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This post was written by Nathan’s mom Kim Silpath “It’s not about me anymore, it’s about the other kids”- Nathan Every day, 43 parents have to hear the same words we heard a few years ago, “your child has cancer.” I still remember that moment, and the reaction from my son, Nathan. He was ready to fight it. Not just for himself, but fight and help other children with cancer too. I could not have been more proud. Nathan was an incredible child that had a passion for school, sports, and most importantly helping others.  He loved meteorology, biology, hiking, soccer, sled hockey, and football! Nathan’s cancer battle started in 2010 when he was at soccer practice and started mentioning how his leg was bothering him. Nathan noticed a bump on his leg, but like most kids, didn’t think much of it and continued playing soccer. As his pain increased, […]

How did two children’s healthcare organizations in Jacksonville, Florida care for kids 7,000 miles away? Jonathan Soud was a 12-year-old patient at Wolfson Children’s Hospital and Nemours Children’s Health, Jacksonville, being treated for leukemia. During his treatments, his doctors and family spent a lot of time talking to him about his interests in travel and other cultures, especially the country of Mongolia. Eric Sandler, MD, is a pediatric hematologist/oncologist at Wolfson Children’s Hospital and chair of the department of pediatrics at Nemours Children’s Health, Jacksonville. He developed a special bond with Jonathan during treatments, sharing his own fascination with distant lands. Dr. Sandler also discovered that Jonathan had an interest in serving others. “After he passed away, his parents came to me and said they wanted to figure out a way to honor Jonathan’s memory,” said Dr. Sandler. “Since we had had all those conversations regarding Mongolia, his family decided to […]

This past year and a half has been tough on all of us, especially our children and youth. For so many, the COVID-19 pandemic has changed life as we know it. But for Nemours patients Kate and Sebastian, the pandemic is just one of many life-changing events they’ve faced. And that’s why they are both sharing their medical journeys to members of Congress during the 2021 Children’s Hospital Association (CHA) “Speak Now for Kids’ Family Advocacy Week,” to increase awareness about the ongoing and essential care provided by children’s hospitals. Kate’s Story When she was just 2 years old, Kate McKinery was diagnosed with optic pathway glioma, a brain tumor that interferes with her optic nerve and impacts her sight. The tumor also causes hormone deficiencies, resulting in abnormal liver function, type 2 diabetes and a full height potential of around 4’2. Kate has undergone multiple procedures, tests and appointments […]

This blog post is written by Larry, the father of Maddie, a medulloblastoma patient who survived a brain tumor at the age of 2. Larry inspires us by sharing his daughter’s story. “Heroism is endurance for one moment more.”      George F. Kennan In the fall of 2008, at the age of two, our daughter Maddie was diagnosed with medulloblastoma, a brain tumor that arises at the base of the brain and often spreads down through the spine via the spinal fluid. Over the course of the next ten months, Maddie underwent multiple brain and spine surgeries and intense chemotherapy protocols at Nemours/Alfred I. duPont Hospital for Children. After six cycles of chemo treatment, she had made amazing progress, knocking out 90% of her original disease. Because her scans were not completely cancer-free, she then went through an additional six weeks of radiation therapy. Conquering Cancer The effects of radiation on a 3-year-old can […]

This blog post is written by Amy, the mother of Dan, a mucopolysaccharidosis (MPS) patient who passed away in 2016 at the age of 19. Amy is a Nemours nurse and her son’s story inspires us and others every day. When Dan was born in September 1996, we were told he was a healthy baby. He joined his sister, Haley, who was 2 years old and we thought our lives were perfect. We had this sweet little family with a precious little girl and strapping baby boy. We had just moved to a new house, both had good jobs, life was good. As Dan developed, he hit all his milestones except for one; he wasn’t talking by the age of 2. He had about 20 ear infections in his first 2 years of life and the pediatrician thought his lack of language was due to him not hearing well. We went to an ENT at […]

Summer and fun: two words that go hand-in-hand, especially when you’re talking about kids.  However, summer break looks very different for many children. For millions of children from low-income households across the U.S., summer months mean no access to school meals, which may sometimes be the only nutritious food available. And even more children will have less food on their table this year because of the COVID-19 pandemic. For summer 2021 and 2022, the USDA has launched a new summer food program that will help all low-income children of all ages have nutritious meals and snacks. School Meals Help Keep Kids Healthy During the school year, many schools provide students with access to meals through federal school meal programs like the National School Lunch Program and the School Breakfast Program. These programs are run by the U.S. Department of Agriculture and state agencies, who reimburse schools that provide healthy meals […]