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Para leer este blog en español, haz clic aquí! It all began when Arianna was just one year old. We noticed that one of her eyes was red and had a strange white spot in her pupil. Worried, we took her to her pediatrician, who immediately sensed that something was not right. We were referred to an ophthalmologist and then to a hospital, where she was diagnosed with a large mass in her eye. This mass was pushing her eye outward, so an emergency surgery was performed that same day to remove it. The surgery was successful, or so we thought. However, a few days later, the pathology results delivered the most devastating news: the mass was malignant. It was cancer. Arianna began chemotherapy treatment, going through six exhausting sessions. After that, she was discharged, but unfortunately, proper follow-up was not done to evaluate her other eye. Three years later, […]

Sigue la inspiradora historia de Arianna en su travesía con el retinoblastoma bilateral y desafíos auditivos, mientras mantiene su espíritu inquebrantable.

Jason’s story began with a seemingly innocent complaint, ear pain. Concerned for her son, Andrea promptly scheduled an appointment with their Nemours Children’s Health primary care pediatrician, Dr. John Clore. Initially, the diagnosis appeared to be a mild outer ear infection. However, later that day Jason began vomiting consistently. The family returned to Dr. Clore’s office, who advised them to seek emergency care at our hospital. Little did they know that this visit would mark the start of a challenging journey. Jason was tested for various illnesses, including strep, flu, and COVID-19, but all the results came back negative. It wasn’t until they reached the emergency room at Nemours Children’s Hospital, Florida that the real diagnosis was discovered – strep A in Jason’s bloodstream. Jason developed a rare complication from his infection of severely increased intracranial pressure. This led to constant excruciating head pain and double vision. He was at significant […]

Follow Olivia’s inspiring journey through amblyopia treatment, where patching and glasses restored her vision to 20/20. Discover valuable insights into pediatric eye care and research at Nemours Children’s Health.

As an infant, I had gross motor delays. I did not sit up until I was a year old or walk until I was two years. I was placed in a developmental preschool in my township in Maple Shade, New Jersey. When I was four years old, the physical therapist through that program felt that I needed a hip X-ray, as she thought I might have hip dysplasia. It was recommended that I be taken to Dr. Bowen at Nemours Children’s Hospital in Wilmington, Delaware. Dr. Bowen diagnosed me with Bilateral Congenital Hip Dysplasia. Because my Hip Dysplasia diagnosis was caught so much later in life (normally diagnosed in infancy), I had to have multiple surgeries, when I was around four and eight years old, to reconstruct my hip sockets. I was in a body cast after each set of surgeries. Later, when I was 14 years old, I developed […]

Follow the remarkable story of Mason, a brave 5-year-old born with diastrophic dysplasia, as his family finds hope and specialized care at Nemours.