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Nemours Children’s Health, Florida

Navigating Clubfoot: Sofia’s Story

For Sofia’s family, a routine pregnancy check-up took a surprising turn when an ultrasound revealed that Sofia would be born with a condition known as clubfoot. “As an infant, her feet were going inward and it was heartbreaking to see,” Sofia’s mom shares. Determined to give her daughter the best possible care, Sofia’s mom turned to the internet, where she discovered Dr. John Lovejoy and Nemours Children’s Hospital, Florida. The diagnosis of clubfoot had been unexpected, but the prospect of expert care and a promising treatment plan offered a glimmer of light. It was at Nemours Children’s Hospital Florida that they met Dr. Lovejoy, Chair of Orthopedics and Sports Medicine. Dr. Lovejoy recommended Sofia be started with casting using the Ponseti method. This treatment involved a series of castings, which were crucial for maintaining the corrected position of her foot. The process required regular weekly visits to Nemours as a […]

Navigating Cochlear Implants: Nakoa’s Story

Just a day after his birth, Nakoa’s family received the unexpected news that he had failed his newborn hearing screening. This was only the beginning of a challenging yet transformative journey. Two weeks later, the family returned to their local hospital for a second screening. The results were the same: Nakoa failed. The hospital referred them to another pediatric hospital for more comprehensive testing. Nakoa failed every test, and the diagnosis of profound deafness was becoming increasingly clear. The family was devastated but determined to seek a second opinion. So, they were referred to Nemours Children’s Hospital, Florida, a renowned pediatric healthcare facility, for the following week. Still, Nakoa failed every test, and the diagnosis was confirmed. For his mother, the diagnosis of profound deafness held a heavy impact. “I mourned the thought of him being deaf and having to endure being different,” she shares. The fear of Nakoa facing […]

A Limitless Future: Eduardo’s Story

In the summer of 2024, a small bump on 12-year-old Eduardo’s neck caught the attention of his family. They decided to visit Nemours Children’s, a healthcare institution that had been a trusted part of their family for over a decade. “My kids have been a part of the Nemours family since they were born, and we’re very thankful for all the professionals who have cared for them,” his mother, Vanessa says. Upon their visit, the medical team at Nemours Children’s Hospital, Florida conducted a thorough examination, including an ultrasound, a CT scan, and a biopsy. Eduardo was diagnosed with a benign tumor in his parotid gland. While the term “benign” offered some relief, the diagnosis itself was a significant concern to the family. “We were very worried and spent a lot of time doing research online, which only scared us more than it relaxed us,” Vanessa admits. Despite the anxiety, […]

Navigating Life with Crohn’s: Alejandra’s Story

What began as an upset stomach evolved into a journey with Crohn’s Disease for Nemours Children’s patient, Alejandra. “It all started with an upset stomach that continued over time, immediately after eating, at the age of 8,” shares Alejandra. The persistent discomfort became a daily challenge that began to affect her quality of life. “Physical activities also had to be reduced, including physical education (PE), as performance declined considerably. Psychological aspects also erupted, with certain levels of anxiety.” From the moment they walked through the doors of Nemours Children’s Hospital, Florida, Alejandra and her family found themselves in capable hands, guided by a team of dedicated specialists. After the family’s recent move from Miami, they were diligent in their search for the best possible care for Alejandra. Their research led them to Dr. Pablo Palomo and the gastroenterology team at Nemours. The journey to a diagnosis was not straightforward. It […]

A New Chapter in Sleep: Alex’s Story

Alex, a strong, brave, and smart patient with a passion for swimming, soccer, surfing, and music, has been on a long and challenging journey to find a solution for his sleep apnea. Living with Down syndrome, Alex’s struggle with sleep has been particularly difficult, often leaving him tired and unable to function well at school. Despite trying various treatments, including a surgery in October, Alex and his family were still searching for a breakthrough. That’s when Dr. Santino Cervantes, pediatric otolaryngologist at Nemours Children’s Hospital, Florida, recommended the Inspire implant—a groundbreaking treatment to help Down syndrome children with refractory severe sleep apnea. Alex, almost 14, became the first patient at the hospital to receive this innovative implant. The Inspire implant is a device designed to assist with sleep apnea. When activated, the implant enhances the user’s breathing during sleep by giving gentle pulses to the airway muscles to keep the […]

In Good Hands: Lucy’s Story

When Michelle learned she was pregnant, she was referred to Nemours Children’s Hospital, Florida for high-risk prenatal care. From the very beginning, she felt supported by her care team. So, when her daughter, Lucy, was diagnosed with hip dysplasia at 6 weeks old, there was no hesitation about where to turn. Because Lucy was breech throughout the entire pregnancy, her pediatrician took extra precautions after birth to check for hip dysplasia. “Her pediatrician wanted to check if she could possibly have hip dysplasia, and thank god she did because we were able to treat her on time,” shares Michelle. “We were so grateful it was diagnosed so early where we as parents did not notice, and she did not feel affected by it as a newborn.” The family’s relationship with Nemours Children’s came full circle when they decided to bring Lucy in for treatment. “The treatment for myself was so […]

