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10 Years Later — Max’s Story

Max Paul turned 18 in July this year. But several months after he was born at Arnold Palmer Hospital for Children in 2004, he vomited blood and went to the emergency room there. Max was admitted, but they didn’t have a bed for him, so he and his mom spent the night in the ER at Arnold Palmer, sleeping on a stretcher. Mom Lori remembers a geneticist from Nemours was added to Max’s care team, and Max was diagnosed with cystic fibrosis. He joined the CF clinic at Nemours.  Around that time, mom remembered Nemours was applying to build the hospital in Orlando, and so when the question would arise, “Does Central Florida need another children’s hospital?,” the answer in her mind was a resounding, “Yes!”   “We were at the right place, at the right time to become part of Nemours,” said Lori.  When it came time for the groundbreaking ceremony […]

Worth the Wait — Edwin’s Story

Edwin was born with Pierre Robin sequence, a rare and serious condition where a baby’s jaw is so small that the tongue blocks the airway.  Because of the complexity of his case, Edwin was monitored closely in the NICU until our craniofacial airway team, including a plastic surgeon and otolaryngologist, were able to open his airway by bringing his jaw forward. “My initial goal, after making sure Edwin was safe, was to reassure his parents that everything was going to be okay. We had many discussions about the options and decided that mandibular distraction—bringing the jaw forward slowly over time—was the right option for Edwin and his family,” explains Dr. Brian Kellogg, division chief of plastic surgery, Nemours Children’s Hospital, Florida. “Using a customized computer model, I was able to carefully plan Edwin’s surgery and the movements of his jaw bone.”  Because Edwin had been in the NICU since the day he was […]

The Primmer Family Story

Karalyn first came to Nemours after she was suffering from some abdominal pain, which led to a visit at an ER in their hometown of Titusville. Something didn’t satisfy her parents about that visit, and they were concerned that something else was wrong.   They immediately sought help at Nemours Children’s Hospital, Florida. There, an ultrasound found a tumor associated with a genetic disease called Von Hippel-Lindau (VHL) that was in her adrenal gland. In 2020, the 8-year-old she had an 8-hour surgery and stayed for a few days afterward for observation.   It turned out Karalyn was the first one in her family to be diagnosed with VHL. Later, younger brother Westin had a similar issue when he was 6, and also required surgery with the same surgeon at Nemours. Then, dad got a diagnosis, but had to have an adult surgeon at a hospital for adults, lamented mom. […]

Tips for Getting the Most Out of School Breakfast & Lunch

As back to school mode goes into full swing, purchasing school meals is a great way to help you save time and money. It’s also a great way for kids to get the nutrients they need. According to the National School Breakfast and Lunch Program website, about 60 percent of schoolchildren in the U.S. receive school-provided meals each day through these programs. (1) With the majority of kids buying school meals, let’s talk more about what goes into them followed by specific tips and tricks you can use to promote healthy eating at school. About School Meals School meals have to meet specific nutritional guidelines. Both breakfast and lunch are required to have fruits and/or vegetables and one cup of fat-free or 1% milk. Half of grains provided must be whole grains, and there are limits on certain nutrients, such as sodium (salt). Lunches must include a protein source (called […]

Jay on his wakeboard

In the Wake of Injury, A National Champion Triumphs — Jay’s Story

Jay loves wakeboarding—in fact, he’s a wakeboarding national champion! But when he fractured his right femur in June 2020 during a wakeboarding accident, he was brought emergently to Nemours Children’s Hospital, Florida to see Dr. Zachary Stinson, who specializes in pediatric orthopedic trauma and sports medicine surgery. Jay had his femur surgically repaired with a metal rod, and he began the gradual journey to walking, running, and wakeboarding again.  Following his surgery, Jay was determined every single day in therapy, and he was cleared to start running just months following surgery, and eventually to full wakeboarding activities by six months!  Jay had the metal rod removed 18 months following his initial surgery, and he was completely cleared by Dr. Stinson a few weeks later.   Jay’s mom Ashley credits Nemours doctors, physical therapists, and nurses for being comforting not only to their patients, but also patient families. “The nurses and doctors explained treatments to Jay and me,” she said. “They would also […]

Your Child’s Flu Vaccine: Now Is the Time

Your family’s fall calendar may be packed with sports activities, pumpkin picking, and school events, but don’t forget to make time for one very important appointment: your child’s flu vaccine. Experts say now is the best time to get the flu vaccine. Getting it at the start of flu season — which runs from October to May — gives the body a chance to make antibodies that protect from the flu. For the last couple of years, flu rates have been lower than usual, in part due to the precautions taken to prevent COVID-19. But now kids are returning to school with fewer precautions and resuming pre-pandemic activities. The flu will start to spread again, which is why families should get their flu shots as soon as possible. Why Is the Flu Vaccine Recommended? While the flu vaccine isn’t 100% effective, it still greatly lowers a person’s chances of catching […]

