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Patient Stories

Para leer este blog en español, haz clic aquí! It all began when Arianna was just one year old. We noticed that one of her eyes was red and had a strange white spot in her pupil. Worried, we took her to her pediatrician, who immediately sensed that something was not right. We were referred to an ophthalmologist and then to a hospital, where she was diagnosed with a large mass in her eye. This mass was pushing her eye outward, so an emergency surgery was performed that same day to remove it. The surgery was successful, or so we thought. However, a few days later, the pathology results delivered the most devastating news: the mass was malignant. It was cancer. Arianna began chemotherapy treatment, going through six exhausting sessions. After that, she was discharged, but unfortunately, proper follow-up was not done to evaluate her other eye. Three years later, […]

Jason’s story began with a seemingly innocent complaint, ear pain. Concerned for her son, Andrea promptly scheduled an appointment with their Nemours Children’s Health primary care pediatrician, Dr. John Clore. Initially, the diagnosis appeared to be a mild outer ear infection. However, later that day Jason began vomiting consistently. The family returned to Dr. Clore’s office, who advised them to seek emergency care at our hospital. Little did they know that this visit would mark the start of a challenging journey. Jason was tested for various illnesses, including strep, flu, and COVID-19, but all the results came back negative. It wasn’t until they reached the emergency room at Nemours Children’s Hospital, Florida that the real diagnosis was discovered – strep A in Jason’s bloodstream. Jason developed a rare complication from his infection of severely increased intracranial pressure. This led to constant excruciating head pain and double vision. He was at significant […]

During Stephanie’s pregnancy, a routine ultrasound at 12 weeks revealed that Braelynn’s left leg was not developing as expected. Shortly after this discovery, the family was introduced to Dr. Louise Reid Nichols. Dr. Nichols delivered the diagnosis of Fibular Hemimelia (FH), a congenital condition affecting the development of the fibula bone in the leg. Stephanie’s doctors referred the family to Nemours Children’s Hospital, Delaware when she was just 20 weeks pregnant. From the moment they stepped through the doors, Nemours became more than just a hospital; it became a place of hope, compassion, and support. After several appointments with Nemours, Braelynn’s family learned that her left leg needed to be amputated. She would receive a prosthetic and attend physical and occupational therapy sessions. What stands out most about Braelynn’s journey at Nemours is the connection that was developed between Braelynn and her care team. “The Nemours Orthopedic Department has been […]

Jade has always been passionate about dance and yoga. One of her favorite hobbies is practicing yoga with her aunt. When Jade was 11 years old, her aunt noticed that her left rib was bulging out during one of their yoga stretches. This realization, along with Jade’s complaints of back and rib pain, raised concerns for her parents, especially since her mother was diagnosed with severe scoliosis at a young age. Based on her experience, Jade’s mom knew she had to act quickly so she immediately scheduled an appointment with their pediatrician to get a back check. At age 11, Jade was diagnosed with scoliosis and recommended to Nemours Children’s Health, Jacksonville. Jade and her family met with Anna Rambo, MD, an orthopedic surgeon at Nemours Children’s Health, Jacksonville. After their first appointment, they knew they made the right decision in choosing Nemours. They immediately loved everything about Dr. Rambo. […]

Follow Olivia’s inspiring journey through amblyopia treatment, where patching and glasses restored her vision to 20/20. Discover valuable insights into pediatric eye care and research at Nemours Children’s Health.

From the very beginning, Sophia’s life has been intertwined with achondroplasia dwarfism. Diagnosed at birth, she started her medical journey under the care of Dr. William Mackenzie and Colleen Ditro, two dedicated clinicians at Nemours Children’s Hospital, Delaware who have been by her side since day one. Born and raised in Colorado, Sophia was introduced to Nemours Children’s through LPA (Little People of America). Here, she first met Dr. Mackenzie and Colleen and they have followed her since birth, connecting yearly at LPA conventions. As she grew older, Sophia continually defied expectations, becoming a professional athlete and earning medals in two Paralympic games as an elite swimmer. When she retired from professional sports and began exploring new avenues, Sophia took up running. However, she began to encounter some hip issues along the way. This led her to seek medical advice from Colleen who recommended Sophia come to Delaware and see Dr. […]