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This post was written by Nathan’s mom Kim Silpath “It’s not about me anymore, it’s about the other kids”- Nathan Every day, 43 parents have to hear the same words we heard a few years ago, “your child has cancer.” I still remember that moment, and the reaction from my son, Nathan. He was ready to fight it. Not just for himself, but fight and help other children with cancer too. I could not have been more proud. Nathan was an incredible child that had a passion for school, sports, and most importantly helping others.  He loved meteorology, biology, hiking, soccer, sled hockey, and football! Nathan’s cancer battle started in 2010 when he was at soccer practice and started mentioning how his leg was bothering him. Nathan noticed a bump on his leg, but like most kids, didn’t think much of it and continued playing soccer. As his pain increased, […]

How did two children’s healthcare organizations in Jacksonville, Florida care for kids 7,000 miles away? Jonathan Soud was a 12-year-old patient at Wolfson Children’s Hospital and Nemours Children’s Health, Jacksonville, being treated for leukemia. During his treatments, his doctors and family spent a lot of time talking to him about his interests in travel and other cultures, especially the country of Mongolia. Eric Sandler, MD, is a pediatric hematologist/oncologist at Wolfson Children’s Hospital and chair of the department of pediatrics at Nemours Children’s Health, Jacksonville. He developed a special bond with Jonathan during treatments, sharing his own fascination with distant lands. Dr. Sandler also discovered that Jonathan had an interest in serving others. “After he passed away, his parents came to me and said they wanted to figure out a way to honor Jonathan’s memory,” said Dr. Sandler. “Since we had had all those conversations regarding Mongolia, his family decided to […]

For parents whose children live with an allergy to peanuts or tree nuts, avoiding the ingredients can become a matter of cautious routine. It’s never easy, but parents grow accustomed to avoiding certain foods and contaminants, watching for symptoms, and carrying the necessary supplies in case of an accidental exposure. But what about friends, friends’ parents, or other family members? It can be hard to give a simple overview of the dangers and limitations that come with a peanut or tree nut allergy – especially when you’re trying to allow your child to live a life that’s as close to normal as possible. Here’s what friends and family members should know about caring for or spending time with a child who has a nut allergy – whether it’s a sleepover, family vacation, or a babysitting gig. It’s a real thing. No matter what your own experiences with peanut or tree nut […]

In this video, recorded on June 28, 2021, Suken Shah, MD Chief, Spine & Scoliosis Center and Brett Shannon, MD, orthopedic surgeon, discuss and answer questions about scoliosis. Learn more about: When and why your child may need surgery. What surgery is like. Life with spinal fusion surgery. Complications and risks. If you have questions for Dr. Shah and Dr. Shannon, post them in the comments section on Facebook. Q: When a pediatrician first discovers a small curve in a young child, what is the best way to approach the new diagnosis? A: Kids under age 10 are more likely than older kids to need further monitoring, or even sometimes intervention from an orthopedic surgery team. If you detect any asymmetry of the back, or trunk, or shoulders, it’s important to have them come in and see us for a further evaluation. This includes the child’s history and a physical […]

When your child complains of chest pain, it’s natural to jump to heart-related conclusions. But most cases of chest pain in children aren’t caused by cardiac conditions. It can sometimes be hard to get a clear description of your child’s chest pain, but symptoms usually include: Tightness. Discomfort. Burning sensation. Pain when taking deep breaths. Coughing. Wheezing. So what should you do? Make an appointment with your child’s primary care physician, and keep in mind that chest pain in children is usually not heart-related. Chest pain can often be attributed to one or more of the following: Gastroesophogeal reflux disease, or ongoing heartburn Pain or inflammation in the chest wall Asthma Pneumonia Stress or anxiety Injury Viral illness Heading to the hospital is absolutely necessary in some situations. Seek emergency care if: Exercise brings about chest pain, or makes it worse. Chest pain occurs with rapid or irregular heartbeat. Fainting or […]

This past year and a half has been tough on all of us, especially our children and youth. For so many, the COVID-19 pandemic has changed life as we know it. But for Nemours patients Kate and Sebastian, the pandemic is just one of many life-changing events they’ve faced. And that’s why they are both sharing their medical journeys to members of Congress during the 2021 Children’s Hospital Association (CHA) “Speak Now for Kids’ Family Advocacy Week,” to increase awareness about the ongoing and essential care provided by children’s hospitals. Kate’s Story When she was just 2 years old, Kate McKinery was diagnosed with optic pathway glioma, a brain tumor that interferes with her optic nerve and impacts her sight. The tumor also causes hormone deficiencies, resulting in abnormal liver function, type 2 diabetes and a full height potential of around 4’2. Kate has undergone multiple procedures, tests and appointments […]