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When Blake was just 2 years old, her mom, Kimberly, noticed she was experiencing back pain. “Blake was crying in her car seat and reaching for her back,” Kimberly recalls. Concerned, they decided to seek medical help. An MRI of Blake’s spine revealed a Chiari malformation and two Tarlov cysts, conditions that would significantly impact her life. As Blake continued to grow, simple activities like sitting or standing were sources of pain, making it difficult for her to enjoy the things most children take for granted. At school, she had to use a special chair and cushion to alleviate some of the discomfort. Family life was also affected, as long car trips were out of the question due to the intense pain Blake experienced. Now 13 years old, Blake has been a Nemours Children’s Hospital, Delaware patient nearly all her life, receiving care from the orthopedics, neurology, and neurosurgery departments. […]

Respiratory syncytial (sin-SISH-ul) virus (or “RSV”) is the leading cause of infant hospitalization in the United States. Is RSV contagious? Yes, it’s considered highly contagious because it spreads similarly to the common cold. For example, RSV can spread when someone with the virus coughs or sneezes near you or your baby. It can also spread when you or your baby touch surfaces contaminated with RSV droplets from an infected person’s cough or sneeze, and then touch your eyes, nose, or mouth without washing your hands. According to the Centers for Disease Control and Prevention, anyone can get RSV, but most people are infected for the first time as infants or toddlers. Protecting children from RSV involves exploring new immunization options for moms and babies. What Is RSV? RSV is a common and widespread virus. In most regions of the United States, RSV season starts during fall and peaks in the […]

When Michelle learned she was pregnant, she was referred to Nemours Children’s Hospital, Florida for high-risk prenatal care. From the very beginning, she felt supported by her care team. So, when her daughter, Lucy, was diagnosed with hip dysplasia at 6 weeks old, there was no hesitation about where to turn. Because Lucy was breech throughout the entire pregnancy, her pediatrician took extra precautions after birth to check for hip dysplasia. “Her pediatrician wanted to check if she could possibly have hip dysplasia, and thank god she did because we were able to treat her on time,” shares Michelle. “We were so grateful it was diagnosed so early where we as parents did not notice, and she did not feel affected by it as a newborn.” The family’s relationship with Nemours Children’s came full circle when they decided to bring Lucy in for treatment. “The treatment for myself was so […]

Back to school season is here, and if you’re like many parents, you’re juggling multiple kids across different age groups. Going back to school can be tough, but not always for the reasons adults might think. While you’re busy checking school bus routes and counting tissue boxes, their concerns are a roller-coaster of worries deep and shallow — from academic pressure to fitting in during the back-to-school dress to impress parade. It’s important to make sure each child is ready for the new year by creating a foundation at home for their social, emotional, mental, and physical wellness. Physical Wellness Tips While academics are crucial, physical wellness plays a significant role in a child’s overall health and ability to learn. Most families schedule their children’s annual physical wellness exam prior to the back-to-school start date. This will cover milestone checkups, form completions, and school requirements. Your pediatrician will recommend any […]

Jalen has been a miracle since the beginning. We struggled with infertility and experienced four miscarriages over five years before he came into our lives. Each pregnancy took nearly a year to achieve, and each time, we lost the baby. During my pregnancy with Jalen, I was constantly terrified of miscarrying and prayed every day for his safe arrival. We had a C-Section scheduled for November 1, 2013, because Jalen was in a breech position. The moment I saw him and heard his cry, I felt an immense relief. He was finally here, safe and sound, and I could breathe again. That relief lasted for about a minute before I felt the fear creep back in again. I watched his newborn examination, I remember noticing they didn’t bring him over to me as quickly as I expected. The providers were focusing on his legs, and more and more of them […]

Before she was even born, Charlotte was diagnosed with Congenital Femoral Deficiency and Fibular Hemimelia, a rare condition that would shape her life in ways her family could never have anticipated. Congenital leg length discrepancies are when patients have legs that are different lengths. Femoral deficiency is characterized by a short or missing thighbone and fibular hemimelia by a short or missing fibula. “It was an incredibly emotional and uncertain time for us,” her mother, Melissa, recalls. The news was both a shock and a call to action. As soon as they received the diagnosis, her family was determined to understand the condition and find the best possible care for Charlotte. “We knew this would be a lifelong series of surgeries, rehabilitation, and specialized care,” her father, Brian, recalls. “There was a lot of anxiety and fear about what her future would look like and whether she would be able […]