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This post was written by Anthony’s mom, Debbie.  “Something was Different” Anthony was about six months old when I started to notice something was different about his back. He would roll over and try to sit up and there was an obvious bulge/curvature in his spine. I took him to my pediatrician who told me there wasn’t anything to worry about. He informed me that some children take a bit longer to sit up on their own. At this time, I had two-year-old twins at home and was very aware that children progress differently, but there was no overlooking the curve of his spine. Unhappy with that visit, I scheduled an appointment with a specialist at a hospital in Philadelphia, PA. Finally a Diagnosis Anthony was about a year old when he was diagnosed with infantile scoliosis. My family was with me in the room when the doctor put his […]

For most of us, getting medical care right away for a possible brain injury, such as a concussion, is an easy decision. But teen athletes often have a tougher time identifying when they need to stop and get help. Research has shown that as many as 50% of concussions go under-reported in youth sports. The Centers for Disease Control and Prevention (CDC) reports that: 69% of high school athletes said they had played while having concussion symptoms 4 in 10 of these said their coach didn’t know they had a possible concussion These statistics are significant given the amount of children involved in organized youth sports. Why don’t youth athletes report concussions? They didn’t know they had one: While headache is often an easily recognized symptom, dizziness and nausea can be overlooked or linked to something else such as dehydration. Fear of loss of playing time. Not wanting to let […]

In recent years, sports-related concussions in children and teens have helped to raise public awareness of concussions and their long-term effects. As a result, concussions are now being reported and diagnosed more than they were in past years. The Centers for Disease Control and Prevention reported in 2010 that there were 400,000 concussions and brain injuries per year among high school athletes. This increased awareness means that providers are more able to properly diagnose and treat concussions in kids. Why Playing Sports Is Important for Kids When your kids play sports, either on a team or individually, it’s incredibly good for their health and well-being. Sports are a powerful tool that breaks down barriers while also helping kids feel good about themselves, both physically and mentally. Sports also play an important part in a child’s formative years and some schools are more aware of this than others. These schools employ […]

BY: Mayra Alvarez, The Children’s Partnership Debbie Chang, Nemours Children’s Health System Deb Watson, Winter Park Health Foundation Pediatric providers, health centers, schools and school districts, school nurses, parents, child care centers, state government officials, national associations, non-profit advocacy organizations, health plans, and academic institutions filled the room at GuideWell Innovation Center in Orlando on January 26. The purpose? Convened by The Children’s Partnership, Nemours Children’s Health System, and the Winter Park Health Foundation, this diverse group of experts in children’s health traveled to Florida from thirteen different states to brainstorm on ways telehealth in school and child care settings can improve care and access for children, and to lay the groundwork for building a Roadmap for Action. As we prepared for the day, a key topic of conversation was the thriving school and child care telehealth programs in Delaware, Florida, New York, North Carolina, and Texas.  The telehealth programs […]

Contributed by Darcy Galnor, whose daughter is a patient of Nemours Children’s Specialty Care, Jacksonville. The morning our daughter was diagnosed with Crohn’s Disease started like any other. We woke up as just a regular young(ish) couple with two kids, jobs and life’s typical stressors. (I guess maybe not entirely typical, unless taking our 5-year-old daughter for a colonoscopy is considered an everyday event). We’d been chasing the cause of her diarrhea for months, maybe even years. Dairy? Nope. Gluten? Nope. Strawberries (her favorite food)? Nope. As we sat in the waiting room, anxiously watching for the doctor to tell us the results, we attempted to distract ourselves with work. Both of us had tablets rested on our thighs, cell phones on the arms of our chaisr. My husband downing coffee. Me biting my nails. Then, the doctor appeared. “She has inflammation throughout most of her GI tract. We’ll wait […]

I celebrated my first National Diabetes Awareness Month in 1990. I was twelve years old, had just started seventh grade, and was very aware of Type 1 diabetes – I’d just been diagnosed with it. Aside from the distinctive smells of insulin and alcohol swabs, I don’t remember much about the time I spent in the hospital after my diagnosis, or about those first few months at home. I do, however, remember the sense of bewilderment that accompanied my family home from the hospital, and how uncertain we were about how our lives would proceed with a chronic condition to manage. If I could go back to that November, there’s so much I would tell my younger self about the reality of living with diabetes. Unfortunately, I can’t – so I’m sharing what I’ve learned here. Don’t panic. It’s true that diabetes can (and will) infiltrate every part of your […]