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We found hope at Nemours. This is where we learned how to fight. The doctors at Nemours explained the realities of this difficult diagnosis, but they did it in a way that was also filled with hope. They told us that Jude would write his own story. They taught us how to fight for him, care for him and advocate for him. We drive from Charlotte to Wilmington, Delaware for Jude to receive his medical care at Nemours with the incredible team there.

This post was written by Anthony’s mom, Debbie.  “Something was Different” Anthony was about six months old when I started to notice something was different about his back. He would roll over and try to sit up and there was an obvious bulge/curvature in his spine. I took him to my pediatrician who told me there wasn’t anything to worry about. He informed me that some children take a bit longer to sit up on their own. At this time, I had two-year-old twins at home and was very aware that children progress differently, but there was no overlooking the curve of his spine. Unhappy with that visit, I scheduled an appointment with a specialist at a hospital in Philadelphia, PA. Finally a Diagnosis Anthony was about a year old when he was diagnosed with infantile scoliosis. My family was with me in the room when the doctor put his […]

As originally posted on “Love What Matters,” written and submitted by mom, Marcella Stanley “‘I’m sorry, but I don’t think he’s going to make it.’ My husband and I sat flabbergasted, the tears instantly streaming while I struggled to breathe. A room filled with nearly a dozen people stared awkwardly at us as we faced every parent’s worst nightmare. This was not how this day was supposed to go. We found out exactly four weeks prior, at our 20-week ultrasound, that our baby boy had a form of dwarfism. The initial concern was that it was a lethal condition, due to the severity of his skeletal abnormalities and how early they presented in the pregnancy. However, my amazing local OB and maternal fetal medicine physicians researched, and after painstakingly detailed ultrasounds, determined our son likely had a non-lethal skeletal dysplasia. His limbs were awfully short, but his chest was average […]

“Give a man a fish, and you feed him for a day. Teach a man to fish, and you feed him for a lifetime.” – Proverb About a year ago, Dr. Cynthia Reyes joined Nemours Children’s Hospital as the Division Chief of Pediatric Surgery and Surgical Director of Quality. Since joining the team, she’s been helping to expand the pediatric surgery program and develop a surgery quality program. Dr. Reyes holds the honor of being the first Hispanic female trained in pediatric surgery in the U.S. Along with Dr. Reyes years of experience and success in pediatric surgery, she also brings a unique perspective to the Nemours community. For more than 20 years, she has been an active member of the Pacific Association of Pediatric Surgeons (PAPS), which supports the growth of pediatric surgery around the world, with a focus on the countries of the Pacific Rim. Formed 50 years […]

This post originally appeared on Philly.com By now you’ve probably heard about the Hot Pepper Challenge for ALS which began gaining popularity this month. After NBA writer Tom Haberstroh found out his mother was diagnosed with ALS, his family started the Hot Pepper Challenge in December to raise money for research — a similar idea to the Ice Bucket Challenge in 2014. People are nominated on video and encouraged to donate to the cause. Should Your Kids Take Part? Challenges like this are done in good fun and help to raise awareness and funds for important causes. But as a pediatrician, I have mixed feelings about children participating in the pepper challenge. Here’s why. Hot peppers can cause some unpleasant symptoms due to a chemical compound called capsaicin. Most of the capsaicin is in the seeds and membranes, so remove these parts if you’re worried about the heat. Among other things, capsaicin […]

I celebrated my first National Diabetes Awareness Month in 1990. I was twelve years old, had just started seventh grade, and was very aware of Type 1 diabetes – I’d just been diagnosed with it. Aside from the distinctive smells of insulin and alcohol swabs, I don’t remember much about the time I spent in the hospital after my diagnosis, or about those first few months at home. I do, however, remember the sense of bewilderment that accompanied my family home from the hospital, and how uncertain we were about how our lives would proceed with a chronic condition to manage. If I could go back to that November, there’s so much I would tell my younger self about the reality of living with diabetes. Unfortunately, I can’t – so I’m sharing what I’ve learned here. Don’t panic. It’s true that diabetes can (and will) infiltrate every part of your […]