Orthopedics Archives - Nemours Blog

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Orthopedics

Limb Loss & Limb Differences Awareness Month: Jaiden’s Story

Jaiden’s medical journey began with a diagnosis of Fibular Hemimelia during a routine anatomy scan at just 20 weeks into his mother, Megan’s, pregnancy. Little did they know, this diagnosis would lead them to Nemours Children’s Hospital, Delaware. Upon learning about her son’s condition, Megan was very shocked. “It was unexpected, but we knew we had to do everything we could to give Jaiden the best chance at a fulfilling life,” she shares. “Though Jaiden always got around fine, if he didn’t have surgery, his legs would be drastically uneven and would not be able to walk.” Their journey with Nemours Children’s began in 2012 when Megan sought a second opinion on Jaiden’s condition. “A family friend suggested Nemours, and from the moment we walked through the doors, we knew we were in good hands,” Megan reflects. Dr. L. Reid Nichols, a renowned pediatric orthopedic surgeon, became an integral part […]

Limb Loss and Limb Difference Awareness Month: Cara’s Story

Cara’s story started when she was very young, and her family sought medical help to understand why she fell often. After visits to various specialists, including optometrists, orthopedists, and neurologists, an MRI revealed a spinal cord tumor. Three days later, Cara underwent surgery, leaving her left leg without any feeling or ability to control movement. This led to several years of KFO braces, rehabilitation, emotional processing, and accidental injuries that posed diagnostic challenges due to the lack of sensation in her leg. Cara received a diagnosis of Charcot joint in her knee, after numerous bone infections, surgeries, and prolonged hospital stays. By the time Cara was entering the eighth grade, she decided she wanted her life to have more freedom from her diagnosis. Compiling her thoughts into a comprehensive letter, Cara presented her case for leg amputation to Elizabeth W. Snyder Endowed Chair in Osteogenesis Imperfecta, Dr. Jeanne Franzone, and […]

Cerebral Palsy Awareness Month: Hudson’s Story

Hudson’s journey with cerebral palsy began at just 3 months old when he was diagnosed with polymicrogyria. His parents, determined to give him the best care possible, sought out specialized treatment. Their quest led them to Nemours Children’s Hospital, Florida where they found not just medical expertise, but a supportive community dedicated to Hudson’s well-being. Before Nemours Children’s, Hudson had already undergone care at various children’s hospitals in North Carolina and Colorado. However, it was when they were referred to Nemours that Hudson’s family found a comprehensive approach to his care, encompassing not just medical treatment but also emotional support and encouragement. “We love Nemours,” Hudson’s mom shares. “Every encounter we have with doctors, nurses, and other clinical staff has been exceptional. Dr. Malone is just outstanding! He is approachable, caring and kind. I felt that he is fully committed to benefit the kids he serves. He is also an […]

Doctors’ Day Spotlight: Sarah R. Gibson, MD

Nemours Children’s Health takes pride in spotlighting the remarkable individuals who go beyond their roles as physicians. Dr. Sarah R. Gibson, a Pediatric Sports Medicine Physician in the Department of Orthopedics at Nemours Children’s Hospital, Florida exemplifies this dedication not only through her expertise but also through her hobbies outside of medicine. Dr. Gibson’s journey to becoming a physician was shaped by a blend of passions and interests. “I always had an interest in medicine,” says Dr. Gibson, “Particularly human health and physiology, but I had a lot of other varied interests as well. I enjoyed playing sports and I also had an interest in sports journalism. Prior to medical school, I would spend my winters taking premed classes and my summers dabbling in sports journalism. I was on the Kentucky Derby staff, helping run the media center during Derby week, helping ABC Sports and NBC Sports with coverage of […]

Doctors’ Day Spotlight: Alvin W. Su, MD, PhD

Sports medicine and pediatric orthopedic surgeon Dr. Alvin Su‘s journey to Nemours Children’s Health was paved with a passion for patient care. He was drawn to our hospital in Delaware and New Jersey by the collaborative spirit among the orthopedic team. “The orthopedic group at Nemours works as a team,” says Dr. Su. “We support each other very well. This is huge for patient care, and for long-term career development and physician wellness. We can take good care of our patients, and ourselves. Plus, Nemours is a true academic institution that supports scientific research, which is instrumental to future improvement of clinical care.” This effort from the orthopedics team allows surgeons like Dr. Su to prioritize what truly matters – doing the right thing for their patients. Outside his work at the hospital, Dr. Su pursues a variety of interests and hobbies. A dedicated martial artist with a black belt […]

Cerebral Palsy Awareness Month: Eloise’s Story

Eloise, a dynamic and determined young girl, received a diagnosis of cerebral palsy just before her second birthday.  After Eloise celebrated her first birthday, her parents assumed she would start walking soon, but as each month passed by, despite their initial hopes and patience, Eloise had still not taken her first steps.  Her parents recall the pivotal moment when, at 18 months, Eloise was referred by her primary care physician for evaluations and specialized care. Their journey led them to Nemours Children’s Hospital, Delaware where Eloise underwent a series of comprehensive evaluations, including MRI, EKG, and X-rays. While the test results appeared normal, Eloise was diagnosed with spastic diplegic cerebral palsy due to her muscle spasticity and gait difficulties.  Eloise’s family learned to their surprise that in a majority of cases, the specific cause of cerebral palsy is unknown.  Eloise took her first steps shortly before her 2nd birthday, albeit […]

