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Elliott’s journey with Nemours Children’s Health began when he was just 2 years old. On May 30, 2024, his family received the life-changing diagnosis of CLN2 disease. “We found out from genetic testing on May 30, 2024 I believe,” said his dad, Nathan. “I was assuming the school was under-feeding my son. I was upset at everyone until I figured out what was causing seizures.” At first, Elliott received his infusions at a different provider in Gainesville, Florida. Eventually, his care returned to Nemours Children’s when the hospital began offering Brineura®, the only FDA-approved treatment for CLN2. Nemours Children’s is the only pediatric hospital in Central Florida offering this life changing therapy. “People said to come here,” Nathan recalled. “The Nemours Children’s team has always been top notch. Very kind people here. Their teams seem to have much better resources and location for me. I’m forever indebted to the team. […]

At 17, elite soccer player, Anel, faced a daunting diagnosis of a torn acetabular labrum and femoroacetabular impingement (FAI), threatening his athletic dreams. For Anel, the first signs of trouble appeared during a significant growth spurt. “I initially had pain back in 2022 when I had a growth spurt and never thought anything of it,” Anel shares. Though he dismissed it, the pain persisted, and after months of intermittent issues, his athletic trainer at Jacksonville FC recommended he seek further medical attention. It was then that Anel was referred to Nemours Children’s Health, Jacksonville. When Anel started receiving treatment from Sports Medicine Director, Dr. Stephanie Pearce and Caitlin Schlosser, MHA, ATC, OTC, they quickly realized the severity of his condition. “They immediately found out the problem with an MRI scan, and we proceeded with a treatment plan,” Anel explains. The first approach was to try a less invasive method, a […]

The advanced delivery unit (ADU) at Nemours Children’s Hospital, Delaware recently reached a major milestone — welcoming 300 babies into this world! Expectant parents can take comfort in the comprehensive multidisciplinary care model of the Nemours Advanced Delivery Program, which is designed for babies diagnosed with medical conditions before birth that require a post-delivery intensive care unit stay. This planning ensures that newborns’ medical needs are met, allowing access to nationally renowned pediatric specialists and providing families with necessary support and guidance during a critical time. The story of baby Ricky’s family illustrates the program’s benefits, as they chose to plan his arrival at the Nemours Children’s ADU after he was diagnosed with a congenital heart defect (CHD) before birth. When a Family Learns Their Baby Needs Extra Care Most commonly, families learn their unborn baby will need specialized care during a routine prenatal ultrasound. Ultrasounds during pregnancy are often […]

Nemours Children’s Health cancer research shows parents and providers may disagree on how to prioritize support The Emotional Side of Childhood Cancer Care When a child is diagnosed with cancer, parents and care teams share the same goal: making sure the child gets the best care possible. But pediatric cancer care goes beyond treatment. Children and families facing a cancer diagnosis often need psychosocial resources like mental and emotional support. New cancer research from Nemours Children’s Health shows that while both parents and healthcare providers agree that these resources are important, they don’t always agree on which ones should come first. Inside the Research: Exploring Priorities in Family Support In 2015, experts and cancer advocates, including Nemours Children’s researchers, published the first Standards for the Psychosocial Care of Children with Cancer and their Families. These guidelines define best practices for this area of pediatric oncology care and how to best […]

When 8-year-old Owen was bitten by a dog, his lower lip was nearly torn off, turning a peaceful evening into a night of uncertainty. With his parents out for a date night, a family member rushed him to the local emergency room, but it was clear that the extent of Owen’s injuries required specialized care. Shortly after, Owen was swiftly transferred to Nemours Children’s Hospital, Delaware. His mother, Alicia, recalls their first encounter with the Nemours Children’s, “We started in the emergency department at Nemours, and everyone was so great with him,” she says. The immediate care and the compassionate approach of the care team provided the family with a sense of reassurance during a highly stressful time. “We got admitted that night with a plan of having surgery the next day,” says Alicia. It was then that they met Dr. Caterson, Division Chief of Plastic Surgery. “He was phenomenal. […]

The decision to become pregnant is a significant life choice. By working with healthcare experts in advance, you can increase your chances of a successful pregnancy and a positive outcome. If you’re planning to conceive, consider scheduling a preconception consultation with your healthcare provider several months to a year before attempting to get pregnant. This allows time to implement any necessary lifestyle adjustments or prenatal testing they recommend. If you have concerns or anticipate a high-risk pregnancy, talk to your doctor to see if they recommend consulting a maternal-fetal medicine (MFM) specialist for any extra guidance and care. What is Preconception Care? Preconception care is taking proactive steps to optimize your health before getting pregnant, which evidence suggests can significantly impact the possibility of a healthy pregnancy. In fact, as the clinical evidence continues to support this idea, the International Federation of Gynecology and Obstetrics has developed an online preconception […]