Nemours Blog - Page 5 of 25 - Powered by Nemours Children's Health System

Rare Disease Day: Reynolds’s Story (In Dad’s Words)

On December 8, 2017, my wife Ashley delivered our twins, Reynolds, and Campbell. She gets all the credit. I didn’t do any of the heavy lifting. We always knew that Baby A was larger than Baby B, but we didn’t know why. And we had no idea that there were going to be complications at birth. The boys were born at 36 weeks via C-sections, immediately whisked away and taken to the NICU. Reynolds was eventually transferred to another NICU, while Campbell just needed a little more time to grow. So, Reynolds and I left Ashley and Campbell to go to a children’s hospital in Little Rock, Arkansas, where we ultimately spent 103 days in that NICU. He had airway issues. He had cardiac issues. He had GI issues. And throughout that entire time in the NICU, doctors knew that there was some underlying reason causing these issues, but no […]

Journey’s Microtia Story – Mother’s Words

Emily Baez remembers being in the delivery room when she noticed that something was different about her newborn daughter’s ear. “You count toes, you count fingers, but you don’t think for a second to check any other body part… especially an ear,” she says.   Microtia is a rare birth defect in which the external ear is not completely developed. It affects about one in every 5,000-7,000 babies born annually. “When she was born, I didn’t know anything about it, I had never heard of microtia, so I started with social media first,” she says. This is when Emily became involved in The Ear Community online, searching hashtags and connecting with other affected families. “It actually helped make my grieving process a lot better.” After struggling to identify a health care provider that accepted their insurance, Emily found Nemours Children’s and instantly knew she was in the right place to […]

Cochlear Implant Awareness: A’miyah’s Story

A’miyah was referred to the Cochlear Implant Program at Nemours Children’s Hospital, Florida, where she was evaluated, and was determined to be a candidate for cochlear implantation.

Nutrition in Sickle Cell Disease

Keeping your child healthy and strong. Children with sickle cell disease (SCD) have lower levels of certain vitamins, minerals, proteins and other nutrients. That’s because their bodies turn over red blood cells so fast that nutrients are broken down faster than normal. When the body doesn’t get the nutrients it needs, it leads to malnourishment, anemia (low iron), frequent infections, poor growth and development, and other complications. At the Nemours Children’s Center for Cancer and Blood Disorders, our team incorporates nutrition into the overall treatment plan for kids with SCD. We know that good nutrition helps to support growth, restore energy, improve immunity and strengthen muscles and bones. Good nutrition can also reduce pain crisis and the side effects of certain treatments. This can help decrease the number of hospital visits and improve overall health as your child grows. Essential Vitamins and Minerals for SCD A child with SCD takes […]

Hope of a Warrior – Sebastian’s Story

To read this in Spanish, click here! One day in May of 2022, Sebastian came home sad after school, causing me to worry about his unusual behavior as he is a very happy child. I asked Sebastian if something was wrong and if he was being bullied at school. He assured me he was just unusually exhausted. The following day, Sebastian was in the same down mood, but had a fever this time. I took Sebastian quickly to our local doctor, where he was diagnosed with a stomach bug and prescribed antibiotics. He eventually felt better, but not much time passed before the same symptoms returned. We went to another doctor who gave him the same diagnosis and prescribed more antibiotics. I wondered how it could be a stomach bug if he had no GI symptoms, but I followed the doctor’s advice. Rapid breathing was later added to Sebastian’s symptoms, […]

Esperanza de un Guerrero – La Historia de Sebastian

En mayo de 2022, Sebastián llego triste de la escuela. Estaba yo preocupada por él. Pensé que tal vez alguien era un bully, pero me aseguró que estaba inusualmente cansado. Al día siguiente era lo mismo, y tenía fiebre, así que lo llevé al médico que le diagnosticó una infección de estómago y le recetó antibióticos. Mejoró, pero no pasó mucho tiempo antes de que regresaran los mismos síntomas. Fuimos a otro médico que dijo que era lo mismo y nos recetó aún más antibióticos. Me pregunté cómo podría ser una infección del estómago si no tenía síntomas gastrointestinales, pero seguí lo que dijo el médico. Pero luego se agregó la respiración rápida a sus síntomas y supe que algo más estaba pasando, así que esta vez lo llevé al hospital. La respiración era tan rápida que me asustó. Pensaron que era bronquiolitis y prescribieron un tratamiento con nebulizador. Cuando […]

