Nemours Blog - Page 2 of 33 - Powered by Nemours Children's Health System
teenage girl having psychotherapy session at psychologist's office

Finding Hope: Leah’s Journey with Dialectical Behavior Therapy

When Leah was 16, she couldn’t think of a single reason to live. Leah was diagnosed with type 1 diabetes the previous summer, and since then, she and her parents had been constantly fighting about what she ate, her diabetes care, and how she spent her time. Leah started cutting herself to cope with the stress of her diagnosis and her relationship with her parents. Things only seemed to get worse. She felt like she couldn’t really trust the few friends that she had, and she seemed to always be fighting with her peers and teachers. When her girlfriend broke up with her, she decided she was “done.” Leah was hospitalized after an overdose, but during her inpatient stay, she was introduced to a psychologist from Nemours Children’s Hospital, Delaware. This psychologist suggested that Leah might benefit from participating in Dialectical Behavior Therapy, one of the few interventions proven helpful […]

Reagan’s Epilepsy and CP Journey

Reagan’s journey with epilepsy and cerebral palsy has been strengthened by the care she received from Nemours Children’s and her advocacy efforts.

Savannah’s Cochlear Implant Journey

Born in November 2013, Savannah passed her initial hearing screening at birth, leaving her parents unaware of any hearing issues. It wasn’t until a playful moment during a game of telephone at age 6 that they discovered Savannah’s hearing impairment. Her father, Gabe, recalls the moment: “I whispered something into her left ear, and she said, ‘Oh no, Daddy, you have to whisper in my other ear. That ear doesn’t work.’” This revelation was the start of Savannah’s hearing journey. This casual game confirmed their initial suspicions. Gabe shares, “When she told us she couldn’t hear out of that ear, it made sense. She was always a loud talker, and her speech curled towards the ear that worked.” The family sought help from hearing specialists, but the initial results were disheartening. “We tried a hearing aid, but it only boosted her hearing from 4% to 12%. It just wasn’t enough,” […]

Happily, Boldly, Confidently: Kagan’s Story

At the age of 17, Kagan’s life took an unexpected turn when the symptoms of Ulcerative Colitis manifested, leading her to the care of Nemours Children’s Health. Kagan’s diagnosis unfolded in early October 2021, just two months into her senior year of high school. Suffering from months of severe abdominal pain, bloody stools, rapid weight loss, vomiting, and more, Kagan’s health was severely affected. She was scheduled for a colonoscopy to address her symptoms, but upon having labs done in the preparation room, it was discovered that she was too iron deficient anemic to have the procedure. Kagan was then hospitalized at Wolfson Children’s Hospital. There, her care team from Nemours Children’s Health, Jacksonville diagnosed her with Ulcerative Pancolitis and she was scheduled to receive blood transfusions, later have a colonoscopy, and develop a treatment plan once. Overall, this resulted in a 9-day hospital stay. Before making that long trip […]

Jacksonville DiaBesties Camp: Evie’s Journey

Thanks entirely to the generous support of our donors, Nemours Children’s Health, Jacksonville, in collaboration with Wolfson Children’s Hospital, hosts the Jacksonville DiaBesties Camp. This free five-day camp — the only one of its kind in our community — provides kids with diabetes from Northeast Florida and Southeast Georgia the opportunity to enjoy a traditional camp experience in a medically-safe environment. Our team of physicians, nurses, diabetes educators, social worker, psychologists, and volunteers donate their time to ensure this camp is accessible to all families, regardless of their resources. The benefits of camp are extensive and transformative. Children can spend time with others who understand their journey, fostering long-lasting relationships. They receive psychosocial support, increase their ability to manage their diabetes care independently, and more. Jacksonville DiaBesties Camp is not just a camp — it’s a community that allows children with diabetes to understand their disease better and learn how […]

Angels in Scrubs: Kimberly’s Story

When Kimberly’s son was 4 years old, he ran to answer the phone—his favorite uncle was calling. As he ran into the carpeted family room, he tripped and fell, head-first into the brick fireplace. Kimberly says, “As we know, head lacerations bleed profusely. However, being my first child, having his first major injury, and being pregnant with my second child, I was an absolute mess. My training First Aid Training from being in the fire service went right out the window, as it was now my child injured.” Within all her panic, Kimberly immediately knew the best care for her child and knew exactly where to take him. “Born and raised in Philadelphia and moving to Delaware in my teens, I always heard about Nemours Children’s Hospital, Delaware. ‘Take your child to Nemours Children’s’ ‘Nemours is the best,’ but I never had to go there myself, so I had no […]

