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Join Leading Advocates in the Call for Better Maternal & Child Care: Insights from the 2023 Cindy Pellegrini Maternal & Child Health Advocacy Day.

On May 30th, 2021, Chloe was having a typical night playing with her toys. She was smiling and giggling like always, and suddenly she stopped her energetic pacing between toys and randomly fell to the floor. She became limp and stopped breathing. Her lips and feet turned purple right before she became conscious again. No one knew why this happened because she’d never experienced anything like it before. An ambulance arrived, and Chloe was taken to Nemours, where she was diagnosed with epilepsy following a second episode that occurred in the hospital. Despite a quick diagnosis, there was still a long road ahead to gain seizure control. Chloe’s days went from cheerful playing and adventures to constant seizures, which made her feel sick and exhausted. She was unmotivated to do anything. Her toys were barely touched, and she couldn’t sleep through the night without multiple seizures. Eating food became a […]

When Jill’s third child, Emmy, was born with a hole in her heart, Jill wasn’t too worried. Her two older sons also had the condition—called Atrial Septal Defect (ASD)—and theirs had cleared up over time. In children with ASD, blood recirculates inside the heart, and doesn’t reach the rest of the body as well as it should. Dr. Mary Mehta, Pediatric Cardiologist at Nemours Children’s Specialty Care, Pensacola, worked with the family to track Emmy’s condition. It didn’t improve, and it soon became clear that Emmy would need complex and invasive surgery to repair the hole in her heart. When Emmy was just three years old, the right side of her heart began to enlarge, presenting more risks: asthma-like symptoms and other coronary issues.  It was time to prepare for open heart surgery. Emmy’s family met with Dr. Peter Wearden, Cardiothoracic Surgeon at the Nemours Cardiac Center at Nemours Children’s Hospital […]