was diagnosed with epilepsy following a second episode that occurred in the hospital. Despite a quick diagnosis, there was still a long road ahead to gain seizure control. Chloe’s days went from cheerful playing and adventures to constant seizures, which made her feel sick and exhausted. She was unmotivated to do anything. Her toys were barely touched, and she couldn’t sleep through the night without multiple seizures. Eating food became a […]

5 Myths about Epilepsy

5 Myths About Epilepsy

Being diagnosed with epilepsy (a nervous system condition that causes seizures) can be alarming and frightening for parents and caretakers. Part of this worry is likely due to some misconceptions about this disease. Let’s talk about 5 myths surrounding epilepsy that should be debunked.  1. We’re alone. You’re not alone. Epilepsy is not rare. In fact, it’s one of the most common diseases we see in neurology. More people live with epilepsy than people with autism spectrum disorders, Parkinson’s disease, multiple sclerosis, and cerebral palsy – combined! A study published in 2011 found 1 in 26 people will develop epilepsy during their lifetime. That’s like one child in each classroom at a typical school! So it’s not as rare as you may think. Because of this, there are several support groups to help people who are newly diagnosed become familiar with epilepsy and help them navigate their life with this new disease.  2. I cannot be successful […]

Curve Alert

Curve Alert: Don’t Miss That Scoliosis Screening

Because of the COVID pandemic, you may be putting off visits to your child’s pediatrician. But a missed well visit could mean missing a scoliosis screening. What is scoliosis? Scoliosis is an S-shaped curve in the spine.  It is a condition that occurs equally in boys and girls; however, the curve tends to increase more often in girls. Small curves usually don’t cause problems. But large curves can cause health problems like pain or trouble breathing. What causes scoliosis? The most common form of scoliosis is idiopathic which means “cause unknown.” Kids of any age — even infants — can have idiopathic scoliosis. But it’s usually found when a child begins going through puberty. How do you know your child might have scoliosis? Most often, parents, pediatricians or school nurses may notice one or more of the following signs of scoliosis: One shoulder blade more prominent Ribcage is shifted to one […]

Dining out with diabetes

Dining out with Diabetes

Dining out is a fun, cultural and social affair that everyone should be able to take part in, including people with diabetes. It can seem daunting for those who need to count carbohydrates and administer insulin. But with preparation, guidance, and practice, dining out with diabetes can become a smooth process! Below are tips for before, during, and after dining to help ensure an enjoyable experience. Before: There is no need to change the types of restaurants frequented. Continue visiting your favorite ones and do not feel limited to ones that offer “healthier” options. In time, you may develop a list of preferred locations due to the helpfulness of staff and information made available by the restaurant. Search for the restaurant’s website online and see if the menu and nutritional information are available. If there is no restaurant website, try calling the restaurant and asking for the same information. If […]

Know About CHS: Vomiting Syndrome Linked to Marijuana, Powered by Nemours Children's Health System

Know About CHS: Vomiting Syndrome Linked to Marijuana

Your teenager is sick to his stomach. Really sick, throwing up as much as four or five times in an hour. If your teen is a heavy marijuana user, he might have cannabinoid hyperemesis (CHS). What Is CHS? Cannabinoid hyperemesis syndrome is a scientific way of describing the body’s reaction when someone uses a lot of marijuana (cannabis) over a long period of time. Emesis means vomiting. Hyper means excessive. It’s a clinical way of saying that people with CHS throw up a lot because of heavy marijuana use. Some people take years to develop CHS. But 1 in 3 people with CHS have used marijuana for less than a year. The only way to stop CHS is to stop using marijuana. Why has CHS become a problem in recent years? A blog post published in The Lancet suggests it might be because marijuana produced today is much stronger than in […]

Autism Rates: Understanding the Rise, powered by Nemours Children's Health System

