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Nemours Children’s Health, Delaware Valley

Nello’s Story (In Mom’s Words)

On the second day after Nello’s birth, a doctor, in the hospital, initially diagnosed him with hemihypertrophy. However, due to additional side effects associated with the condition, we understood that further testing would be necessary to confirm and fully understand his diagnosis. Prior to receiving treatment at Nemours Children’s Hospital, Delaware, we found ourselves frequently visiting doctors to rule out potential diagnoses and ultimately determine the full scope of his medical condition. We discovered Nemours Children’s because someone recommended Dr. Thacker, an orthopedic doctor, and we made an appointment immediately. For 14 years, Dr. Thacker has been our trusted physician. His charismatic personality, exceptional bedside manner, and genuine empathy create a uniquely comforting patient experience. During appointments, I never feel rushed; instead, he makes me feel like the most important patient of the day. Our first visit to Nemours immediately impressed us with its efficient and organized environment. The clinicians […]

Changing the Trajectory: Haley’s Story

At 17 years old, Haley is already a seasoned competitor on the golf course, but her path to success hasn’t been without challenges. Diagnosed with adolescent idiopathic scoliosis at age 12, Haley’s journey brought her to Nemours Children’s Health, Winter Garden, where she found the care and support she needed to thrive. It all started in 6th grade when Haley’s trainer noticed that one side of her back was higher than the other during a routine assessment at a sports-specific gym. A visit to her pediatrician and an X-ray confirmed a 34-degree curve in her spine. Initially, treatment included wearing a nighttime back brace from 6th to 9th grade, but the curve progressed to 52 degrees over the next two years, requiring spinal fusion surgery. By the time she started high school, Haley started experiencing back pain, which impacted her sleep and daily life—and, more importantly, her golf game. “The […]

Road to Recovery: Mackenzie’s Story

15-year-old Mackenzie has always been active, with a passion for playing sports. But after a snowboarding accident in 2023 resulted in a meniscus tear in her left knee, she had to take a step back from her favorite activities. After the accident, a local doctor recommended surgery and Mackenzie’s primary care physician referred her to Dr. Su, a sports medicine surgeon at Nemours Children’s Hospital, Delaware. “Dr. Su is hands down the best!” shares her mother, Teena. “He explained everything so that both Mackenzie and I could understand.” With Dr. Su’s guidance, Mackenzie underwent meniscus repair surgery for her left knee. But just as she was beginning to recover, life threw another curveball—a second injury, this time to her right knee. Knowing exactly where to turn, Teena says they didn’t hesitate to reach out to Dr. Su again. Through both surgeries, Mackenzie found the support she needed at Nemours Children’s, […]

Step by Step: Brooks’ Journey

When Marissa noticed her 5-year-old son, Brooks, limping in late 2023, she didn’t think too much of it at first. His pediatrician assumed it might be “growing pains,” but when the pain persisted into the new year, Marissa’s concern grew. After a pediatrician visit in January 2024, Marissa’s intuition led her to push for an X-ray. Having experienced Legg-Calvé-Perthes disease as a child herself, she recognized the signs. Still, his doctors had reassured Marissa it wasn’t genetic. That same day, an X-ray confirmed Brooks had Perthes in his right hip, a disease that changes the hip joint and the way bone grows at the top of the thighbone. “I was seen at Nemours as a child and had amazing care, so I immediately knew we wanted to take him there,” says Marissa. A few days later, Brooks had an appointment with Dr. Mihir Thacker, an orthopedic specialist at Nemours Children’s Hospital, Delaware. […]

Back In the Game: Lucy’s Story

16-year-old Lucy McCloskey knows what it takes to persevere. As a two-sport varsity high school athlete, she never imagined an injury would turn her world upside down. But after a serious fall during a home game, Lucy was diagnosed with an avulsion fracture of the ischial tuberosity, a painful upper leg injury that left her bedridden, unable to attend school, and struggling to perform even basic tasks like walking or sitting. “It was the worst pain of my life,” Lucy recalls. But thanks to a timely referral from a teammate’s mom, Kelly Quaile, Lucy found herself under the expert care of Dr. Brett Shannon and physical therapist Jeffery Ruth at Nemours Children’s Hospital, Delaware. Lucy’s treatment journey began with Dr. Shannon, who took the time to understand her concerns as an athlete. “He explained all the steps to surgery and even made non-invasive routes available,” Lucy says, appreciating the way […]

