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Living a Full Life with Osteogenesis Imperfecta: Adira’s Story

Contributed by Adira’s mom Ashley. The first inkling that something wasn’t right came at my first ultrasound. My baby’s femur was bent at a 90-degree angle when it was supposed to be straight. A subsequent ultrasound showed fractures in her skull and irregular shaped ribs.  I was referred to a large prenatal referral center for an amniocentesis that confirmed a diagnosis of Osteogenesis Imperfecta (OI).  Consultations with the prenatal group suggested that this form of OI was very severe and incompatible with life.   I was devastated and searched the internet to find help. Miraculously, I connected with a mother who had been in a similar situation.  She referred me to the Osteogenesis Imperfecta Program at Nemours Children’s Hospital, Delaware.  We met the entire OI team the same day and geneticist, Dr. Michael Bober told us, “I promise you that we will do everything we can for your baby.”  Additional […]

To Mask or Not to Mask? Good Question.

To Mask or Not to Mask? Good Question.

Across the country, states are beginning to lift universal mask mandates, including in schools. However, COVID-19 still poses a risk for many families, especially for children too young to be vaccinated. What is a parent to do? Dr. Salwa Sulieman, an infectious disease specialist at Nemours Children’s Hospital, Delaware and a mom of three suggests looking to the numbers to help you make a decision about whether to continue wearing a mask, despite the lifted mandates. Look at the Numbers “I base masking recommendations on what the numbers in the community are doing. I tend to think about incidence of COVID-19 infection per 100,000 persons, which you can find on most state health department websites,” says Dr. Sulieman. Dr. Sulieman recommends considering optional masking when your state begins reporting an incidence rate of 50-100 cases per 100,000 persons. When your state gets to less than 10 per 100,000, there’s very […]

Let's Rethink How We Talk to Teens about Their Weight

Let’s Rethink How We Talk to Teens about Their Weight

Perhaps we need to rethink how we talk to our teenagers who have a weight issue. At the Nemours Eating Disorders Evaluation and Management Program, we see teenagers who pinpoint the onset of their eating disorder to comments made by well-intentioned doctors, coaches, or health teachers.

A Heart to Remember: Vea’s Story

For the Tsoflias family, the past year has been a roller coaster of emotion, disbelief, heartbreak and ultimately, hope. It all began when a routine 20-week ultrasound revealed an abnormality. Brittany, an expectant first-time mom, was referred to Nemours Children’s fetal cardiologist, Shubhika Srivastava for a fetal echo and soon learned that her baby had a very rare congenital heart defect called Ebstein’s Anomaly.  The defect is linked to an abnormality in the tricuspid valve, causing it to leak and if left unchecked, would result in heart failure. To correct the defect, surgery would be required.  Knowing that her baby would need highly specialized heart care immediately after birth, Brittany delivered Vea through the Advanced Delivery Program at Nemours Children’s Hospital, Delaware. “What an amazing experience. I felt special, says Brittany, because everyone went above and beyond for me.” Recognized as a surgical expert in this type of complex heart […]

Eating the Rainbow

Eating the Rainbow

We know eating fruits and veggies can provide tons of health benefits and are an important part of a balanced diet. But why is it so important to “eat the rainbow?” Fruits and veggies are dense in phytochemicals and micronutrients – vitamins and minerals – that our bodies need to function properly and grow, but not all fruits and veggies are equal. Depending on the color, different nutrients may be more abundant in some fruits and veggies than in others. Let’s explore how eating the rainbow can provide our bodies with different nutrients and what they can do for us!   Red Orange/Yellow Green Blue/Purple White/Brown Examples Raspberries, strawberries, tomatoes, red bell peppers, cranberries, and watermelon Oranges, orange bell peppers, carrots, mango, yellow bell peppers, yellow squash, lemons Leafy vegetables, broccoli, kale, kiwi, avocado, green grapes, cucumbers, peas, zucchini Blueberries, blackberries, eggplant, plums, purple cabbage, purple grapes Bananas, cauliflower, ginger, […]

