When 10-month-old Seandelle first arrived at Nemours Children’s Health, his future was uncertain. He had survived severe injuries, and his mother was told he might never walk, talk, or eat on his own. But from the beginning, she saw something different, “He had a drive in him. I just knew I couldn’t walk away.”
Over the next several years, Nemours Children’s specialists across neurology, rehabilitation, ophthalmology, and surgery worked closely together to support him. His mother says, “Every doctor treated him like he was their own. They stopped, listened, and went above and beyond.”
By age 3, Seandelle began experiencing clusters of seizures, sometimes lasting up to 30 minutes. After many tests and hospital stays, his care team recommended a major procedure to disconnect one side of his brain. It was a terrifying decision. “It was the hardest choice of my life,” his mother shared. “I was scared.”
Neurosurgeon Dr. Lily Tran, MD performed the surgery, giving the healthy side of Seandelle’s brain a chance to thrive. His recovery stunned everyone, “They said he’d be in ICU for months. He was home within a week. He opened his eyes and said, ‘Mommy, how are you?’”
Since then, Seandelle has continued to defy expectations. He is walking, talking, reading, and full of energy. “He does everything they said he wouldn’t do,” his mother said. “And we are still seizure-free.” Today, she focuses on supporting him as he grows stronger, “I’m his cheerleader. I just want him to keep moving forward.”
As we honor Epilepsy Awareness Month, Nemours Children’s is proud to share Seandelle’s story as a reminder of resilience, hope, and the extraordinary things children can achieve with the right care.
When 10-month-old Seandelle first arrived at Nemours Children’s Health, his future was uncertain. He had survived severe injuries, and his mother was told he might never walk, talk, or eat on his own. But from the beginning, she saw something different, “He had a drive in him. I just knew I couldn’t walk away.”
Over the next several years, Nemours specialists across neurology, rehabilitation, ophthalmology, and surgery worked closely together to support him. His mother says, “Every doctor treated him like he was their own. They stopped, listened, and went above and beyond.”
By age three, Seandelle began experiencing clusters of seizures, sometimes up to 30 within minutes. After many tests and hospital stays, his care team recommended a major procedure to disconnect one side of his brain. It was a terrifying decision. “It was the hardest choice of my life,” his mother shared. “I was scared.”
Neurosurgeon Dr. Tran performed the surgery, giving the healthy side of Seandelle’s brain a chance to thrive. His recovery stunned everyone, “They said he’d be in ICU for months. He was home within a week. He opened his eyes and said, ‘Mommy, how are you?’”
Since then, Seandelle has continued to defy expectations. He is walking, talking, reading, and full of energy. “He does everything they said he wouldn’t do,” his mother said. “And we are still seizure-free.” Today, she focuses on supporting him as he grows stronger, “I’m his cheerleader. I just want him to keep moving forward.”
As we honor Epilepsy Awareness Month, Nemours Children’s Health is proud to share Seandelle’s story as a reminder of resilience, hope, and the extraordinary things children can achieve with the right care behind them.
