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Patient Stories

A brave contingent of donors had their heads shaved to raise funds and awareness for childhood cancer at a recent Nemours-sponsored St. Baldrick’s Foundation event, held at Iron Hill Brewery on the Wilmington Riverfront. St. Baldrick’s supports the Nemours Center for Cancer and Blood Disorders at Nemours/Alfred I. duPont Hospital for Children by supplying all new patients and their families with a “day pack” filled with bilingual resource materials to help guide them through the overwhelming experience of a childhood cancer diagnosis. Among the “shavees” was Candice Morris, a home health nurse from Magnolia, Del., who was inspired by one of her young patients’ bravery in the face of cancer. About 30 minutes after Candice submitted to the razor, her mother and son went for it, too! Many thanks to the volunteer stylists from Currie of Wilmington, Iron Hill for providing a private room, and event organizers/Nemours oncology nurses Nicole Roselli and […]

The guests arrived at the Nemours/Alfred I. duPont Hospital for Children’s 2016 “Fire and Ice” prom in glittering gowns and sharp suits, groomed to perfection and shivering a little on a breezy April evening. They exited classic cars that had chauffeured them to the hospital, letting their illness take a back seat on this festive evening. They danced, posed for photos, laughed and reveled with nearly 100 fellow Nemours patients who are facing or recovering from serious health concerns. The Nemours prom, a labor of love for dedicated staff and volunteers, is now in its fourth year. Teens with cancer, sickle cell disease, heart and kidney disease, and other conditions are treated to a themed extravaganza that rivals any high school prom. An outpouring of community support ensures the guests enjoy a wonderful event at no cost to their families. Dresses, tuxedos, makeup and hair styling, food, decorations, gifts, music and photography are […]

Injury Prevention for the Throwing Athlete…Overuse Injuries in Young Athletes…Sport Specialization – Avoiding the Pitfalls of Too Much Time in One Sport…Concussions in Youth Sports…These are just a few of the talks that I have given over the past five years to parents and coaches of young athletes. As the manager of the sports therapy program at the Nemours Center for Sports Medicine, I have seen, firsthand, all of the problems that can accompany the increasingly high demands of youth sports. I have always enjoyed the opportunity to speak with these groups about what they can do to try to reduce the chance of their little athlete becoming another statistic in the growing epidemic of injured youth athletes. Talking to parents is especially gratifying, and I would prepare by pouring over the ever-growing research being published on the causes of overuse injuries and what can be done to prevent them. All […]

When you hear statistics like “1 in 3,000” or “only 104,000 in the U.S.,” it’s hard to feel like others understand what you’re going through with a rare condition such as arthrogryposis. So, imagine how wonderful it must have felt for the nearly 130 people who gathered for the Arthrogryposis Mini Meet-Up recently held at Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del. A condition of the joints and muscles, arthrogryposis impairs children’s abilities to use their shoulders, wrists, fingers and lower extremities. There are many variations — some mild, some severe. There is no cure for arthrogryposis, but there are treatments that can help to maintain and maximize a child’s range of motion and function. The goal of the Mini Meet-Up was to bring together kids and adults with arthrogryposis so they could share their stories, their experiences and their support with each other. And, perhaps most important, […]