ARTICLES RELATED TO:
Research

Nemours Children’s Health cancer research shows parents and providers may disagree on how to prioritize support The Emotional Side of Childhood Cancer Care When a child is diagnosed with cancer, parents and care teams share the same goal: making sure the child gets the best care possible. But pediatric cancer care goes beyond treatment. Children and families facing a cancer diagnosis often need psychosocial resources like mental and emotional support. New cancer research from Nemours Children’s Health shows that while both parents and healthcare providers agree that these resources are important, they don’t always agree on which ones should come first. Inside the Research: Exploring Priorities in Family Support In 2015, experts and cancer advocates, including Nemours Children’s researchers, published the first Standards for the Psychosocial Care of Children with Cancer and their Families. These guidelines define best practices for this area of pediatric oncology care and how to best […]

Being diagnosed with Type 1 diabetes is often an overwhelming and life changing experience for children and families. Julia Price, PhD, Pediatric Psychologist at Nemours Children’s Health, works to help patients adjust to life with diabetes, using behavioral interventions to help kids and caregivers communicate about managing this complex illness. A major focus of Price’s work is implementation science, which is aimed at making sure that scientific advances ultimately reach the patients and families who most need them. To raise awareness of this work and demonstrate her leadership in this space, on October 11, Price moderated a panel on community participation and partnerships at a workshop held by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the National Institutes of Health. “This workshop offered a unique opportunity to connect with leaders in the fields of implementation science, health equity and community-engaged research, all focused on […]

Rare diseases are medical conditions that affect a low proportion of the general population. Although the incidence of rare diseases is fairly uncommon, there are over 7,000 types! Here at Nemours, our biomedical researchers are actively engaged in the scientific discovery of causes, treatments, and cures for many rare diseases. And clinicians and health care providers at all of our Nemours sites provide medical management for children with these conditions, most of which are inherited (genetically linked). Rare Disease Day Always the last day of February, Rare Disease Day was established in 2008 by EURODIS (the voice of rare disease patients in Europe) as a worldwide day of recognition. Since then, thousands of events have taken place, reaching hundreds of thousands of people and increasing awareness around the globe. Increased awareness of rare diseases helps to: improve understanding of these conditions offer support to patients and their families inform policy- […]