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Mercy was diagnosed with a giant omphalocele and pulmonary hypertension, received exceptional care from the medical team at Nemours Children’s Hospital, made her parents feel comfortable and provided attention from every department that cared for them.

Aaron, an 11-year-old boy with Bruck Syndrome, a type of Osteogenesis Imperfecta, underwent a major leg surgery and completed a three-month rehabilitation process.

After Troy was born, he was struggling to breathe. His mother Holli alerted the labor and delivery nurses, and they responded by checking his pulse, noticing that it was abnormal. Holli’s life was turned upside down when she was told that Troy had to be transferred out of state from Cape May, NJ to Nemours Children’s Hospital in Wilmington, Delaware to get the care that he would need. He was born with an interrupted aortic arch, a rare congenital heart defect that happens when the aorta doesn’t form completely. At just 6 days old, and due to his small size, Troy had a procedure to place bands around his pulmonary arteries and a stent the ductus arteriosus, to control the excessive amount of blood going to his lungs and to provide circulation to the lower body, performed by pediatric cardiac surgeon, Dr. Christian Pizarro. Then, at 6 months old, Dr. […]

Kaii was diagnosed with a serious congenital heart defect while still in the womb. With the help of experts at Nemours Children’s Hospital in Delaware, Kaii is healthy and meeting his developmental milestones

For children who are navigating serious medical concerns, staying on top of schoolwork can be challenging. That’s why the Hospital School Program at Nemours Children’s Hospital, FL, is dedicated to promoting educational success for children in our care. Our hospital-based teacher provides individualized instruction and school liaison services to support patients’ educational needs during hospitalization and upon return to school. The Hospital School Program is enhanced by our teacher internship program, called PedsAcademy®, for students enrolled at the University of Central Florida (UCF). PedsAcademy, developed in partnership between Nemours Children’s Health and UCF’s School of Teacher Education, is designed to better prepare future educators for teaching children with chronic and complex medical needs. Teacher interns from UCF provide individualized instruction to patients (PK-12) while receiving specialized training about how to support students affected by chronic health conditions. The PedsAcademy program enables Nemours to serve an increased number of patients, including their siblings, […]

Emily Baez remembers being in the delivery room when she noticed that something was different about her newborn daughter’s ear. “You count toes, you count fingers, but you don’t think for a second to check any other body part… especially an ear,” she says.   Microtia is a rare birth defect in which the external ear is not completely developed. It affects about one in every 5,000-7,000 babies born annually. “When she was born, I didn’t know anything about it, I had never heard of microtia, so I started with social media first,” she says. This is when Emily became involved in The Ear Community online, searching hashtags and connecting with other affected families. “It actually helped make my grieving process a lot better.” After struggling to identify a health care provider that accepted their insurance, Emily found Nemours Children’s and instantly knew she was in the right place to […]