Throughout her pregnancy, doctors had told Gianlucca’s mother that her baby was missing his fibula. It wasn’t until after her C-section that they discovered it was actually the tibia that was affected—a significant difference that would impact his entire treatment plan. “They were always telling me that he was missing the fibula, not the tibia,” Stephanie recalls. “And then when I got the C-section, we found out that he wasn’t missing the fibula, it was the tibia.” What followed Gianlucca’s birth was an exhausting search for the right medical team. Gianlucca’s mother visited 11 different orthopedic surgeons, all of whom recommended the same thing: bilateral amputation with prosthetics for both legs. “They were all telling me that it was best to amputate both and then Gianlucca can use prosthetics,” she explains. But as a mother, something told her to keep searching for other options. Her persistence led her to Dr. […]