A Beautiful Future Ahead: Joshua’s Story

Joshua’s story begins with his 20-week anatomy scan, which revealed signs of a lower urinary tract obstruction. Born with underdeveloped and cystic kidneys, he was diagnosed with chronic kidney disease. Holly, Joshua’s mother, recalls, “We were told before his birth that if he survived, he would need dialysis to bridge him to a kidney transplant.” “Joshua’s condition has been difficult since birth,” shares Holly. “He had frequent labs, appointments, hospitalizations, and dialysis. His treatments have always been a bridge to transplant. He was medically fragile which impacted the entire family. We have spent much of his life isolating and with limited activity. Despite all this, we know that God is good and we have relied on our faith to help us through the difficult years.” A pivotal moment in Joshua’s journey came when Nemours Children’s Health entered their lives. Recommended by their local medical team, Joshua’s family transitioned to care […]

Cleft and Craniofacial Awareness Month: Brody’s Story

Brody’s journey began before he was born. During a routine anatomy scan, Beth and her husband learned that one of their twins, Brody, would be born with a cleft lip and possibly a cleft palate. “I was pregnant with twins through IVF and was sent to Nemours Fetal Care,” shares Beth. “After finding out about Brody’s diagnosis, we did a lot of research and compared to teams in Tampa. After a facetime with Dr. Kellogg to ask him questions, we knew we found Brody’s doctor and team.” Upon Brody’s birth, he encountered difficulties due to his cleft lip and palate. “Prior to surgical intervention, Brody struggled with feedings; milk would come out his nose, he drooled a lot, and I don’t think he was able to hear well,” Beth shared. These challenges emphasized the need for specialized care, which they found at Nemours Children’s Hospital, Florida. Despite living over two […]

18 Years Cancer-Free: Andrew’s Story

When Andrew, now 28, reflects on his journey with Nemours Children’s Health, he describes it as nothing short of miraculous. Diagnosed with hepatoblastoma that had metastasized to his lungs and brain as a child, Andrew’s journey to recovery has been thanks to his expert medical care and unwavering support system. In November 1999, 3-year-old Andrew woke up in the middle of the night complaining of shoulder and abdomen pain. His parents, concerned, took him to the pediatrician in Augusta, Georgia, where appendicitis was initially suspected, and surgery scheduled. However, a perceptive surgeon, recalling a rare medical condition from his studies, insisted on further tests. The results were alarming: Andrew’s cancer markers were sky-high, pointing to a serious diagnosis. The local medical team quickly realized they needed specialized help, so he was transferred to a children’s hospital. The surgeons there reached out to Dr. Adela Casas-Melley, who was working at Nemours […]

Pursuing a Passion for Child Life ­­– Associate Spotlight: Kathryn Sparger

Kathryn Sparger’s journey to becoming a Certified Child Life Specialist was inspired by her sister, who witnessed the incredible impact child life specialists have on patients and their families during her time in nursing school. This insight sparked Kathryn’s interest and set her on a path that she quickly fell in love with. “Child life is such a special career path,” Kathryn shares. “I’m so grateful to our kids and families who have invited me into their lives to care for them.” Kathryn always knew that Nemours Children’s Health was the place she wanted to be a part of. The supportive and mission-driven environment at our hospital in Orlando has allowed her to thrive and provide the best care possible for her patients. Working with the Hematology and Oncology team has been one of the highlights of Kathryn’s career. “I absolutely love my hem/onc team. They are true heroes. They […]

A Journey With Craniosynostosis: Georgia’s Story

At 11 months old, Georgia has already shown incredible resilience and strength throughout her life. Diagnosed with isolated nonsyndromic unilateral craniosynostosis at 8 weeks of age, Georgia’s journey has been a whirlwind of medical appointments, treatments, and hopeful recovery. Karin and Edwin knew early on that something was different about their daughter, Georgia’s, head shape. They voiced their concerns during her 1-month and 2-month check-ups. At her 2-month appointment, the nurse practitioner conducted a thorough examination. It was then that they noticed an absence of the soft spot on the top of Georgia’s head. This was a critical moment for her family. Craniosynostosis is a condition where one or more seams between the bones in a child’s skull close too soon. This premature closure prevents the skull from growing properly and results in an abnormal head shape. If left untreated, craniosynostosis can increase intracranial pressure, leading to developmental problems, headaches, […]

Page 2 of 33

Page 2 of 33

Page 2 of 33