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This toddler with a rare disease got a life-changing treatment. Why can’t all kids?

This article originally appeared in STAT on December 15, 2016. When 6-month-old Asher Camp was diagnosed with type 1 spinal muscular atrophy, a leading genetic cause of infant mortality, his family measured his life in days, not years. They dreaded the future, wondering how much time they would have with their beautiful baby boy. Parents of children with type 1 spinal muscular atrophy aren’t guaranteed to see their baby’s first steps, first day at school, or other treasured milestones that make up a child’s life. Instead, they watch anxiously as developmental milestones are missed, as common colds require trips to the emergency room, and as hope fades for reaching the day when a cure becomes available. Asher got lucky. He was able to take advantage of a life-changing opportunity, the kind that needs to be available to all children. Just a month after Asher’s parents, Amanda and Jeremy Camp of Lakeland, […]

Teens, Young Adults Account for Half of New STD Cases, by Robyn Miller, MD, Powered by Nemours Children's Health System

Teens, Young Adults Account for Half of New STD Cases

It’s enough to send parents running to lock their teens in their bedrooms: About 10 million 15- to 24-year-olds have a sexually transmitted disease (STD) — that’s half of the new STD cases reported each year. And in 2015, there were more STDs reported than ever. The top three most commonly reported STDs — chlamydia, gonorrhea, and syphilis — were all at an all-time high, according to the annual STD surveillance report by the Centers for Disease Control and Prevention (CDC). STDs are now more commonly referred to by the medical community as “sexually transmitted infections” or “STIs.” The Repercussions of Sex Before teens and young adults make that very adult decision to become sexually active, they need to understand that it can come with many very adult consequences, too. Pregnancy is often the biggest concern for sex-curious teens. Even though U.S. teen birth rates are at an historic low, […]

New Screen Time Guidelines and Tips to Unplug, by Michelle Kartan, MD, Powered by Nemours Children's Health System

New Screen Time Guidelines and Tips to Unplug

There’s no getting around it: Screens are everywhere. Take a look around next time you’re at a restaurant, coffee shop, on the bus, at the park, or even in your own home. How many people — adults and kids — have their eyes on a screen instead of on the world around them? Of course there is a time and place for screen time. But as the American Academy of Pediatrics (AAP) announces new recommendations for children’s media use, it’s a good reminder for all of us to get our own media use in check. New AAP Recommendations for Screen Time For children younger than 18 months Avoid use of screen media altogether, except for “video chatting” (e.g., letting Grandma and Grandpa see or talk to your little one). For children 18 to 24 months of age If you want to introduce digital media during this age, choose high-quality programming and watch […]

Life-Changing Spine Surgery Expertise From Overseas, Promise, Powered by Nemours Children's Health System

Life-Changing Spine Surgery Expertise From Overseas

For the past year, Dr. Peter Gabos, pediatric spine surgeon at Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., has been traveling to Belize City, Belize, with Spine Overseas. This nonprofit organization brings together healthcare, education, and technology in order to provide contemporary spine surgery and care in places where this care doesn’t currently exist. Through the generous support of multiple medical device and equipment companies, Spine Overseas has been able to bring state-of-the-art technology to Central America. “I joined Spine Overseas when adult spine surgeon [and Spine Overseas cofounder] Dr. John Williams told me they needed a pediatric surgeon to help kids with severe spinal deformities in Belize City,” says Dr. Gabos. “When I read their mission statement, I jumped at the opportunity.” Meeting a Friend for Life One child Dr. Gabos recently helped is 8-year-old Alex, who was previously diagnosed with asthma due to significant difficulty breathing. But […]

Donate Blood: Why Should You Give?, Promise, Powered by Nemours Children's Health System

Donate Blood: Why Should You Give?

Did you know that every three seconds, someone in the United States needs a blood donation? Even though nine out of 10 people will need blood products in their lifetime, less than 10 percent of the eligible population opts to donate blood. The thing is, regular blood donations by healthy people ensure that safe blood will be available whenever and wherever it’s needed — for children and adults alike. And there’s a constant need for blood supply because blood can only be stored for a limited time before use. How Does It Help? A decision to donate your blood can save a life — or even several lives — if blood is separated into its components (red blood cells, platelets, and plasma), which can be used individually for patients with specific conditions. Red Blood Cells Red blood cells, made in bone marrow, contain hemoglobin and carry oxygen to the body. So who […]

Advancing Healthcare Outcomes Tomorrow by Investing in Undergraduates Today

For over 40 years, Nemours Biomedical Research has hosted a highly motivated and talented cadre of undergraduate research students during the summer months, and this year we added another success story. From June through August, 32 students had the opportunity to participate in research projects with our scientists and clinicians. The research projects were diverse and ranged from epidemiologic, to basic topics. During the 10-week program, students attended weekly seminars, participated in a student-run journal club, shadowed physicians, visited the Nemours Estate, and most importantly, gained hands-on experience conducting research procedures. Nemours Faculty and Associates mentored students through the research process: formulating research questions and hypotheses, navigating the IRB if appropriate, learning required procedures and skills, following protocols, and analyzing and interpreting data. At the end of the program, students had three opportunities to present their research findings. The first was at the newly instated Nemours Summer Undergraduate Research Student […]

