This past year and a half has been tough on all of us, especially our children and youth. For so many, the COVID-19 pandemic has changed life as we know it. But for Nemours patients Kate and Sebastian, the pandemic is just one of many life-changing events they’ve faced. And that’s why they are both sharing their medical journeys to members of Congress during the 2021 Children’s Hospital Association (CHA) “Speak Now for Kids’ Family Advocacy Week,” to increase awareness about the ongoing and essential care provided by children’s hospitals. Kate’s Story When she was just 2 years old, Kate McKinery was diagnosed with optic pathway glioma, a brain tumor that interferes with her optic nerve and impacts her sight. The tumor also causes hormone deficiencies, resulting in abnormal liver function, type 2 diabetes and a full height potential of around 4’2. Kate has undergone multiple procedures, tests and appointments […]

This blog post is written by Larry, the father of Maddie, a medulloblastoma patient who survived a brain tumor at the age of 2. Larry inspires us by sharing his daughter’s story. “Heroism is endurance for one moment more.”      George F. Kennan In the fall of 2008, at the age of two, our daughter Maddie was diagnosed with medulloblastoma, a brain tumor that arises at the base of the brain and often spreads down through the spine via the spinal fluid. Over the course of the next ten months, Maddie underwent multiple brain and spine surgeries and intense chemotherapy protocols at Nemours/Alfred I. duPont Hospital for Children. After six cycles of chemo treatment, she had made amazing progress, knocking out 90% of her original disease. Because her scans were not completely cancer-free, she then went through an additional six weeks of radiation therapy. Conquering Cancer The effects of radiation on a 3-year-old can […]

This blog post is written by Amy, the mother of Dan, a mucopolysaccharidosis (MPS) patient who passed away in 2016 at the age of 19. Amy is a Nemours nurse and her son’s story inspires us and others every day. When Dan was born in September 1996, we were told he was a healthy baby. He joined his sister, Haley, who was 2 years old and we thought our lives were perfect. We had this sweet little family with a precious little girl and strapping baby boy. We had just moved to a new house, both had good jobs, life was good. As Dan developed, he hit all his milestones except for one; he wasn’t talking by the age of 2. He had about 20 ear infections in his first 2 years of life and the pediatrician thought his lack of language was due to him not hearing well. We went to an ENT at […]

Summer and fun: two words that go hand-in-hand, especially when you’re talking about kids.  However, summer break looks very different for many children. For millions of children from low-income households across the U.S., summer months mean no access to school meals, which may sometimes be the only nutritious food available. And even more children will have less food on their table this year because of the COVID-19 pandemic. For summer 2021 and 2022, the USDA has launched a new summer food program that will help all low-income children of all ages have nutritious meals and snacks. School Meals Help Keep Kids Healthy During the school year, many schools provide students with access to meals through federal school meal programs like the National School Lunch Program and the School Breakfast Program. These programs are run by the U.S. Department of Agriculture and state agencies, who reimburse schools that provide healthy meals […]

Besides stealing our hearts by being cute — and in many cases, fluffy — our four-legged friends who are trained as therapy animals have numerous health benefits to offer. Animal assisted therapy is proven to help with both mental and physical conditions. Even healthy people can benefit from animal therapy. Many hospitals offer various animal therapy programs to assist patients in healing. In fact, this is a practice that dates back to the ancient Greeks, who were said to use horses to cheer up patients.   Benefits of Animal Therapy  Animal therapy has physical benefits that include:  Lowering blood pressure  Releasing oxytocin, which has a calming effect   Lessening any physical pain patients have   On top of the physical benefits, animal therapy also has mental health benefits such as:  Decreasing feelings of loneliness and isolation  Lowering stress  Providing a sense of comfort  Nemours Children’s Health System offers animal therapy programs at their hospitals in Delaware and Florida as a part of their commitment to caring for the whole child. One program offered in Florida […]

Your family may have canceled or shuffled summer plans during the height of the pandemic in 2020, hoping for a more exciting summer this year. So, as vaccination efforts ramp up and more of the U.S. population becomes fully vaccinated, you might be wondering what this summer has in store for your children. Will the family be able to travel? Will unvaccinated children be able to visit their grandparents? What about summer camp? It’s not entirely clear what direction the pandemic will take over the next few months. Experts are recommending we keep our guard up until more is known about how the vaccine efforts stand up against the coronavirus and its new variants. But kids can plan for a great summer, as long as families keep these points in mind: Weigh benefits versus risks.  As a family, try to assess your plans objectively. Flying with unvaccinated kids to a crowded […]