When Latoya welcomed her daughter, Rhy’lee, into the world, she had no idea how much resilience her little girl would have. Diagnosed at birth with hypoxic-ischemic encephalopathy (HIE), Rhy’lee spent her first 45 days in the hospital, relying on medical equipment to survive. Over time, her challenges became clearer—cerebral palsy, lung issues, and a need for a G-tube. For years, Rhy’lee faced constant hospital stays, battling lung complications that made life uncomfortable for both her and her family. “She was in and out of the hospital back-to-back,” Latoya recalls. “She was so uncomfortable.” It wasn’t until Rhy’lee was 5 that her parents, Latoya and Devon, were introduced to Nemours Children’s Hospital, Florida. A medical complex in downtown Orlando connected her with Dr. Aga Lewelt, and soon, Dr. Jason Malone and Dr. Alec Stall joined Rhy’lee’s care team. From that moment, everything changed. At Nemours, Rhy’lee’s family found more than expert […]

A Bright Future Ahead: Piper’s Story
When Piper was just four months old, her parents faced an unexpected concern: their pediatrician noticed her head size was not typical. After a series of tests, Piper was diagnosed with microcephaly. By the time she was nine months old, she was missing developmental milestones, and by her second birthday, she had also been diagnosed with cerebral palsy. Piper’s journey also brought unique challenges with communication and mobility. As a nonverbal child, Piper relies on creative ways to express herself, and her family has embraced learning to understand her cues. Piper is also not yet mobile, affecting her ability to move around and get from one place to another on her own. In 2022, the family relocated to Florida and began researching the best care options for Piper. “We spent a lot of time looking for facilities that could meet Piper’s needs,” her mother, Christy explains. “Nemours was the best […]