Bald Is Beautiful: Losing Locks for Childhood Cancer

A brave contingent of donors had their heads shaved to raise funds and awareness for childhood cancer at a recent Nemours-sponsored St. Baldrick’s Foundation event, held at Iron Hill Brewery on the Wilmington Riverfront. St. Baldrick’s supports the Nemours Center for Cancer and Blood Disorders at Nemours/Alfred I. duPont Hospital for Children by supplying all new patients and their families with a “day pack” filled with bilingual resource materials to help guide them through the overwhelming experience of a childhood cancer diagnosis. Among the “shavees” was Candice Morris, a home health nurse from Magnolia, Del., who was inspired by one of her young patients’ bravery in the face of cancer. About 30 minutes after Candice submitted to the razor, her mother and son went for it, too! Many thanks to the volunteer stylists from Currie of Wilmington, Iron Hill for providing a private room, and event organizers/Nemours oncology nurses Nicole Roselli and […]

Straight Talk About Scoliosis at Mentoring Event

What can inspire more than 100 people to gather at Nemours/Alfred I. duPont Hospital for Children on a beautiful Saturday morning in June? “The opportunity to share common concerns [and] feelings with other families.” That was the overwhelming response from participants of the 3rd Annual Patient and Parent Mentoring Event, hosted by the Nemours Spine and Scoliosis Center. This event was open to families with children who have adolescent idiopathic scoliosis, the most common form. Three people out of 100 have scoliosis, a condition that causes the spine to curve from side to side, like an “S” or a “C.” For some, no treatment is necessary, just periodic monitoring of the curve by a doctor. For others, the curve of the spine is large enough that treatment is required, which can include bracing to halt or slow down the progression of the curve and/or surgery to correct the curve. The […]

Nemours Patients Sparkle at “Fire and Ice” Prom

The guests arrived at the Nemours/Alfred I. duPont Hospital for Children’s 2016 “Fire and Ice” prom in glittering gowns and sharp suits, groomed to perfection and shivering a little on a breezy April evening. They exited classic cars that had chauffeured them to the hospital, letting their illness take a back seat on this festive evening. They danced, posed for photos, laughed and reveled with nearly 100 fellow Nemours patients who are facing or recovering from serious health concerns. The Nemours prom, a labor of love for dedicated staff and volunteers, is now in its fourth year. Teens with cancer, sickle cell disease, heart and kidney disease, and other conditions are treated to a themed extravaganza that rivals any high school prom. An outpouring of community support ensures the guests enjoy a wonderful event at no cost to their families. Dresses, tuxedos, makeup and hair styling, food, decorations, gifts, music and photography are […]

My New Perspective: A Sports Medicine Provider, Now Also a Sports Parent

Injury Prevention for the Throwing Athlete…Overuse Injuries in Young Athletes…Sport Specialization – Avoiding the Pitfalls of Too Much Time in One Sport…Concussions in Youth Sports…These are just a few of the talks that I have given over the past five years to parents and coaches of young athletes. As the manager of the sports therapy program at the Nemours Center for Sports Medicine, I have seen, firsthand, all of the problems that can accompany the increasingly high demands of youth sports. I have always enjoyed the opportunity to speak with these groups about what they can do to try to reduce the chance of their little athlete becoming another statistic in the growing epidemic of injured youth athletes. Talking to parents is especially gratifying, and I would prepare by pouring over the ever-growing research being published on the causes of overuse injuries and what can be done to prevent them. All […]

“Love Helps Me Heal:” An Original Song

This spring, in partnership with the University of Delaware, Nemours hosted Artist-in-Residence Frank Waln, an award-winning Native American hip-hop artist from the Rosebud Reservation in South Dakota. Frank joined Nemours in our Creative Arts Therapy program at Nemours/Alfred I. duPont Hospital for Children, where he has been able to share his story with our patients and families. Frank met with groups of patients while here and spoke about growing up as a Native American, being raised by a loving single mother, and the ways hip-hop music offers him healing during difficult times. One of his goals while here was to work with our patients to create a one-of-a-kind musical work that tells their story about being in the hospital. With a degree in audio engineering and his experience as a performer, Frank was able to show kids how to create hip-hop music. Frank taught them how to build a song by […]

Laundry Pod Dangers, Powered by Nemours Children's Health System

Laundry Pod Poisonings Increasing Despite Safety Warnings

In the hustle and bustle of our everyday lives, I can really appreciate the small conveniences that are available to make our lives easier…drive-throughs, single-serve coffee makers, even microwave meals. One of the biggest things that make our lives easier is washing machines. They make washing things so much more efficient. Many people would be lost without their washing machines and dishwasher. This is why many homeowners decide to insure their appliances at https://homewarranty.firstam.com/homeowner/home-warranty/michigan. That makes sure that homeowners can receive 24/7 support if their appliances break down. Someone will also come out and take a look at the appliance too. Hopefully, they’ll be able to fix it, allowing us to continue with our washing. But sometimes these little conveniences can carry a danger we never considered, especially when using pods. The laundry (and dishwasher) detergent packets/pods are a great example of what seems to be the perfect modern-day convenience. […]

Page 30 of 31

Page 30 of 31

Page 30 of 31