The Emotional Rollercoaster of a Cleft Lip and Palate Diagnosis: Fred’s Story

It was a wonderful yet traumatic time in our lives.  Even with the support and love from our families and friends, we still felt alone and confused. Who could possibly know what it’s like to be told that your beautiful baby boy will be born with a cleft lip and palate?   We were referred to Dr. E.J. Caterson, Chief, Plastic Surgery at Nemours Children’s Hospital, Delaware. During our first visit, Dr. Caterson shared with us that his passion for craniofacial surgery had been influenced by his youngest son who had been born with a cleft lip.  We immediately felt heard and understood on so many levels. His soft-spoken and kind demeanor, along with his genuine concern calmed our fears. His detailed surgical plan inspired confidence.  We trusted him.  Fred had his first corrective surgery at 4 months. He also had a GPP, which is not done at many institutions. The GPP […]

Fire Safety: What to Know in Case of Fire

Fire Safety: What to Know in Case of Fire

Did you know that winter months are peak time for fire-related deaths? In the event of a fire, you may have as little as two minutes to escape. Home and apartment fires can start and spread quickly. It is important to create a fire escape plan and practice it regularly with your family. Create a Fire Escape Plan The best way to start planning a fire escape plan according to the National Fire Protection Association (NFPA) is to draw a map of your home or apartment showing all doors and windows. The NFPA says families should: Plan two ways to escape from each room. Make sure all doors and windows leading outside open easily. Identify secondary routes: a window onto an adjacent roof or a collapsible ladder from a second-floor window. If you live in a multi-story building, plan to use the stairs – never the elevator. Designate an outside meeting […]

Omicron Is Spreading: Why You Shouldn’t Shrug It Off

Omicron Is Spreading: Why You Shouldn’t Shrug It Off

It’s hard to believe that we are about to start our third pandemic year. We had all hoped that by now COVID-19 would be a thing of the past and life would be getting back to normal. Instead, a variant called omicron is quickly spreading. Lots of people are getting infected from this new variant, and hospitals are filling up. Many people are feeling frustrated and defeated. If you are one of them, it might be tempting to give in and just drop your guard completely. After all, lots of people are saying that the symptoms of omicron are usually mild, and it feels like everyone will eventually get COVID-19 anyway, right? Not so fast. There are a few important things to consider. If everyone gets sick at the same time, lots of people will need the hospital at once. That isn’t safe. The more crowded the hospitals are, the […]

Staying Healthy While Staying Home: Nutrition & Activity

Staying Healthy While Staying Home: Nutrition & Activity

There is no doubt that the COVID-19 pandemic has brought about many changes and challenges. Adjusting to new routines and schedules can make it difficult to maintain healthy habits. Remote learning and working from home can impact structure around meals and other activities. While technology has made many things possible in this transition, it has led to increased screen time for many children and families. It’s time to think outside the box and find new and creative ways to unwind and spend time together at home. These strategies are great to keep in mind during colder months at home as well! Nutrition Nutrients such as vitamins, minerals, and protein help to boost your immune system and help your body fight against illness. Minimizing processed foods, high sugar, and fat can also help keep your immune system strong. Higher amounts of sugar and saturated fats (found in high-fat meats and dairy, […]

Questions About Omicron Abound: What’s a Parent to Do?

Questions About Omicron Abound: What’s a Parent to Do?

The media is full of news about omicron, a new coronavirus variant. A variant is a version of the virus that is a little different from the original virus. Variants can look different or behave differently from the original virus. For example, they can differ in how contagious they are, how sick they make people, and how they respond to vaccines and medicines. We are still learning about how the omicron variant differs from the coronavirus that we are already familiar with. While we wait for health experts to study the data about omicron, some parents are wondering whether they should vaccinate their child as soon as possible, or whether they should wait and see how things develop with this new variant. What Do We Know? The answer is that all children ages 5 and older should get fully vaccinated against COVID-19 as soon as possible. Here is why we […]

Page 31 of 56

Page 31 of 56

Page 31 of 56