World Heart Day- Greyson’s Story

Caring for critically ill infants with congenital heart defects using an app Greyson was born at 39 weeks on August 3, 2020, and just 24 hours later arrived home to meet his two, very excited older siblings.  A week later, Greyson wouldn’t eat. His parents, sensing something was wrong, brought him to Nemours Children’s Hospital, Delaware where he was admitted to the intensive care unit and put on oxygen.  At first, doctors thought it was a viral infection, but an echo of Greyson’s heart revealed that he was in heart failure.  The diagnosis was hypoplastic left heart syndrome (HLHS), a severe congenital heart defect, requiring a series of three highly complex surgeries to correct it.  With Greyson just 10 days old, Dr. Christian Pizarro performed the first surgery. All went well.  Greyson spent the next 7 weeks recovering in the hospital and as discharge planning began, acute care pediatric cardiologist, Dr. Erica Del Grippo cautioned his parents that the […]

Keto Diet: Ending Common Misconceptions

The Ketogenic “keto” Diet has become popular over the last few years, growing in its popularity as a weight loss diet. The keto diet works by switching the body’s primary energy source from carbohydrates to fat. When enough fat is used for energy in the body, our bodies enter what is known as “ketosis.” There are many misconceptions about the ketogenic diet that we hope to debunk! Myth 1: The Keto Diet is for Weight Loss The keto diet has been used for weight loss in recent years. The common understanding of why this works is through increased satiety from eating a higher fat diet (and less simple carbohydrates) and the breakdown of stored fats in the body from lower calorie intake. While weight loss is possible when following a keto diet, it should be monitored by a knowledgeable registered dietitian and physician to make sure you stay healthy while […]

When Your Child Wants to Quit Sports

As kids head back to school and daily routines, many are also returning to sports. But what happens if your child doesn’t want to try out for the team this year? They’re not alone. According to research from The Aspen Institute, almost 1 in 4 parents say their kids are less interested in organized sports since the COVID-19 pandemic began. The benefits of organized sports are well known. They keep kids active and teach important life skills like teamwork and how to manage conflict. Kids who play on a team can gain self-esteem and confidence from learning new skills. And they are less likely to have anxiety and depression or to use drugs. So how can you help your kids enjoy team sports? And if organized sports aren’t right for them, how can you help them stay active and involved? Ways to Help Your Child Make the Best Choice Start […]

A fever, racing heart rate, and altered mental state: Why was this teen athlete so sick? 

This blog was originally published by The Philadelphia Inquirer  A 15-year-old girl was brought to the emergency department because she was not acting like herself at lacrosse practice. The coach called her mother to pick her up early from practice because she was having trouble walking and could not answer such simple questions as “What is your name?” and “Where are you?”  When they arrived at the emergency department, the teen’s skin was red, hot, and dry. She was leaning on her mother for support. She looked so ill that the nurse brought her into the triage room before other waiting patients. She had an extremely high fever of 104.6 degrees and a fast heart rate (tachycardia) of 130 beats per minute, and appeared to be going in and out of consciousness. She was rushed to a treatment room, where doctors and nurses began resuscitation.  Our patient exhibited altered mental […]

ADP Celebrates 100th Delivery

Nemours’ Advance Delivery Program is designed for healthy moms-to-be whose babies will need complex care from the moment they’re born.

Should Parents Worry About Parechovirus?

It may feel like viruses are in the news a lot these days. And perhaps you just heard about parechovirus (puh-REH-ko-veye-rus). Well, it turns out that parechovirus isn’t new! What Is Parechovirus? Parechovirus is a virus that’s been around for many years. Parechovirus infection is pretty common, especially in kids. Did you know that most kids get a parechovirus infection by the time they turn five years old? You probably weren’t even aware if your child has had a parechovirus infection. That’s because kids usually have no symptoms or just mild ones.  Parechovirus can spread when someone comes in contact with infected poop or infected droplets of saliva or mucus that come out in a cough or sneeze. It can also spread when someone touches a contaminated surface or object. Symptoms of parechovirus infection are like symptoms that come with other cold viruses, such as a sore throat, runny nose, […]

Page 3 of 21

Page 3 of 21

Page 3 of 21