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Patient Stories

Throughout 8-year-old, Moksh’s life, his mother, Rina and her family, noticed something was different. “He wasn’t able to give a response when we called to him or clapped,” Rina recalls. Concerned, they sought answers from numerous doctors, and one thing became clear—Moksh needed cochlear implants. After a year of searching for answers to help with his hearing loss, Moksh underwent the life-changing surgery that would set him on a new path. Nemours Children’s Hospital, Florida, became a critical part of that journey. After researching their options online and receiving recommendations from other doctors, Rina and her family turned to Nemours for their son’s care. What they found exceeded their expectations. “They are so intelligent,” says Rina about the audiology team. “They did a really good job with surgery and had accurate results. Everyone, from the nurses to the surgeons, were helpful and kind.” Moksh was born with profound sensorineural hearing […]

Dani has spent the past five years navigating life with Poland Syndrome. Diagnosed at 14, Dani’s journey took her from feeling insecure about her body to embracing newfound confidence, all with the help of the compassionate team at Nemours Children’s Hospital, Delaware. Poland Syndrome is a condition characterized by the underdevelopment or absence of chest muscles. For Dani, it began to significantly affect her during puberty. “It really started to affect me when I realized that my left breast was not growing as my other one was,” shares Dani. This physical difference impacted her self-esteem, especially during the summer when finding a bathing suit seemed impossible. “It made me very insecure, and it was hard to find confidence within myself,” she shares. Simple activities like shopping for summer shirts or feeling comfortable at the beach became daunting challenges. Dani’s connection to Nemours Children’s began with her sister, who had been […]

When Raelyn and James went for their 20-week ultrasound in December 2022, they were expecting to hear that everything was progressing perfectly with their baby boy. For the most part, things were. However, during the scan, the doctor and nurse discovered something unexpected—a cleft lip. They explained that their son, Evander, would be born with a unilateral cleft lip, and there was a chance he could also have a cleft palate. For Raelyn, this news was overwhelming. As a new mom unfamiliar with clefts, she found herself navigating a whole new world. “I knew nothing about clefts before this,” she shares. “I spent a lot of time researching and preparing for any outcome.” Raelyn devoted herself to learning as much as she could, connecting with other families and educating herself about what lay ahead. Nemours Children’s Hospital, Delaware, was the first recommendation Raelyn and James received from their local doctor. […]

At the age of 16, elite basketball player K’den faced the challenge of scoliosis head-on, with the support of Nemours Children’s Hospital, Delaware, and the expertise of Dr. Suken A. Shah. “I was experiencing rib pain, and I didn’t know why,” K’den recalls. After a week of difficulty with walking prompted an emergency room visit, K’den quickly found that scoliosis was the cause of his pain. For K’den, Nemours Children’s has always been a familiarity. “I have been a long-time patient,” he shares. “The way they’ve helped me throughout my life has been amazing.” At a young age, K’den received an asthma diagnosis, marking the beginning of his journey as a patient at Nemours Children’s Health. “I was in and out of the hospital seemingly every two weeks because I was struggling to breathe,” says K’den. “During an Emergency Room visit at Nemours Children’s, an X-ray was taken of my […]

Explore Griffin’s inspiring journey with complex medical conditions and how his family found hope at Nemours Children’s Hospital, Delaware.

Marcella was born prematurely at another hospital in May of 2023. She had a fairly uneventful first month, until she developed Necrotizing Enterocolitis at 4 weeks. She had her feeds stopped, was put on the ventilator because her stomach was so swollen it was affecting her breathing, and IV antibiotics were started. But the disease had already progressed too far, and she continued to go downhill fast. Two days after the diagnosis she was transferred to the Nemours Children’s Hospital, Delaware NICU, and the following afternoon she had her first exploratory laparotomy. Things were looking very bleak after this first surgery. Her intestines were put into a silo, basically a clear bag that held them outside of her body so doctors could visualize what the tissue looked like. Based on what they saw, it was very likely that she would not survive as all the tissue appeared to be dead. That […]