Excellent Care is Out There: Charlotte’s Story

Before she was even born, Charlotte was diagnosed with Congenital Femoral Deficiency and Fibular Hemimelia, a rare condition that would shape her life in ways her family could never have anticipated. Congenital leg length discrepancies are when patients have legs that are different lengths. Femoral deficiency is characterized by a short or missing thighbone and fibular hemimelia by a short or missing fibula. “It was an incredibly emotional and uncertain time for us,” her mother, Melissa, recalls. The news was both a shock and a call to action. As soon as they received the diagnosis, her family was determined to understand the condition and find the best possible care for Charlotte. “We knew this would be a lifelong series of surgeries, rehabilitation, and specialized care,” her father, Brian, recalls. “There was a lot of anxiety and fear about what her future would look like and whether she would be able […]

Cleft And Craniofacial Awareness Month: Lex’s Story

When Lex was just a baby, his pediatrician noticed something was off about the shape of his head, leading to a diagnosis of craniosynostosis, a condition where the skull’s sutures fuse prematurely. Craniosynostosis is when one or more seams between bones in a child’s skull close too soon. When this happens, the skull can’t grow properly and develops a different shape. Despite facing multiple surgeries and challenges, Lex and his family have found unwavering support and care at Nemours Children’s Hospital, Florida. Through it all, Lex has shown incredible resilience.  “His pediatrician noticed that his head shape was not normal and immediately referred us to Nemours,” shares Lex’s mother, Courtney. At Nemours Children’s the medical team conducted a series of tests and scans. In addition to the craniosynostosis, Lex was also found to have elevated cerebrospinal fluid (CSF) pressure, pituitary gland shrinkage, and a host of symptoms, including severe headaches […]

Advocacy and Expertise: Hudson’s Story

Hudson’s persistent symptoms of pain, feeding difficulties, and faltering growth left his mother, Heather, and her husband, searching for an explanation. Hudson’s condition had taken a toll on the family’s daily life. Heather shares, “Hudson would cry and be unsettled for numerous hours in a day. He would throw up his formula, and we had tried seven different types, hoping one would make a difference.” The constant vomiting made it nearly impossible to leave the house, and Heather had to resign from her 18-year career in Special Education to focus on her son’s care. Every day was a struggle, but Heather’s unwavering dedication and advocacy for her son never wavered. Determined to find answers, Heather and her husband reached out to multiple healthcare providers. It wasn’t until a CT scan at 6 months revealed brain swelling due to severe malnutrition that the true extent of Hudson’s condition became clear. “Prior […]

Facing a Rare Heart Condition: Mathew’s Story

Mathew’s mother, Megan, was 28 weeks pregnant when she learned her baby had Tetralogy of Fallot (TOF), a rare, congenital condition caused by a combination of four heart defects that change the way blood flows through the heart and to the lungs, resulting in less oxygen-rich blood being carried to the body. Mathew would need surgery soon after birth and Megan’s OBGYN referred her to Dr. Mehta at Nemours Children’s Health, Pensacola. “As a first-time mom, I was terrified and spent countless hours Googling all the worst-case scenarios,” recalls Megan. “But Dr. Mehta reassured me with a simple, ‘I got you.’” Sure enough, Mathew came home on Thanksgiving Day, four days after he was born. Mathew’s Surgery Three weeks later, Mathew’s oxygen saturation dropped into the 30s — he needed open-heart surgery and Megan requested a transfer to Nemours Children’s Hospital, Florida. “The patient and family care at Nemours Children’s […]

Annistyn’s Journey with Nemours Children’s Health, Lakeland (In Mom’s Words)

In February, our daughter Annistyn broke her humerus when she fell off a snowmobile in New York. After a visit to a local urgent care and an X-ray, we were referred to Nemours Children’s Health, Lakeland—and from that moment on, everything was handled with such care and compassion. From the very first phone call, Nemours made us feel supported. They confirmed directions, sent all documents ahead of time, and ensured our arrival and appointment were seamless and right on schedule. We were met by smiles and kind staff from the very first interaction to the last. Every person we encountered treated Annistyn like she was their own—with warmth, patience, and expertise. Under the care of Kevin Osborne, PA-C, Annistyn was put in a sling for immobilization. One thing that truly stood out to me as a parent was how they spoke directly to Annistyn about her care. They didn’t just […]

Finding the Best Possible Care: Shanaya’s Story

Shanaya and her family live in Trinidad and Tobago. Around the time she turned 3, they began noticing a delay in her speech. While they pursued testing and therapy in their home country, the results weren’t clear, and they weren’t making progress. As Shanaya grew older, her family noticed she wasn’t engaging with others the way they expected. They found themselves going from appointment to appointment, but still without real answers or solutions. That’s when Rena, Shanaya’s mom, reached out to her sister in law who lives in Lake Nona, Florida. Her sister knew about Nemours Children’s Hospital, Florida and recommended exploring care options in Orlando. That advice – and introduction to the International Medicine Program at Nemours Children’s – set the family on a new path. Through a connection with Jordan Wadi, Nemours International Medicine Manager, the family began coordinating care with the Ear, Hearing and Communications Center. The […]

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