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After 27 Years With Type 1 Diabetes, Here’s What I’ve Learned | Promise, powered by Nemours Children's Health System

After 27 Years With Type 1 Diabetes, Here’s What I’ve Learned

I celebrated my first National Diabetes Awareness Month in 1990. I was twelve years old, had just started seventh grade, and was very aware of Type 1 diabetes – I’d just been diagnosed with it. Aside from the distinctive smells of insulin and alcohol swabs, I don’t remember much about the time I spent in the hospital after my diagnosis, or about those first few months at home. I do, however, remember the sense of bewilderment that accompanied my family home from the hospital, and how uncertain we were about how our lives would proceed with a chronic condition to manage. If I could go back to that November, there’s so much I would tell my younger self about the reality of living with diabetes. Unfortunately, I can’t – so I’m sharing what I’ve learned here. Don’t panic. It’s true that diabetes can (and will) infiltrate every part of your […]

Homeland Security Cadet Camp Gives Kids Chance to be Crime Fighters

Have you ever watched one of the CSI TV shows or Criminal Minds and wondered what it would be like to investigate a federal crime? This summer some of our patients were given that very opportunity. The 2nd annual Homeland Security Cadet Camp took place at Nemours/Alfred I. duPont Hospital for Children earlier this summer. For one week, patients from our hospital, along with their siblings (eleven kids total), had the opportunity to experience the entire process of investigating a crime—from gathering evidence and following leads to tracking down and capturing the “bad guy!” This program is entirely free for kids and is a huge community effort that includes Chester County SWAT, Pennsylvania State Police, Homeland Security, Immigration and Customs Enforcement (ICE), and many more, including Child Life here at the hospital. The week included classroom instruction, field trips, and the final day at a training facility in Chester County, PA. […]

Nemours Solid Organ Transplant Team Saves Lives in Bolivia, Powered by Nemours Children's Health System

Nemours Solid Organ Transplant Team Saves Lives in Bolivia

For many years, Dr. Stephen Dunn, Chair, Department of Surgery and Chief, Division of Solid Organ Transplant at Nemours/Alfred I. duPont Hospital for Children, has volunteered his time and expertise to assist colleagues in Bolivia with life-saving liver transplantation for their pediatric patients. In early May, Dr. Dunn and fellow Nemours team members traveled to Bolivia as volunteers to continue this important work. On this particular trip, interventional radiologist Dr. Deborah Rabinowitz performed a radiologic procedure for a child who had complications after a liver transplant at Clinica Incor in Santa Cruz, Bolivia. It was the first time a pediatric invasive radiology procedure of this type had ever been performed in Bolivia. Dr. Rabinowitz joined the team of physicians for this project specifically to assist this child. In this case, an obstructed bile duct had caused a serious infection that threatened the child’s life. In the past, treatment in Bolivia would have required […]

Hands Up for Haiti: Helping the Country’s Children and Families

Dr. Tamar Goldberg, a second-year pediatric resident at Nemours/Alfred I. duPont Hospital for Children, reflects on volunteering with Hands Up for Haiti. In July 2017, Dr. Goldberg will start her subspecialty training in pediatric neurology and neurodevelopmental disorders at Boston Children’s Hospital. Children in orange and plaid school uniforms with hair neatly parted in matching bows shout “blanc, blanc,” and wave at our rickety van as we pass. Palm trees grow at the roadside along with banana trees and rows of cactus bushes displaying that afternoon’s clean laundry. Locals push wheelbarrows full of coconuts or steer their donkeys carrying lumber. Goats and chickens mill around in vast green fields leading up to lush mountains. In February 2017, I had the opportunity to travel to Haiti with a team of pediatric residents from Nemours/Alfred I. duPont Hospital for Children to provide medical care for children in partnership with the organization Hands Up […]

For Kids with Scoliosis: Nemours Host 4th Annual Mentoring Event, powered by Nemours Children's Health System

For Kids with Scoliosis, Nemours Hosts 4th Annual Mentoring Event

This year marked the fourth time that patients and families gathered to share stories, common concerns, and inspiration at our annual Patient and Parent Mentoring Event, hosted by the Nemours Spine and Scoliosis Center. More than 100 people gathered at Nemours/Alfred I. duPont Hospital for Children on a gorgeous spring day. As in years past, this event was open to families with adolescents who have idiopathic scoliosis, which is the most common form of the disease. More than 3% of the population has scoliosis, a condition that causes the spine to curve from side to side. For some, no treatment is necessary, just periodic monitoring of the curve by a healthcare provider. For others, treatment is required, which can include bracing to halt or slow down the progression of the curve, or surgery to correct the deformity. At the mentoring event this year, Dr. Suken Shah started things off by […]

Community Health Improvement: From the Community to Your Child, Joannie Yeh, MD | Promise, Powered by Nemours Children's Health System

Community Health Improvement: From the Community to Your Child

With all of the news and debates about health care these days, you may have heard the term “community health improvement.” You may hear even more buzz about it during Community Health Improvement Week, June 5-11th. Community health improvement essentially means identifying and addressing communities’ health needs in order to improve the health of the community as a whole — not just the health of individuals. So why does that matter to you or your child? Because “community health” involves so many aspects of our lives. These are the kinds of things to consider when it comes to community health improvement: Socioeconomic factors Is affordable transportation available for families to get to and from appointments? Do they have money for copays and medications? Can they afford to the make lifestyle changes — low-salt diet, more fruits and vegetables — that the doctor recommended? What is the state minimum wage? Health […]

Closing The Gap In Reading Readiness For America’s Preschoolers | Dr. Laura Bailet | Promise, powered by Nemours

