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At Nemours Children’s Hospital, Delaware, families like Ali’s find comprehensive care for scoliosis. Her family’s story is one of resilience and hope, and their experience provides valuable insights for other kids and parents facing similar challenges. Ali’s Experience with Scoliosis Ali was diagnosed with scoliosis during a visit to her primary care office. Scoliosis is a condition where the vertebrae form a curved line instead of being straight, which can cause health problems. Her growth chart stalled and then reversed, prompting X-rays. After a bad experience at another facility, the family turned to Nemours Children’s Hospital, Delaware for a second opinion where they found a warm and welcoming environment. There, Dr. Suken Shah directly engaged with Ali, understanding her experience and exploring treatment options. Ali tried bracing and underwent an intensive physical therapy plan; however, her spinal curve continued to progress. At her second visit, Dr. Shah recommended she move […]

Born with microtia, a condition where the outer ear is smaller and sometimes misshapen, Zyanali’s right ear was visibly different from birth. “While it is mild, it was visibly obvious that it was not normal,” her mother shares. Microtia is a congenital condition, meaning it is present at birth, and it can vary in severity. In Zyanali’s case, the condition was more about the appearance of her ear rather than a significant hearing impairment. However, the visual difference was noticeable enough to draw attention and curiosity from others. As Zyanali grew, the social impact of her condition became more apparent. “She would often come home from school and tell me that kids were asking about her ear,” says her mother. These questions, while innocent, could be distressing for a young child. “We faced similar inquiries in public, people wanting to know what had happened to her ear or whether she […]

13-year-old Sam has been a patient at Nemours Children’s Health for much of his life. Born with a rare, unbalanced translocation, a chromosomal condition that affects many parts of the body, he lives with global developmental delays and several chronic health concerns. Throughout his life, Sam and his family have worked closely with a wide range of Nemours Children’s specialists. “We have been seeing Nemours specialists since Sam was itty bitty,” shares his mother, Audrey. “Over the years, he has been under the care of orthopedics, audiology, cardiology, pulmonology, surgical services, the gastrointestinal department, nutritionists, and neurology. We have seen quite a lot of the hospital and a lot of the doctors over the years.” Among the many medical challenges Sam faced was scoliosis, a condition in which the vertebrae form a curved line instead of being straight. “Sam was born with a group of congenital birth defects including some […]

16-year-old Angelina started experiencing severe stomach pains and spasms, symptoms that arrived suddenly and without warning. As her discomfort grew, so did her family’s concern. Looking for help, Angelina’s mom, Aimee, turned to the expertise of Dr. Gina Amoroso, a close family friend and a trusted pediatrician at Nemours Children’s Health. Dr. Amoroso referred them to Nemours Children’s Hospital, Delaware where they headed straight for the emergency room. From the moment Angelina and her family stepped into Nemours Children’s, they knew they were in capable hands. Aimee recalls, “They were very concerned and diligent in helping to find the cause for her pain. They empathized and worked hard to find the root of the problem.” After a series of tests and examinations, the team discovered Angelina had OHVIRA syndrome, a rare condition characterized by an abnormal uterus and the absence of a second kidney. This rare congenital condition often doesn’t […]

When 10-month-old Seandelle first arrived at Nemours Children’s Health, his future was uncertain. He had survived severe injuries, but from the beginning, his new mother saw something different, “He had a drive in him. I just knew I couldn’t walk away.” Over the next several years, Nemours Children’s specialists across neurology, rehabilitation, ophthalmology, and surgery worked closely together to support him. His mother says, “Every doctor treated him like he was their own. They stopped, listened, and went above and beyond.” By age 3, Seandelle began experiencing clusters of seizures, sometimes lasting up to 30 minutes. After many tests and hospital stays, his care team recommended a major procedure to disconnect one side of his brain. It was a terrifying decision. “It was the hardest choice of my life,” his mother shared. “I was scared.” Neurologist Dr. Lily Tran, MD, his  Pediatric Epileptologist, recommended that they proceed with epilepsy surgery […]

Sometimes it’s the unexpected turns that lead us to the discovery of strength. For 15-year-old Mercy, a student at The Bolles School in Jacksonville, Florida, her world was turned upside down during a routine volleyball practice. A simple jump over a track hurdle during conditioning ended in a devastating ACL and meniscus tear, stripping away her identity as an athlete and leaving her with more questions than answers. With a family history of positive experiences at Nemours Children’s Health, Jacksonville, Mercy’s mom knew exactly where to turn. Her older brothers had received exceptional care at the hospital, and she had no doubt that Mercy would receive the same level of expertise and compassion. The hospital’s reputation for excellence in pediatric care, combined with its role as the Official Sports Medicine Providers for The Bolles School, made it the ideal choice for Mercy’s care. Upon arriving at Nemours Children’s, Mercy and […]