For the Tsoflias family, the past year has been a roller coaster of emotion, disbelief, heartbreak and ultimately, hope.
It all began when a routine 20-week ultrasound revealed an abnormality. Brittany, an expectant first-time mom, was referred to Nemours Children’s fetal cardiologist, Shubhika Srivastava for a fetal echo and soon learned that her baby had a very rare congenital heart defect called Ebstein’s Anomaly. The defect is linked to an abnormality in the tricuspid valve, causing it to leak and if left unchecked, would result in heart failure. To correct the defect, surgery would be required.
Knowing that her baby would need highly specialized heart care immediately after birth, Brittany delivered Vea through the Advanced Delivery Program at Nemours Children’s Hospital, Delaware. “What an amazing experience. I felt special, says Brittany, because everyone went above and beyond for me.”
Recognized as a surgical expert in this type of complex heart defect, Dr. Christian Pizarro, successfully repaired Vea’s heart when she was just 11 months old.
Now, one year after surgery, Vea is thriving and mobile–-crawling like crazy and stealing hearts with her wide-eyed, glance. It’s possible, Vea may need another surgery at some point and if she does, “we would put our trust in Dr. Pizarro all over again.”