When Blake was just 2 years old, her mom, Kimberly, noticed she was experiencing back pain. “Blake was crying in her car seat and reaching for her back,” Kimberly recalls. Concerned, they decided to seek medical help. An MRI of Blake’s spine revealed a Chiari malformation and two Tarlov cysts, conditions that would significantly impact her life. As Blake continued to grow, simple activities like sitting or standing were sources of pain, making it difficult for her to enjoy the things most children take for granted. At school, she had to use a special chair and cushion to alleviate some of the discomfort. Family life was also affected, as long car trips were out of the question due to the intense pain Blake experienced. Now 13 years old, Blake has been a Nemours Children’s Hospital, Delaware patient nearly all her life, receiving care from the orthopedics, neurology, and neurosurgery departments. […]

Respiratory syncytial (sin-SISH-ul) virus (or “RSV”) is the leading cause of infant hospitalization in the United States. Is RSV contagious? Yes, it’s considered highly contagious because it spreads similarly to the common cold. For example, RSV can spread when someone with the virus coughs or sneezes near you or your baby. It can also spread when you or your baby touch surfaces contaminated with RSV droplets from an infected person’s cough or sneeze, and then touch your eyes, nose, or mouth without washing your hands. According to the Centers for Disease Control and Prevention, anyone can get RSV, but most people are infected for the first time as infants or toddlers. Protecting children from RSV involves exploring new immunization options for moms and babies. What Is RSV? RSV is a common and widespread virus. In most regions of the United States, RSV season starts during fall and peaks in the […]

What began as an upset stomach evolved into a journey with Crohn’s Disease for Nemours Children’s patient, Alejandra. “It all started with an upset stomach that continued over time, immediately after eating, at the age of 8,” shares Alejandra. The persistent discomfort became a daily challenge that began to affect her quality of life. “Physical activities also had to be reduced, including physical education (PE), as performance declined considerably. Psychological aspects also erupted, with certain levels of anxiety.” From the moment they walked through the doors of Nemours Children’s Hospital, Florida, Alejandra and her family found themselves in capable hands, guided by a team of dedicated specialists. After the family’s recent move from Miami, they were diligent in their search for the best possible care for Alejandra. Their research led them to Dr. Pablo Palomo and the gastroenterology team at Nemours. The journey to a diagnosis was not straightforward. It […]

Alex, a strong, brave, and smart patient with a passion for swimming, soccer, surfing, and music, has been on a long and challenging journey to find a solution for his sleep apnea. Living with Down syndrome, Alex’s struggle with sleep has been particularly difficult, often leaving him tired and unable to function well at school. Despite trying various treatments, including a surgery in October, Alex and his family were still searching for a breakthrough. That’s when Dr. Santino Cervantes, pediatric otolaryngologist at Nemours Children’s Hospital, Florida, recommended the Inspire implant—a groundbreaking treatment to help Down syndrome children with refractory severe sleep apnea. Alex, almost 14, became the first patient at the hospital to receive this innovative implant. The Inspire implant is a device designed to assist with sleep apnea. When activated, the implant enhances the user’s breathing during sleep by giving gentle pulses to the airway muscles to keep the […]

Nico’s cardiac journey began before he was born. Going into her pregnancy with Nico, Sierra shared her concern about a family history of heart defects with her midwife. This led to a referral to Nemours Children’s Hospital, Florida. At 17 weeks, Dr. Claudia Taboada, a Maternal Fetal Medicine Specialist, suspected a complex congenital heart defect during an ultrasound. Later, at 22 weeks, a fetal echo confirmed that Nico had the same defect as his father: Dextro-Transposition of the Great Arteries (D-TGA). A congenital heart defect where the aorta and pulmonary artery are switched, resulting in abnormal blood flow and oxygenation. “Once we found out that Nico had D-TGA, we were told that he would have to have open heart surgery and it would have to be done in Orlando, which is about 6 hours away from home,” shares Sierra. “Preparing for the relocation and his birth/surgery was stressful, but we […]

When Michelle learned she was pregnant, she was referred to Nemours Children’s Hospital, Florida for high-risk prenatal care. From the very beginning, she felt supported by her care team. So, when her daughter, Lucy, was diagnosed with hip dysplasia at 6 weeks old, there was no hesitation about where to turn. Because Lucy was breech throughout the entire pregnancy, her pediatrician took extra precautions after birth to check for hip dysplasia. “Her pediatrician wanted to check if she could possibly have hip dysplasia, and thank god she did because we were able to treat her on time,” shares Michelle. “We were so grateful it was diagnosed so early where we as parents did not notice, and she did not feel affected by it as a newborn.” The family’s relationship with Nemours Children’s came full circle when they decided to bring Lucy in for treatment. “The treatment for myself was so […]