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Alex, a strong, brave, and smart patient with a passion for swimming, soccer, surfing, and music, has been on a long and challenging journey to find a solution for his sleep apnea. Living with Down syndrome, Alex’s struggle with sleep has been particularly difficult, often leaving him tired and unable to function well at school. Despite trying various treatments, including a surgery in October, Alex and his family were still searching for a breakthrough. That’s when Dr. Santino Cervantes, pediatric otolaryngologist at Nemours Children’s Hospital, Florida, recommended the Inspire implant—a groundbreaking treatment to help Down syndrome children with refractory severe sleep apnea. Alex, almost 14, became the first patient at the hospital to receive this innovative implant. The Inspire implant is a device designed to assist with sleep apnea. When activated, the implant enhances the user’s breathing during sleep by giving gentle pulses to the airway muscles to keep the […]

Nico’s cardiac journey began before he was born. Going into her pregnancy with Nico, Sierra shared her concern about a family history of heart defects with her midwife. This led to a referral to Nemours Children’s Hospital, Florida. At 17 weeks, Dr. Claudia Taboada, a Maternal Fetal Medicine Specialist, suspected a complex congenital heart defect during an ultrasound. Later, at 22 weeks, a fetal echo confirmed that Nico had the same defect as his father: Dextro-Transposition of the Great Arteries (D-TGA). A congenital heart defect where the aorta and pulmonary artery are switched, resulting in abnormal blood flow and oxygenation. “Once we found out that Nico had D-TGA, we were told that he would have to have open heart surgery and it would have to be done in Orlando, which is about 6 hours away from home,” shares Sierra. “Preparing for the relocation and his birth/surgery was stressful, but we […]

Back to school season is here, and if you’re like many parents, you’re juggling multiple kids across different age groups. Going back to school can be tough, but not always for the reasons adults might think. While you’re busy checking school bus routes and counting tissue boxes, their concerns are a roller-coaster of worries deep and shallow — from academic pressure to fitting in during the back-to-school dress to impress parade. It’s important to make sure each child is ready for the new year by creating a foundation at home for their social, emotional, mental, and physical wellness. Physical Wellness Tips While academics are crucial, physical wellness plays a significant role in a child’s overall health and ability to learn. Most families schedule their children’s annual physical wellness exam prior to the back-to-school start date. This will cover milestone checkups, form completions, and school requirements. Your pediatrician will recommend any […]

Walking around the grocery store can be overwhelming with so many products lining the shelves. To add to the difficulty and confusion are Nutrition Facts food labels. What should we avoid? What should we look for in the products we buy and consume? Is the number of calories the only thing that matters? Are portion sizes misleading? What are the facts behind nutritional facts? Where to Start with Nutrition Labels There are four main components to a Nutrition Facts label: serving information, calories, nutrients, and percent daily value. Serving Size A serving size refers to the amount of food typically eaten at one time. The serving per container represents how many servings are in the respective package. This section of the label is meant to help you determine the right portion size for your family members, and it may require a little math. For example, one serving of this food […]

Rayne, an active pre-teen, was participating in a fun day at school, playing a game of Capture the Flag. During the game, a sudden and unexpected fall resulted in Rayne’s leg hyperextending. The impact was severe, and her left tibia cracked at her knee. Her parents immediately rushed her to their local hospital in Lewes, DE. Upon arrival, the hospital staff performed an X-ray, which revealed the fracture. However, the fracture involved Rayne’s growth plate, a critical area that requires specialized care to ensure proper healing and prevent long-term complications. Recognizing the severity and the need for expert pediatric orthopedic care, the local doctors referred Rayne and her family to Nemours Children’s Hospital, Delaware. Without hesitation, Rayne’s parents packed up and made the two-hour drive to Nemours Children’s. Upon reaching Nemours, the family was greeted by a team of highly skilled and compassionate medical professionals. “We were terribly frightened,” Rayne’s […]

As the sun shines brighter and outdoor adventures continue to beckon, summer’s extreme heat can turn into a health hazard if we’re not careful. While the season offers endless opportunities for fun in the sun, it’s not just the sunburns we need to watch out for — hidden dangers like poison ivy lurking in the underbrush can also put an itchy damper on our plans. By recognizing these risks and taking a few simple precautions, we can make the most of the warm days still ahead. Learn to identify, prevent, and treat summer ailments like sunburn, heat illness, dehydration, and poison ivy to keep your family healthy this summer. Sunburn When kids are outdoors, it’s important to protect their skin from too much exposure to the sun’s ultraviolet rays (UV rays), which can put an immediate stop to summer (and winter) fun with painful sunburn and skin damage, as well […]