World Childhood Cancer Awareness Day: Ethan’s Story

Nine months ago, Annie and Ben Grayshan got the news no parents ever want to hear, “Your child has cancer.” Their son Ethan was 7 years old when recurring vomiting led to a visit with his pediatrician in April 2022. His doctor suspected a stomach bug. The vomiting persisted and Ethan was sent for allergy testing and then to a GI specialist. After starting antibiotics for a potential parasite, Ethan began to experience fatigue and headaches, common side effects of the antibiotics. But after a few days with no improvement, his parents took him to an ER where a CT scan showed a mass on Ethan’s brain. The Grayshans were then airlifted to the ER at Wolfson Children’s Hospital in Jacksonville. Within 48 hours he had undergone two brain surgeries. One to relieve the hydrocephalus, which had been causing his symptoms, and another to remove the tumor. A diagnosis of […]

Serving Up Inspiration: Capucine’s Story

Win or lose, 15-year-old Capucine Jauffret never gives up. Her mom and dad, Jennifer and Christophe, attribute Capucine’s instinctive determination to a time when she had to fight for her life—a time Capucine won’t remember, and her parents won’t ever forget. When Capucine was born, doctors heard loud murmurs in her heart and diagnosed her with a congenital heart defect called Tetralogy of Fallot, which causes oxygen-poor blood to flow out of the heart and into the rest of the body. At just 17-days-old, Capucine had life-saving open heart surgery to repair her heart. “We are incredibly blessed the doctors were able to perform the operation before Capucine had any significant problems,” said Jennifer. “Fortunately, technology changed, and we didn’t have to wait until she was older and her heart was bigger like other children with this condition have in the past.” “I was thrilled and delighted to hear about […]

Gluten: Ending Common Misconceptions

The gluten free diet has become a popular diet trend over recent years. The most common conditions that require a gluten free diet include celiac disease, wheat allergy, non-celiac gluten sensitivity, gluten ataxia, and dermatitis herpetiformis. Some individuals may choose to adhere to a gluten free diet for other reasons. Gluten is the protein found in the grains wheat, rye, and barley. A gluten free diet requires avoidance of these grains. When foods are removed from the diet, it can make it more difficult to maintain a healthy and balanced diet, so if gluten is removed from the diet it is important to do so with the guidance of  a Registered Dietitian. The purpose of this article is to clear up some common misconceptions surrounding gluten and the gluten free diet. Do I need to avoid all gluten if I have a wheat allergy? -No. Only the grain, wheat, needs […]

Learn to Love Your Vegetables

Help your child explore new flavors and learn to love their vegetables with these few simple tips! Increase Exposure• Increase exposure to different vegetables at meals and snacks multiple times a day• It can take 10-15 times trying a food before learning if you like it, so don’t get discouraged and stay persistent• Start with very small portions of new vegetables at first• Be a role model for your kids and eat your vegetables at meals and talk about how good they taste Get your kids involved• Ask your kids what vegetables they want to try or give them a choice between two vegetables• Have your kids pick the sauces, spices, or herbs for the dish• Have your kids describe the flavors and textures of the vegetables they try Experiment with cooking techniques• Try roasting vegetables to bring out their natural sweetness and make them crisp• Sauté or stir-fry vegetables […]

It’s a Small World – Baby Lorenzo’s Story

At mom’s 20-week ultrasound, doctors discovered that baby Lorenzo had a cleft lip, creating anxiety for his expecting parents. “We didn’t know what to expect from the diagnosis, were scared of the unknown, and afraid our son would struggle with feeding,” said Lorenzo’s mom, Eneily. The Center for Fetal Care and the Division of Plastic and Craniofacial Surgery at Nemours Children’s Hospital, Florida worked together to comfort and reassure Lorenzo’s family. “Our experience with Nemours has been a true blessing to us. They took us by our hands and guided us,” said Eneily. “The care we received since we met Dr. Taboada, our Maternal Fetal Medicine specialist, has been excellent, and we were treated with love, patience, and respect. During each visit, Dr. Taboada would reassure us, saying, ‘Your son is perfect, and you will love his smile.’ She was right. I loved his first smile so much, and I love his […]

Page 5 of 25

Page 5 of 25

Page 5 of 25