A Resilient Return: Caroline’s Story

For athletes like Caroline, injuries can be both physically and mentally challenging, but with a supportive team and the right care, recovery is possible. A patient at Nemours Children’s Hospital, Delaware, Caroline’s journey with ACL tears in both knees tested her strength and perseverance. In September 2020, Caroline tore the ACL in her left knee. Then in May 2023, she faced the same injury on her right knee. Both times, the road to recovery was tough, especially when sports had always been such a big part of her life. Fortunately, Caroline had already been a Nemours Children’s patient for her regular well-visits, so when she got injured the first time, she knew exactly where to turn. “It was an easy decision to go to Nemours,” Caroline explains. When it happened again in the opposite knee, she found comfort in knowing she would receive the highest level of care from familiar […]

A Journey of Confidence: Dani’s Story

Dani has spent the past five years navigating life with Poland Syndrome. Diagnosed at 14, Dani’s journey took her from feeling insecure about her body to embracing newfound confidence, all with the help of the compassionate team at Nemours Children’s Hospital, Delaware. Poland Syndrome is a condition characterized by the underdevelopment or absence of chest muscles. For Dani, it began to significantly affect her during puberty. “It really started to affect me when I realized that my left breast was not growing as my other one was,” shares Dani. This physical difference impacted her self-esteem, especially during the summer when finding a bathing suit seemed impossible. “It made me very insecure, and it was hard to find confidence within myself,” she shares. Simple activities like shopping for summer shirts or feeling comfortable at the beach became daunting challenges. Dani’s connection to Nemours Children’s began with her sister, who had been […]

Evander’s Cleft Lip Journey

When Raelyn and James went for their 20-week ultrasound in December 2022, they were expecting to hear that everything was progressing perfectly with their baby boy. For the most part, things were. However, during the scan, the doctor and nurse discovered something unexpected—a cleft lip. They explained that their son, Evander, would be born with a unilateral cleft lip, and there was a chance he could also have a cleft palate. For Raelyn, this news was overwhelming. As a new mom unfamiliar with clefts, she found herself navigating a whole new world. “I knew nothing about clefts before this,” she shares. “I spent a lot of time researching and preparing for any outcome.” Raelyn devoted herself to learning as much as she could, connecting with other families and educating herself about what lay ahead. Nemours Children’s Hospital, Delaware, was the first recommendation Raelyn and James received from their local doctor. […]

Standing Tall: K’den’s Story

At the age of 16, elite basketball player K’den faced the challenge of scoliosis head-on, with the support of Nemours Children’s Hospital, Delaware, and the expertise of Dr. Suken A. Shah. “I was experiencing rib pain, and I didn’t know why,” K’den recalls. After a week of difficulty with walking prompted an emergency room visit, K’den quickly found that scoliosis was the cause of his pain. For K’den, Nemours Children’s has always been a familiarity. “I have been a long-time patient,” he shares. “The way they’ve helped me throughout my life has been amazing.” At a young age, K’den received an asthma diagnosis, marking the beginning of his journey as a patient at Nemours Children’s Health. “I was in and out of the hospital seemingly every two weeks because I was struggling to breathe,” says K’den. “During an Emergency Room visit at Nemours Children’s, an X-ray was taken of my […]

Marcella’s Story: In Mom’s Words

Marcella was born prematurely at another hospital in May of 2023. She had a fairly uneventful first month, until she developed Necrotizing Enterocolitis at 4 weeks. She had her feeds stopped, was put on the ventilator because her stomach was so swollen it was affecting her breathing, and IV antibiotics were started. But the disease had already progressed too far, and she continued to go downhill fast. Two days after the diagnosis she was transferred to the Nemours Children’s Hospital, Delaware NICU, and the following afternoon she had her first exploratory laparotomy. Things were looking very bleak after this first surgery. Her intestines were put into a silo, basically a clear bag that held them outside of her body so doctors could visualize what the tissue looked like. Based on what they saw, it was very likely that she would not survive as all the tissue appeared to be dead. That […]

Page 4 of 10

Page 4 of 10

Page 4 of 10