Rare Disease Day: Madison’s Story

Madison’s dysplasia journey began even before she came into the world. During pregnancy, concerns arose as she was smaller than expected. However it was only after her birth, when she was diagnosed with hip dysplasia, that the first signs of something more complex emerged. X-rays at four months old revealed trident acetabulum and an s-shaped scoliosis, so a skeletal dysplasia genetic testing panel followed, identifying changes in B3GALT6. Variants in this gene are associated with a rare skeletal dysplasia known as spondyloepimetaphyseal dysplasia joint laxity type 1 (SEMDJL1). This condition can cause issues like progressive scoliosis, joint laxity/dislocations, and more. When they found out about her diagnosis, Madi’s family faced uncertainties about what her future might look like. However, Madi’s fiery spirit has shone through. She charms everyone she meets with her sassy personality and infectious joy. Madison’s mom, Anna, emphasizes that her daughter has never allowed anything to hinder […]

National Women Physicians Day: Dr. Stephanie Pearce

In celebration of National Women Physicians Day, Nemours Children’s Health highlights Dr. Stephanie Pearce, the Director of Sports Medicine in Orthopedic Surgery & Sports Medicine at Nemours Children’s Health, Jacksonville. Dr. Pearce’s decision to pursue a career in sports orthopedic surgery stemmed from her love for the musculoskeletal system, her enjoyment of working with her hands, and her passion for helping athletes achieve peak performance. For her, sports medicine combines these elements in a way that doesn’t feel like work – it’s a labor of love. Joining Nemours Children’s was a serendipitous journey for Dr. Pearce. Her good friend, Dr. Anna Rambo, informed her of the Director of Sports Medicine opening at Nemours. The opportunity to lead and grow a sports program, contribute to sports research, collaborate with close friends, and return to her home state of Florida made it an offer too good to resist. Working with her team […]

Reclaiming Confidence: Zoe’s Story

At the age of 13, Zoe received a diagnosis of scoliosis during a routine check-up at her primary care physician’s office. A noticeable hump in her shoulder raised concerns, prompting a referral to Nemours Children’s Health at Lakeland Regional Health. There, X-rays revealed severe scoliosis. The results were sent to Dr. Joseph Khoury‘s office, and an appointment with him was quickly scheduled. Before receiving treatment at Nemours, Zoe’s scoliosis had a great impact on her life. It affected her self-esteem, as the curve in her back and waist made her feel uncomfortable in her own skin. She expressed that her clothes didn’t fit right, and she often experienced discomfort while sleeping. The path to Nemours for Zoe and her family was driven by both trust and research. Zoe’s primary care physician recommended Dr. Khoury, who was known for his successful treatments of scoliosis. Furthermore, a family friend who worked at […]

Beyond Expectations: Brody’s Diastrophic Dysplasia

At Marcella’s 20-week ultrasound, she learned that her unborn child, Brody, had skeletal dysplasia. This news caused a whirlwind of emotions, but little did she know that this journey would lead her to the incredible team at Nemours Children’s Hospital, Delaware, setting them on a path of resilience and discovery. With this news, Marcella dove into gathering information to understand the unique challenges that Brody might face. Although they lived in Wichita, KS, her research led her to the Nemours Children’s Orthopedics team. Brody’s first appointment at Nemours didn’t come until six months, although Marcella was in touch with the skeletal dysplasia team shortly after he was born. She connected with Colleen Ditro, DNP, CPNP who would become an integral part of Brody’s journey. As Brody came into the world, so did a definitive diagnosis of diastrophic dysplasia, a rare genetic condition that causes dwarfism. Their local NICU was ill-equipped to […]

A World of Difference: Sawyer’s Story

In 2023, Stephanie, a mom and homeschool teacher from Virginia, found herself expecting her fourth child. Little did she know, this journey would lead her family to Nemours Children’s Health, bringing them expert care for her newborn son, Sawyer, who was diagnosed with osteogenesis imperfecta (OI) a condition that affects bone strength. In someone with OI, bones may break (fracture) easily, resulting from minor trauma or no clear cause. Before Sawyer’s arrival, Chris and Stephanie’s life felt complete with their three children: Cassie, Evan, and Eli. While unexpected, the news of a new addition to the family was quickly met with surprise and excitement. The entire family eagerly prepared for their newest member’s arrival. On a whim, Stephanie decided to take advantage of an extra ultrasound through a free service that was offered at her Pregnancy Resource Center. She wanted her other children to be involved and thought this was […]

From Pain to Pirouettes: Katie’s Story

In the world of competitive dance, every movement is crucial. For Kiara “Katie” Rodriguez, her dance journey took an unexpected turn when, at the age of 15, when she began experiencing hip pain. What felt like a pulled muscle led her to Nemours Children’s Health, Celebration, where she met with her pediatrician, Dr. Janette Magarino. “We all agreed it might be a pulled muscle,” says Katie. “So, we were told to rest and ice the area and take an anti-inflammatory. However, being the type to not complain, I would just dance through the pain.” As a dedicated dancer, Katie spends five hours a day, six days a week perfecting her craft. As she continued to dance, the pain got worse. “When I was home, the pain was unbearable and at times would leave me screaming or crying,” says Katie. “I couldn’t deal with the pain so I often would lose […]

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