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Megan and Brian were overjoyed when they learned of their pregnancy with Emma. Like many expectant parents, they were filled with excitement and anticipation. However, their journey took an unexpected turn during a routine 24-week OB/GYN visit. Their doctor noticed that Emma’s growth had dropped significantly to the 3rd percentile, a development that immediately raised alarms. “It was recommended we see Maternal-Fetal Medicine specialists on account of the high-risk pregnancy,” share Megan and Brian. “After several more visits and an amniocentesis, we learned that Emma had achondroplasia, about one month before she arrived.” Achondroplasia is the most common skeletal dysplasia leading to disproportionate short stature. “We are both average height parents and do not have any family history of achondroplasia, so we did not know a great deal about the condition until we met our sweet Emma,” share Megan and Brian. In Emma’s case, her achondroplasia was caused by a […]

The advanced delivery unit (ADU) at Nemours Children’s Hospital, Delaware recently reached a major milestone — welcoming 300 babies into this world! Expectant parents can take comfort in the comprehensive multidisciplinary care model of the Nemours Advanced Delivery Program, which is designed for babies diagnosed with medical conditions before birth that require a post-delivery intensive care unit stay. This planning ensures that newborns’ medical needs are met, allowing access to nationally renowned pediatric specialists and providing families with necessary support and guidance during a critical time. The story of baby Ricky’s family illustrates the program’s benefits, as they chose to plan his arrival at the Nemours Children’s ADU after he was diagnosed with a congenital heart defect (CHD) before birth. When a Family Learns Their Baby Needs Extra Care Most commonly, families learn their unborn baby will need specialized care during a routine prenatal ultrasound. Ultrasounds during pregnancy are often […]

Nemours Children’s Health cancer research shows parents and providers may disagree on how to prioritize support The Emotional Side of Childhood Cancer Care When a child is diagnosed with cancer, parents and care teams share the same goal: making sure the child gets the best care possible. But pediatric cancer care goes beyond treatment. Children and families facing a cancer diagnosis often need psychosocial resources like mental and emotional support. New cancer research from Nemours Children’s Health shows that while both parents and healthcare providers agree that these resources are important, they don’t always agree on which ones should come first. Inside the Research: Exploring Priorities in Family Support In 2015, experts and cancer advocates, including Nemours Children’s researchers, published the first Standards for the Psychosocial Care of Children with Cancer and their Families. These guidelines define best practices for this area of pediatric oncology care and how to best […]

The decision to become pregnant is a significant life choice. By working with healthcare experts in advance, you can increase your chances of a successful pregnancy and a positive outcome. If you’re planning to conceive, consider scheduling a preconception consultation with your healthcare provider several months to a year before attempting to get pregnant. This allows time to implement any necessary lifestyle adjustments or prenatal testing they recommend. If you have concerns or anticipate a high-risk pregnancy, talk to your doctor to see if they recommend consulting a maternal-fetal medicine (MFM) specialist for any extra guidance and care. What is Preconception Care? Preconception care is taking proactive steps to optimize your health before getting pregnant, which evidence suggests can significantly impact the possibility of a healthy pregnancy. In fact, as the clinical evidence continues to support this idea, the International Federation of Gynecology and Obstetrics has developed an online preconception […]

Abigail and Vivian’s path to Nemours Children’s was paved by challenges, each step bringing them closer to the answers they needed. Abigail, now 15 years old, was born with a neurogenic bladder, a condition where the bladder does not function properly due to nerve damage or dysfunction. This issue became apparent when the family started potty training her. For Abigail, this meant frequent accidents, infections, and discomfort, which were distressing for her and her family. Though it seemed like a common and simple problem in a young child, her mother, Brittany, recalls, “I just felt like there was something more here. So, everyone agreed, ‘You need to go to the best children’s hospital.’” Despite initial hesitation, she knew she had to seek expert care for her daughter. “For us, driving to Nemours is about an hour and a half each way. At first, I was hesitant because of the distance, […]

Diagnosed with hemihypertrophy and leg length discrepancy at just 9 months old, Jeffrey has undergone a complex medical journey, spanning over a decade. His family chose Nemours Children’s Hospital, Delaware after researching top children’s hospitals near their home in Lehigh Valley, PA. His family was particularly drawn to Dr. Reid Nichols, who would become Jeffrey’s doctor for the next 11 years. Throughout his life, Jeffrey’s treatments have been multifaceted and challenging. Jeffrey underwent several procedures, including an iliotibial fasciotomy/tenotomy, femur shaft osteotomy, and the implantation of a Precice lengthening device, as well as hemiephysiodesis of the distal femur. These interventions were crucial in addressing his leg length discrepancy and associated complications. His mother Amber shares, “We are blessed that Dr. Nichols has been his doctor for 11 years and giving us the best treatment. Her upbeat outlook and confidence in her work gave us the motivation we needed to continue […]