Jaiden’s medical journey began with a diagnosis of Fibular Hemimelia during a routine anatomy scan at just 20 weeks into his mother, Megan’s, pregnancy. Little did they know, this diagnosis would lead them to Nemours Children’s Hospital, Delaware.
Upon learning about her son’s condition, Megan was very shocked. “It was unexpected, but we knew we had to do everything we could to give Jaiden the best chance at a fulfilling life,” she shares. “Though Jaiden always got around fine, if he didn’t have surgery, his legs would be drastically uneven and would not be able to walk.”
Their journey with Nemours Children’s began in 2012 when Megan sought a second opinion on Jaiden’s condition. “A family friend suggested Nemours, and from the moment we walked through the doors, we knew we were in good hands,” Megan reflects. Dr. L. Reid Nichols, a renowned pediatric orthopedic surgeon, became an integral part of Jaiden’s care team.
Describing their experiences with Nemours, Megan shares, “We love Nemours! The care here is unparalleled. The doctors, nurses, and clinicians not only provide the best care around but also positivity and support. They’re always smiling and keeping us confident in the care Jaiden receives.”
Currently undergoing limb lengthening and correction treatment, Jaiden’s recovery journey hasn’t been easy, but Megan remains optimistic. “Recovery is difficult, but going well. We’re taking it one step at a time,” she says.
Looking ahead, Megan shares their plans for the future: “Right now, we’re focused on lengthening Jaiden’s right leg by a total of 5cm. After that, it’s back to sports and all the activities he loves.”
When asked what advice she would give to other patients and parents facing similar challenges, Megan’s message is one of perseverance. “It may feel like forever, but it’s just temporary. Work hard now and it will pay off, trust the process,” she says.
With the support of his dedicated care team and the unwavering love of his family, Jaiden is thriving. With each milestone reached, he inspires us all to never lose sight of the possibilities that lie ahead.