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Nine months ago, Annie and Ben Grayshan got the news no parents ever want to hear, “Your child has cancer.” Their son Ethan was 7 years old when recurring vomiting led to a visit with his pediatrician in April 2022. His doctor suspected a stomach bug. The vomiting persisted and Ethan was sent for allergy testing and then to a GI specialist. After starting antibiotics for a potential parasite, Ethan began to experience fatigue and headaches, common side effects of the antibiotics. But after a few days with no improvement, his parents took him to an ER where a CT scan showed a mass on Ethan’s brain. The Grayshans were then airlifted to the ER at Wolfson Children’s Hospital in Jacksonville. Within 48 hours he had undergone two brain surgeries. One to relieve the hydrocephalus, which had been causing his symptoms, and another to remove the tumor. A diagnosis of […]

To read this in Spanish, click here! One day in May of 2022, Sebastian came home sad after school, causing me to worry about his unusual behavior as he is a very happy child. I asked Sebastian if something was wrong and if he was being bullied at school. He assured me he was just unusually exhausted. The following day, Sebastian was in the same down mood, but had a fever this time. I took Sebastian quickly to our local doctor, where he was diagnosed with a stomach bug and prescribed antibiotics. He eventually felt better, but not much time passed before the same symptoms returned. We went to another doctor who gave him the same diagnosis and prescribed more antibiotics. I wondered how it could be a stomach bug if he had no GI symptoms, but I followed the doctor’s advice. Rapid breathing was later added to Sebastian’s symptoms, […]

En mayo de 2022, Sebastián llego triste de la escuela. Estaba yo preocupada por él. Pensé que tal vez alguien era un bully, pero me aseguró que estaba inusualmente cansado. Al día siguiente era lo mismo, y tenía fiebre, así que lo llevé al médico que le diagnosticó una infección de estómago y le recetó antibióticos. Mejoró, pero no pasó mucho tiempo antes de que regresaran los mismos síntomas. Fuimos a otro médico que dijo que era lo mismo y nos recetó aún más antibióticos. Me pregunté cómo podría ser una infección del estómago si no tenía síntomas gastrointestinales, pero seguí lo que dijo el médico. Pero luego se agregó la respiración rápida a sus síntomas y supe que algo más estaba pasando, así que esta vez lo llevé al hospital. La respiración era tan rápida que me asustó. Pensaron que era bronquiolitis y prescribieron un tratamiento con nebulizador. Cuando […]

Win or lose, 15-year-old Capucine Jauffret never gives up. Her mom and dad, Jennifer and Christophe, attribute Capucine’s instinctive determination to a time when she had to fight for her life—a time Capucine won’t remember, and her parents won’t ever forget. When Capucine was born, doctors heard loud murmurs in her heart and diagnosed her with a congenital heart defect called Tetralogy of Fallot, which causes oxygen-poor blood to flow out of the heart and into the rest of the body. At just 17-days-old, Capucine had life-saving open heart surgery to repair her heart. “We are incredibly blessed the doctors were able to perform the operation before Capucine had any significant problems,” said Jennifer. “Fortunately, technology changed, and we didn’t have to wait until she was older and her heart was bigger like other children with this condition have in the past.” “I was thrilled and delighted to hear about […]

Nemours joined the Children’s Hospital Association and children’s hospitals from across the country to advocate on Capitol Hill for continued federal support for the CHGME program.

The gluten free diet has become a popular diet trend over recent years. The most common conditions that require a gluten free diet include celiac disease, wheat allergy, non-celiac gluten sensitivity, gluten ataxia, and dermatitis herpetiformis. Some individuals may choose to adhere to a gluten free diet for other reasons. Gluten is the protein found in the grains wheat, rye, and barley. A gluten free diet requires avoidance of these grains. When foods are removed from the diet, it can make it more difficult to maintain a healthy and balanced diet, so if gluten is removed from the diet it is important to do so with the guidance of  a Registered Dietitian. The purpose of this article is to clear up some common misconceptions surrounding gluten and the gluten free diet. Do I need to avoid all gluten if I have a wheat allergy? -No. Only the grain, wheat, needs […]