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Innovation in Pediatric Care: Meghan’s Story

Meghan’s journey with Bladder Neck Dysfunction unfolded over the course of several years, involving many visits to urologists. It was only when she sought the expertise of Dr. Hagerty, making the journey all the way from Rhode Island to Nemours Children’s Hospital, Delaware, that a diagnosis was finally made. Before treatment at Nemours Children’s, bladder issues had caused many complications throughout Meghan’s life. Pain, discomfort, urinary retention, and bladder spasms were constant obstacles, making it difficult for her to attend school and participate in social activities. Her condition had become a barrier to living her teenage life. However, Nemours proved to be a place of hope for Meghan and her family. The kindness and compassion given by every staff member, from the front desk to the medical professionals, left a lasting impression. So much so that Meghan even suggested relocating to Delaware upon leaving the hospital – a testament to […]

The Pioneering Women Behind Fentanyl-Related Syndrome Discovery

You may have seen in the news recently—in stories airing on NBC, and published in The Philadelphia Inquirer[PA1]  and USA Today—, the extraordinary study conducted by researchers at Nemours Children’s Hospital, Delaware. The study revealed that at least 10 babies have what doctors believe to be a new syndrome related to exposure to fentanyl in the womb. Erin Wadman, LCGC, Karen Gripp, MD, and Erica Fernandes, DO, along with their colleagues, published their findings in Genetics in Medicine Open. Get to know the women behind this groundbreaking research here:  What inspired you to pursue this research study? Wadman: The opportunity presented itself to me from working in outpatient genetics and the Cleft and Craniofacial clinic. I was noticing a pattern of patients who had similar physical differences but who also had no genetic diagnosis on genetic testing. All these patients had significant exposures to fentanyl during the pregnancy. From there, we knew we were on […]

Nemours Children’s Health Celebrates Five Years of the Healthy Kids, Healthy Future Technical Assistance Program  

Since 2018, Nemours Children’s Health has been funded by the Centers for Disease Control and Prevention (CDC) to help states create healthier early care and education (ECE) programs and state systems through the Healthy Kids, Healthy Future Technical Assistance Program (HKHF TAP). Throughout the five years and guided by the CDC’s Spectrum of Opportunities, Nemours Children’s engaged with 37 states and the District of Columbia through various programs to build capacity to improve nutrition and physical activity in ECE. Of those, Nemours Children’s partnered closely with 13 states to integrate healthy eating and physical activity best practices, such as opportunities for daily physical activity both indoors and outdoors into ECE program settings and broader state systems. State ECE systems include TA networks, professional development, licensing, Quality Rating and Improvement Systems (QRIS), and more.  We celebrate the incredible work achieved by our partners over the past five years and are grateful […]

From Immobility to Independence: Yanex’s Story

Yanex’s story began at just nine months old, when his primary care physician noticed something amiss. Keyshla, his mother, recalls that during a routine check-up, she expressed concerns about Yanex’s lack of developmental progress. He wasn’t attempting to sit or crawl, and his movements were limited to lifting his head when placed face down. However, it was Yanex’s head shape that raised the most concern for his doctor. During this check-up, Yanex’s physician ordered an X-ray. That day, the report arrived with a diagnosis of craniosynostosis. Craniosynostosis, a problem where one or more seams between bones in a child’s skull closes too soon, had a significant impact on Yanex’s life prior to treatment. “Yanex only looked comfortable when he was in the car seat, stroller, swing or while being held,” says Keyshla. “He was also exclusively breastfeeding for over a year. Yanex was not independent in the slightest, as if […]

22q Awareness Day: Jason’s Story

Jason’s story began with a seemingly innocent complaint, ear pain. Concerned for her son, Andrea Salicia vividly remembers the moment she first suspected something was wrong with her son Jason. While feeding him, she noticed that he was twitching, and it didn’t appear to be normal newborn behavior. A few days later, in a terrifying incident, Jason began gasping for air during a feeding, followed by a more severe twitch. Panicked, Salicia rushed him to the Nemours Children’s Hospital, Florida emergency room. It was there that a nurse informed her that Jason’s “twitches” were actually seizures, prompting further investigation. This nurse also thought that he might have a condition called DiGeorge syndrome but didn’t want to say anything until it was confirmed. The medical team then performed a spinal tap and various tests, which led to a diagnosis of 22q11.2 deletion syndrome, also known as 22q or DiGeorge syndrome, at […]

Associate Highlight: Shawn and Tammy

Shawn and Tammy Rolquin are a remarkable couple who share a dedication to making a difference in the lives of children and families. Tammy, a Post-Anesthesia Care Unit (PACU) Registered Nurse, and Shawn, the Manager of the Critical Care Transport Team and Transfer Center, both work for Nemours Children’s Hospital, Florida. While they may have distinct roles within Nemours, the pair occasionally find their paths crossing. The surgical department where Tammy works overlooks the helicopter pad and ambulance bay, offering her an exciting viewing point. “When the timing is perfectly aligned for the both of us,” Tammy says, “I can watch Shawn take off or land in the helicopter. We get to exchange a quick wave and a smile. We are both usually quite busy, but this small occasional moment is very impactful and special for us.” Shawn and Tammy met in college through a mutual friend. “His truck broke […]

Page 7 of 33

Page 7 of 33

Page 7 of 33