When you hear statistics like “1 in 3,000” or “only 104,000 in the U.S.,” it’s hard to feel like others understand what you’re going through with a rare condition such as arthrogryposis. So, imagine how wonderful it must have felt for the nearly 130 people who gathered for the Arthrogryposis Mini Meet-Up recently held at Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del. A condition of the joints and muscles, arthrogryposis impairs children’s abilities to use their shoulders, wrists, fingers and lower extremities. There are many variations — some mild, some severe. There is no cure for arthrogryposis, but there are treatments that can help to maintain and maximize a child’s range of motion and function. The goal of the Mini Meet-Up was to bring together kids and adults with arthrogryposis so they could share their stories, their experiences and their support with each other. And, perhaps most important, […]
