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neurology

When Lex was just a baby, his pediatrician noticed something was off about the shape of his head, leading to a diagnosis of craniosynostosis, a condition where the skull’s sutures fuse prematurely. Craniosynostosis is when one or more seams between bones in a child’s skull close too soon. When this happens, the skull can’t grow properly and develops a different shape. Despite facing multiple surgeries and challenges, Lex and his family have found unwavering support and care at Nemours Children’s Hospital, Florida. Through it all, Lex has shown incredible resilience.  “His pediatrician noticed that his head shape was not normal and immediately referred us to Nemours,” shares Lex’s mother, Courtney. At Nemours Children’s the medical team conducted a series of tests and scans. In addition to the craniosynostosis, Lex was also found to have elevated cerebrospinal fluid (CSF) pressure, pituitary gland shrinkage, and a host of symptoms, including severe headaches […]

Hudson’s persistent symptoms of pain, feeding difficulties, and faltering growth left his mother, Heather, and her husband, searching for an explanation. Hudson’s condition had taken a toll on the family’s daily life. Heather shares, “Hudson would cry and be unsettled for numerous hours in a day. He would throw up his formula, and we had tried seven different types, hoping one would make a difference.” The constant vomiting made it nearly impossible to leave the house, and Heather had to resign from her 18-year career in Special Education to focus on her son’s care. Every day was a struggle, but Heather’s unwavering dedication and advocacy for her son never wavered. Determined to find answers, Heather and her husband reached out to multiple healthcare providers. It wasn’t until a CT scan at 6 months revealed brain swelling due to severe malnutrition that the true extent of Hudson’s condition became clear. “Prior […]

At 15, Ella Wright had been battling painful headaches for years when she was eventually diagnosed with accommodative infacility. She went through months of eye therapy, and while her eyes began focusing correctly, the headaches still didn’t go away. That’s when her family returned to the doctor this time, they were referred to Nemours Children’s Health in Jacksonville, Florida. Before Nemours, Ella struggled with frequent, debilitating headaches. Her family described her as “relying on over-the-counter medication more than five days a week just to get through the day. After school, she’d go straight to bed, needing a dark, quiet room to cope with the pain.” The constant discomfort affected her mood, her energy, and her ability to enjoy daily life. We live in Georgia and weren’t familiar with Nemours,” her family said. “But everyone there has been wonderful. Dr. Janet Leon, Nemours pediatric neurologist, is outstanding—she’s a great listener, very […]

At 12 years old, Kollin isn’t letting anything slow him down. A lifelong patient at Nemours Children’s Hospital, Delaware, Kollin’s journey to his narcolepsy diagnosis started when he found himself constantly exhausted. “My father has narcolepsy, so when I was tired all the time, my mom requested to have a sleep study done,” Kollin shares. A sleep study, also called a polysomnogram, is an overnight test that helps doctors diagnose sleep disorders, including narcolepsy. During the study, sensors are placed on different parts of the body to monitor breathing, brain activity, heart rate, and movement while a child sleeps. It provides essential information to guide treatment and improve sleep health. “I really don’t like sleep studies because of all the wires and goop in my hair,” shares Kollin. But after his second long sleep study, the results were clear—he had narcolepsy, just like his dad. The diagnosis meant he could […]

Learn how the team at Nemours Children’s Hospital, Delaware, helped Dawson and his family navigate the challenges of a rare spinal tumor.

Discover 12-year-old Kaylee Hill’s inspiring journey through epilepsy treatment and recovery after groundbreaking brain surgery at Nemours Children’s Hospital, Florida.