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Back on the Mat: Alexa’s Story

Alexa, then 12 years old, had always been an active child, participating in various sports such as Jiu Jitsu. However, a previous knee injury that seemed minor at first, suddenly got worse. What started as a slight discomfort during physical activities escalated into persistent pain that made it difficult for her to participate in sports. As the pain began to increase, Alexa was referred to Nemours Children’s Sports Medicine Orthopedic Surgeon, Dr. Alvin Su. Under the care of Dr. Su and the team at Nemours Children’s Hospital, Delaware, Alexa was diagnosed with osteochondral defect (OCD). OCD is a condition where there is damage to the cartilage and the bone beneath it within a joint. This type of injury is commonly found in the knee, and it can be particularly debilitating for young athletes. “This condition didn’t allow me to return to sports and other strenuous activities, like Jiu Jitsu,” shares Alexa. After […]

Navigating Clubfoot: Sofia’s Story

For Sofia’s family, a routine pregnancy check-up took a surprising turn when an ultrasound revealed that Sofia would be born with a condition known as clubfoot. “As an infant, her feet were going inward and it was heartbreaking to see,” Sofia’s mom shares. Determined to give her daughter the best possible care, Sofia’s mom turned to the internet, where she discovered Dr. John Lovejoy and Nemours Children’s Hospital, Florida. The diagnosis of clubfoot had been unexpected, but the prospect of expert care and a promising treatment plan offered a glimmer of light. It was at Nemours Children’s Hospital Florida that they met Dr. Lovejoy, Chair of Orthopedics and Sports Medicine. Dr. Lovejoy recommended Sofia be started with casting using the Ponseti method. This treatment involved a series of castings, which were crucial for maintaining the corrected position of her foot. The process required regular weekly visits to Nemours as a […]

Navigating Cochlear Implants: Nakoa’s Story

Just a day after his birth, Nakoa’s family received the unexpected news that he had failed his newborn hearing screening. This was only the beginning of a challenging yet transformative journey. Two weeks later, the family returned to their local hospital for a second screening. The results were the same: Nakoa failed. The hospital referred them to another pediatric hospital for more comprehensive testing. Nakoa failed every test, and the diagnosis of profound deafness was becoming increasingly clear. The family was devastated but determined to seek a second opinion. So, they were referred to Nemours Children’s Hospital, Florida, a renowned pediatric healthcare facility, for the following week. Still, Nakoa failed every test, and the diagnosis was confirmed. For his mother, the diagnosis of profound deafness held a heavy impact. “I mourned the thought of him being deaf and having to endure being different,” she shares. The fear of Nakoa facing […]

A Limitless Future: Eduardo’s Story

In the summer of 2024, a small bump on 12-year-old Eduardo’s neck caught the attention of his family. They decided to visit Nemours Children’s, a healthcare institution that had been a trusted part of their family for over a decade. “My kids have been a part of the Nemours family since they were born, and we’re very thankful for all the professionals who have cared for them,” his mother, Vanessa says. Upon their visit, the medical team at Nemours Children’s Hospital, Florida conducted a thorough examination, including an ultrasound, a CT scan, and a biopsy. Eduardo was diagnosed with a benign tumor in his parotid gland. While the term “benign” offered some relief, the diagnosis itself was a significant concern to the family. “We were very worried and spent a lot of time doing research online, which only scared us more than it relaxed us,” Vanessa admits. Despite the anxiety, […]

Going Beyond Medical Care: Caleigh’s Story

In November 2024, 2-year-old Caleigh woke up not feeling well and with concerning symptoms. Her family noticed red areas under both of her armpits and took her to her pediatrician for assessment. “She was being treated for Strep Throat and Scarlet Fever,” shares her mother, Megan. However, after two days, Caleigh’s condition only worsened, and she stopped eating and drinking. “Caleigh wasn’t getting better,” says Megan. “My husband & I decided to take her into our local ER where she was evaluated.” Upon arrival, the medical team assessed Caleigh and suspected Staphylococcal Scalded Skin Syndrome (SSSS), a rare but serious condition caused by a Staphylococcus toxin. The severity of her symptoms and rapid progression left no room for delay. “Within a few hours, she was on a helicopter being flown to Nemours Children’s Hospital, Delaware, in the middle of the night with us following behind in our vehicle,” says Megan. […]

Restoring and Rebuilding: Mia’s Story

12-year-old Mia was enjoying an afternoon at a friend’s birthday party when in a matter of moments, the day took an unexpected turn. When reaching down to pet the friend’s dog, it became startled and bit Mia in the face. The bite tore off most of her left nostril and left a puncture in her cheek. Immediately, Mia was taken to the emergency room where doctors moved quickly to treat her injuries. It became clear that Mia would need reconstructive surgery. Determined to find expert surgeons for Mia’s procedure, her parents turned to Nemours Children’s Hospital, Delaware. “Living close by we had always heard that the best pediatric care is at Nemours,” shares her mother, Courtney. “We knew for something this serious we needed the best hospital.” At their first appointment with Dr. Mario Aycart and the plastic surgery team at Nemours Children’s, it was explained to Mia’s family that […]