Closing the Gap in Reading Readiness for America’s Preschoolers

While many parents are familiar with developmental screenings for hearing or vision, they may not be aware of the importance of screening for issues like reading readiness. Reading readiness screening tools—like the Nemours BrightStart! Preschool Reading Screener for children ages 3-5—can provide a snapshot of a child’s progress in essential pre-reading skills. They can also show how a child’s progress compares to developmental milestones for those skills. Early screening gives parents, health and early childhood professionals the chance to offer additional supports for children who may not be on track for developmental milestones. Providing these supports as early as possible makes it much more likely that children will gain the skills they need to be successful readers. Nemours knows that literacy and health are connected, so we developed ReadingBrightStart.org to help parents build their children’s early literacy skills. It’s loaded with tips, milestones, developmentally appropriate activities, articles and recommended books by age, […]

Research Brings Hope to People Living With Rare Diseases by Heidi Kecskemethy and Terry Pedicone | Promise, Powered by Nemours Children's Health System

Research Brings Hope to People Living With Rare Diseases

Rare diseases are medical conditions that affect a low proportion of the general population. Although the incidence of rare diseases is fairly uncommon, there are over 7,000 types! Here at Nemours, our biomedical researchers are actively engaged in the scientific discovery of causes, treatments, and cures for many rare diseases. And clinicians and health care providers at all of our Nemours sites provide medical management for children with these conditions, most of which are inherited (genetically linked). Rare Disease Day Always the last day of February, Rare Disease Day was established in 2008 by EURODIS (the voice of rare disease patients in Europe) as a worldwide day of recognition. Since then, thousands of events have taken place, reaching hundreds of thousands of people and increasing awareness around the globe. Increased awareness of rare diseases helps to: improve understanding of these conditions offer support to patients and their families inform policy- […]

How Hands-Only CPR is Helping More People Stay Alive | Dr. Gul Dadlani | Promise: Powered by Nemours Children's Health System

How Hands-Only CPR is Helping More People Stay Alive

Imagine you’re walking through the park, on a play date with a good friend and both of your children, when the outing takes an unexpected turn. Your friend stops mid-stride, struggling to catch her breath. She begins sweating, and before you can understand what’s happening, she’s collapsed on the ground. What do you do? Cardiac arrest is an electrical malfunction in the heart that causes an irregular heartbeat (also called arrhythmia) and disrupts the flow of blood to the brain, lungs and other organs. It’s a leading cause of natural death in the United States. Each year, some 350,000 people experience cardiac arrest outside of a hospital setting. Of those, 90% will die. And while the prompt administration of CPR can double—or even triple—a person’s chance of surviving a heart attack, most bystanders feel helpless to act when it’s most important. Either they’re not confident in their abilities to give […]

Teens Don’t Need Performance-Enhancing Substances. Here's Why, Powered by Nemours Children's Health System

Teens Don’t Need Performance-Enhancing Substances. Here’s Why.

The term performance-enhancing substances brings to mind elite athletes, doping trials and drug tests. But substances like creatine, protein supplements and caffeine are commonly used by teenagers who are driven to perform-and look-their best. It’s a trend that has pediatricians concerned, and one that parents should be aware of. What Are Performance-Enhancing Substances? Performance-enhancing substances, also called sports supplements, are products that claim to use natural products to enhance athletic performance. The claims include increasing muscle mass, strength, speed, endurance, fat loss or recovery time. Most are available over the counter. They may include vitamins, minerals, amino acids, herbs, or botanicals (plants)-or any concentration, extract, or combination of these ingredients. Creatine One of the most popular supplements on the market, creatine, is easy to obtain and comes in a variety of forms (like powders, tablets, energy bars). Creatine is a natural substance that we usually get from protein-rich foods in […]

Meet Emmy: An Atrial Septal Defect Success Story | Promise: Powered by Nemours Children's Health System

Meet Emmy: An Atrial Septal Defect Success Story

When Jill’s third child, Emmy, was born with a hole in her heart, Jill wasn’t too worried. Her two older sons also had the condition—called Atrial Septal Defect (ASD)—and theirs had cleared up over time. In children with ASD, blood recirculates inside the heart, and doesn’t reach the rest of the body as well as it should. Dr. Mary Mehta, Pediatric Cardiologist at Nemours Children’s Specialty Care, Pensacola, worked with the family to track Emmy’s condition. It didn’t improve, and it soon became clear that Emmy would need complex and invasive surgery to repair the hole in her heart. When Emmy was just three years old, the right side of her heart began to enlarge, presenting more risks: asthma-like symptoms and other coronary issues.  It was time to prepare for open heart surgery. Emmy’s family met with Dr. Peter Wearden, Cardiothoracic Surgeon at the Nemours Cardiac Center at Nemours Children’s Hospital […]

The Good News About Updated Guidelines for Peanut Allergies | Promise, powered by Nemours Children's Health System

The Good News About Updated Guidelines for Preventing Peanut Allergies

Peanut allergies have long been a concern for parents and families. In the past several years, the instance of peanut allergies and children – along with confusion and fear about how and when to expose young children to peanut ingredients – has been growing. Peanut allergies generally develop in childhood and continue into adulthood, and they’re not to be taken lightly. People who live with peanut allergies, along with their families, must maintain constant vigilance in the face of a peanut-contaminated environment. Allergic reactions can come from traces of peanuts from unexpected sources, and may be severe or life-threatening. And while there’s no cure for peanut allergy, a new set of guidelines from the National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health (NIH), can help parents prevent an allergy to peanuts by introducing the ingredient earlier in life. LEAP (or Learning Early About Peanut […]

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