La Dra. Monica Barreto destaca la importancia de la conexión mente-cuerpo y el papel vital de los padres en el apoyo a la salud mental de sus hijos.
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From Diagnosis to Determination: Allen’s Brain Tumor Journey
Allen’s brain tumor journey, with support from Nemours Children’s Health in Jacksonville, showcases resilience, comprehensive care, and positivity in adversity.
Living Life to the Fullest: Carly’s Journey with Morquio Type A
For Carly, the journey to a Morquio Type A diagnosis began with uncertainty. As a young child, there were signs that something wasn’t quite right, and her parents embarked on a quest for answers. After a lot of testing and a few misdiagnoses, it wasn’t until Carly was around a year and a half old that a local doctor stumbled upon a small paragraph in a textbook about Morquio Type A, setting the stage for a lifelong medical journey. When her physician, Dr. Kopis from St. Jose Hospital, could no longer practice, Carly’s journey led her to the care of Dr. William Mackenzie at Nemours Children’s Hospital, Delaware. With expertise in skeletal dysplasia, Nemours Children’s was the perfect fit for Carly, offering specialized care tailored to her needs. “From the beginning, my parents loved the care I received at Nemours,” says Carly. “My mom immediately transitioned all of my doctors to […]
Nurses Week: Liz Upadhyaya’s Journey from Marketing to Pediatric Nursing
During Nurses Week, explore Liz Upadhyaya’s journey from marketing to pediatric nursing at Nemours Children’s Hospital in Delaware.
The Power of Community at Nemours Children’s Health
Laura, Jess, Ginny, and Jasmine are remarkable mothers whose paths crossed through their children’s diagnoses. Through shared experiences and care teams, this group of women have formed lasting friendships. Their children, Charlette, Noah, Gino, and Jeremiah, share the diagnosis of osteogenesis imperfecta (OI) and receive compassionate care from the exceptional team at Nemours Children’s Hospital, Delaware. Under the guidance of dedicated clinicians such as Dr. Ricki Carroll, Dr. Jeanne Franzone, Tina McGreal, APRN, Licensed Genetic Counselor Andrea Schelhaas, Sarah Little, PA-C, Katie Harp, LCSW, and many more, these children are thriving in a nurturing environment full of hope. United by a common journey, Laura, Jess, Ginny, and Jasmine were introduced to each other via an online group for parents of children with OI. Through these Facebook groups dedicated to OI, they discovered a community where fears were conquered, victories celebrated, and wisdom exchanged. Laura recalls the moment when she first […]
Nurses Week: Ashley Johnson’s Impactful Journey as a Tracheostomy Nurse Manager
Celebrate Nurses Week with Ashley Johnson’s inspiring journey as Tracheostomy Nurse Manager at Nemours Children’s Hospital in Orlando.
Osteogenesis Imperfecta Awareness Week: Mackenzie’s Story
In the world of healthcare, finding a place that feels like home can be a challenge. For Amanda, mother of 4-year-old Mackenzie, that home is Nemours Children’s Hospital, Delaware. Mackenzie’s journey with osteogenesis imperfecta (OI) began even before she took her first breath. At just 25 weeks, Amanda learned of her daughter’s diagnosis. “I went for a routine anatomy scan while pregnant. Significant bowing in Mackenzie’s legs and long limb measurements indicated that she would need more testing. I received an amnio and was sent to another hospital where she was diagnosed,” Amanda recalls. Transitioning Mackenzie’s care to Nemours Children’s was a pivotal moment for their family. They discovered the facility after finding recommendations on social media. “We are part of a group on Facebook for parents of children with OI,” says Amanda. “I was asking questions when Mackenzie broke her arm at 10 days old and someone recommended we […]
Nurses Week: Celebrating Julia Haubrich’s Journey in Pediatric Oncology
Celebrate Nurses Week with Julia Haubrich, a dedicated pediatric oncology nurse at Nemours Children’s Hospital, in Delaware.
Nurses Week: Katie McGill’s Journey to Pediatric Oncology
Discover Katie McGill’s inspiring journey in pediatric oncology during Nurses Week at Nemours Children’s Health, Jacksonville.
Nurses Week: Debby’s Journey of Growth and Compassion at Nemours Children’s Hospital, Delaware
Experience the inspiring journey of Debby Miller, from Nursing Assistant to Associate Nurse Manager at Nemours Children’s Hospital, Delaware.
Nurses Week: Randi Danley’s Dedication to Pediatric Care in Pensacola
Discover the journey of Randi Danley, a dedicated pediatric nurse at Nemours Children’s Health in Pensacola, as we celebrate her during Nurses Week.
Compassionate Care: Cruz’s Story
“At the 20-week ultrasound, I learned about his skeletal dysplasia,” Brittany recalls. “And at the 33-week Vistara blood test, I learned about his OI diagnosis.” These moments marked the beginning of Cruz’s journey, but they also sparked Brittany’s search for the best care possible for her son. It was during her 35th week of pregnancy that Brittany discovered the Advanced Delivery Program (ADP) at Nemours Children’s Hospital, Delaware, thanks to a recommendation on the Osteogenesis Imperfecta Community Facebook page. “Their care, communication, and knowledge gave us extreme confidence in the ADP Team,” says Brittany. “They had a plan, relayed it to us, listened to our concerns, and had experience delivering OI babies.” The support Brittany received from the medical staff at Nemours Children’s during the delivery process was nothing short of extraordinary. “They showed compassion during every step,” Brittany emphasizes. “They helped keep me calm by talking about my 2-year-old […]
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