The Path to Wellness: Blake’s Story

When Blake was just 2 years old, her mom, Kimberly, noticed she was experiencing back pain. “Blake was crying in her car seat and reaching for her back,” Kimberly recalls. Concerned, they decided to seek medical help. An MRI of Blake’s spine revealed a Chiari malformation and two Tarlov cysts, conditions that would significantly impact her life. As Blake continued to grow, simple activities like sitting or standing were sources of pain, making it difficult for her to enjoy the things most children take for granted. At school, she had to use a special chair and cushion to alleviate some of the discomfort. Family life was also affected, as long car trips were out of the question due to the intense pain Blake experienced. Now 13 years old, Blake has been a Nemours Children’s Hospital, Delaware patient nearly all her life, receiving care from the orthopedics, neurology, and neurosurgery departments. […]

Navigating Life with Crohn’s: Alejandra’s Story

What began as an upset stomach evolved into a journey with Crohn’s Disease for Nemours Children’s patient, Alejandra. “It all started with an upset stomach that continued over time, immediately after eating, at the age of 8,” shares Alejandra. The persistent discomfort became a daily challenge that began to affect her quality of life. “Physical activities also had to be reduced, including physical education (PE), as performance declined considerably. Psychological aspects also erupted, with certain levels of anxiety.” From the moment they walked through the doors of Nemours Children’s Hospital, Florida, Alejandra and her family found themselves in capable hands, guided by a team of dedicated specialists. After the family’s recent move from Miami, they were diligent in their search for the best possible care for Alejandra. Their research led them to Dr. Pablo Palomo and the gastroenterology team at Nemours. The journey to a diagnosis was not straightforward. It […]

A New Chapter in Sleep: Alex’s Story

Alex, a strong, brave, and smart patient with a passion for swimming, soccer, surfing, and music, has been on a long and challenging journey to find a solution for his sleep apnea. Living with Down syndrome, Alex’s struggle with sleep has been particularly difficult, often leaving him tired and unable to function well at school. Despite trying various treatments, including a surgery in October, Alex and his family were still searching for a breakthrough. That’s when Dr. Santino Cervantes, pediatric otolaryngologist at Nemours Children’s Hospital, Florida, recommended the Inspire implant—a groundbreaking treatment to help Down syndrome children with refractory severe sleep apnea. Alex, almost 14, became the first patient at the hospital to receive this innovative implant. The Inspire implant is a device designed to assist with sleep apnea. When activated, the implant enhances the user’s breathing during sleep by giving gentle pulses to the airway muscles to keep the […]

Dextro-Transposition of the Great Arteries: Nico’s Story

Nico’s cardiac journey began before he was born. Going into her pregnancy with Nico, Sierra shared her concern about a family history of heart defects with her midwife. This led to a referral to Nemours Children’s Hospital, Florida. At 17 weeks, Dr. Claudia Taboada, a Maternal Fetal Medicine Specialist, suspected a complex congenital heart defect during an ultrasound. Later, at 22 weeks, a fetal echo confirmed that Nico had the same defect as his father: Dextro-Transposition of the Great Arteries (D-TGA). A congenital heart defect where the aorta and pulmonary artery are switched, resulting in abnormal blood flow and oxygenation. “Once we found out that Nico had D-TGA, we were told that he would have to have open heart surgery and it would have to be done in Orlando, which is about 6 hours away from home,” shares Sierra. “Preparing for the relocation and his birth/surgery was stressful, but we […]

In Good Hands: Lucy’s Story

When Michelle learned she was pregnant, she was referred to Nemours Children’s Hospital, Florida for high-risk prenatal care. From the very beginning, she felt supported by her care team. So, when her daughter, Lucy, was diagnosed with hip dysplasia at 6 weeks old, there was no hesitation about where to turn. Because Lucy was breech throughout the entire pregnancy, her pediatrician took extra precautions after birth to check for hip dysplasia. “Her pediatrician wanted to check if she could possibly have hip dysplasia, and thank god she did because we were able to treat her on time,” shares Michelle. “We were so grateful it was diagnosed so early where we as parents did not notice, and she did not feel affected by it as a newborn.” The family’s relationship with Nemours Children’s came full circle when they decided to bring Lucy in for treatment. “The treatment for myself was so […]

Jalen’s Journey with Hip Dysplasia (In His Mom’s Words)

Jalen has been a miracle since the beginning. We struggled with infertility and experienced four miscarriages over five years before he came into our lives. Each pregnancy took nearly a year to achieve, and each time, we lost the baby. During my pregnancy with Jalen, I was constantly terrified of miscarrying and prayed every day for his safe arrival. We had a C-Section scheduled for November 1, 2013, because Jalen was in a breech position. The moment I saw him and heard his cry, I felt an immense relief. He was finally here, safe and sound, and I could breathe again. That relief lasted for about a minute before I felt the fear creep back in again. I watched his newborn examination, I remember noticing they didn’t bring him over to me as quickly as I expected. The providers were focusing on his legs, and more and more of them […]

Page 2 of 31

Page 2 of 31

Page 2 of 31