Autism Rates: Understanding the Rise

Autism diagnoses are on the rise, the Centers for Disease Control and Prevention (CDC) says in a new report. Autism rates have gone up since 2016, and 1 in 59 U.S. kids have some form of autism (also called “autism spectrum disorder” or “ASD”). Many parents are asking why — and wondering if they should worry. What Does the Rise in Autism Rates Mean? Experts say that the higher autism rates do not mean more and more kids are developing autism. Rather, ways to recognize, diagnose, and treat autism spectrum disorders have greatly improved. Ideally, doctors should look for signs of autism in babies and toddlers at every routine well visit, and perform an autism screening at the 18- and 24-month checkups. However, this may be challenging to accomplish in a busy practice. The CDC also reports that some groups were previously underdiagnosed. Black and Hispanic populations, for instance, have often […]

Taking Lessons from Crohn's Disease | Promise, powered by Nemours Children's Health System

Taking Life Lessons from Crohn’s Disease

Contributed by Darcy Galnor, whose daughter is a patient of Nemours Children’s Specialty Care, Jacksonville. The morning our daughter was diagnosed with Crohn’s Disease started like any other. We woke up as just a regular young(ish) couple with two kids, jobs and life’s typical stressors. (I guess maybe not entirely typical, unless taking our 5-year-old daughter for a colonoscopy is considered an everyday event). We’d been chasing the cause of her diarrhea for months, maybe even years. Dairy? Nope. Gluten? Nope. Strawberries (her favorite food)? Nope. As we sat in the waiting room, anxiously watching for the doctor to tell us the results, we attempted to distract ourselves with work. Both of us had tablets rested on our thighs, cell phones on the arms of our chaisr. My husband downing coffee. Me biting my nails. Then, the doctor appeared. “She has inflammation throughout most of her GI tract. We’ll wait […]

New Blood Pressure Guideline for Kids, Powered by Nemours Children's Health System

New Blood Pressure Guideline for Kids

The American Academy of Pediatrics recently released new blood pressure assessment guidelines for children, endorsed by the American College of Cardiology and the American Heart Association. The guidelines were last issued in 2004 and restated in 2011. Similar to prior guidelines, children are placed into four groups with regard to blood pressure: normal elevated – to be managed by lifestyle changes including diet and exercise stage 1 hypertension – to be followed by the provider and which may or may not require treatment stage 2 hypertension – which requires further workup and medication What’s Different? A difference from previous guidelines is the development of new normal blood pressure tables. In the older tables, overweight children’s blood pressure measurements were included. Now the tables are based only on children who are not overweight or obese. As a result, the new blood pressure numbers are slightly lower, leading to slightly lower thresholds […]

What is Powassan virus? | Karen Ravin, MD, Division Chief of Infectious Diseases, Nemours/AIDHC | Promise, powered by Nemours Children's Health

What is Powassan virus?

An unfamiliar tick-borne virus is making headlines this spring. What is Powassan virus and how worried should we be? Powassan virus is an extremely rare infection transmitted by a tick bite. Powassan can cause fever and vomiting, disorientation, seizures and brain inflammation and swelling. How common is Powassan? To say it is rare is an understatement. Since 2006, only 75 cases have been reported in the U.S., mostly in the Great Lakes region and New York State. One case was reported in Pennsylvania, three in New Jersey and none in Delaware or Maryland. The chances of contracting Powassan virus are about one in 50 million. Is it new? Powassan isn’t new. It was first reported in Canada in 1958. Recently, a toddler in Connecticut became ill with Powassan virus (the first case identified in that state). Reports were featured prominently in national media, raising awareness (and fear) of Powassan. In […]

Asthma Flare-Ups and Kids: What They Are, What You Can Do, Powered by Nemours Children's Health System

Asthma Flare-Up and Kids: What They Are, What You Can Do

A recent survey by Nemours Children’s Health System, the Delaware Survey of Children’s Health (DSCH), showed that parents of 88 percent of children with asthma were educated by health professionals on how to recognize early signs or symptoms of asthma episodes in their child. Understanding what an asthma flare-up is and how to recognize the early signs or symptoms are key steps in improving the health of your child. Increasing the percentage of parents who are taught how to recognize their child’s early signs or symptoms of an asthma flare-up (also called an asthma attack) can help reduce the number of asthma-related hospital visits and improve the overall health of their child. What is an Asthma Flare-Up? During an asthma flare-up, the breathing tubes (also called bronchial tubes) in the lungs constrict — like a straw being squeezed — which triggers wheezing, coughing and tightness in the chest. Some kids […]

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