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Braulin’s family found out about their son’s diagnosis during Gissette’s pregnancy. Gissette noticed that her local doctor was sending her to do more sonograms and measurements than she had for her previous pregnancies, making Gissette nervous. It was during this time that her care team informed her that Braulin was diagnosed with dwarfism. After receiving the diagnosis, Gissette decided to explore new care options with experts that specialized in dwarfism. “In my country, the Dominican Republic, there wasn’t much information about how to treat or care for a child with dwarfism,” shares Gissette. “I had a lot of questions but no answers. This is when my journey of looking for answers on the internet started.” Through her research, Gissette was able to connect with other parents navigating dwarfism and Little People of America. Once Braulin was born, Gissette took several trips to the United States with Braulin to receive specialized […]

12-year-old Karlee was riding her bike with her brother and cousin when a sudden mishap sent her tumbling to the ground, her left wrist bearing the brunt of the fall. The impact was immediate, and the pain was intense. “When I fell, I landed on my left wrist and felt a sharp pain in my arm,” Karlee recalls. After the accident, a trusted family member recommended they see Dr. John Lovejoy at Nemours Children’s Hospital, Florida. “All of my doctors and nurses at Nemours were really nice and made sure I was comfortable,” Karlee shares. From the moment she arrived, the team at Nemours took a compassionate approach, ensuring that Karlee felt at ease and understood every step of the process. “Dr. Lovejoy helped me understand what bones I broke and how they planned to fix them,” Karlee says. The detailed breakdown of her injuries and the treatment plan provided […]

At Nemours Children’s Health, our nursing staff is integral to our mission of providing exceptional care to our patients and families. Jenny Pfieffer, a Clinical Nurse Specialist in our Pediatric Diabetes Center, embodies the dedication, compassion, and innovation that defines our nursing team. With over 20 years of experience, Jenny has made a lasting impact on the lives of countless children and families. Inspired by her mother’s belief that “the sky is the limit,” Jenny began her nursing journey in pediatric emergency care. Her work was driven by a deep love for helping others and making a difference. After relocating to Nemours Children’s Health, Jacksonville from Delaware, she transitioned into nursing administration and eventually found her calling to return to the bedside as a Clinical Nurse Specialist at the Diabetes Center. In this role, Jenny helped create a transition program that supports adolescents moving from pediatric to adult diabetes care. […]

At 13 years old, Vincent found himself facing a painful and unexpected health challenge. What began as a nagging low back pain quickly escalated when he noticed blood in his urine. Alarmed, his family took him to urgent care, where the initial tests confirmed the presence of blood but also revealed a more serious issue: a kidney stone. The urgent care team, recognizing the severity, referred them to the Nemours Children’s Health, Lakeland and then to the hospital in Orlando for further evaluation. “I was nervous about the wait time, but their staff worked to fit us in quickly,” says Vincent’s mom, Jessica. “From the beginning, they were responsive and attentive.” The pain Vincent was experiencing disrupted every aspect of his daily life. “He couldn’t rest, enjoy his normal activities, or even feel comfortable sitting or lying down,” Jessica explains. “It was also very stressful for me as a parent […]

Peter, a child with Down syndrome adopted from Hong Kong at the age of 3, has faced numerous health challenges throughout his life. His journey, including multiple surgeries and comprehensive care, is a testament to the importance of dedicated medical support. Peter’s health issues were first identified when his parents noticed he wasn’t thriving. After consulting several specialists, a podiatrist with training at Nemours Children’s referred them to Nemours Children’s Health. After several tests, Peter received a critical diagnosis: his C1-C2 vertebrae were not fused, posing a significant risk to his spinal cord. In September 2017, Peter underwent a lifesaving C1-C2 fusion surgery performed by Dr. William Mackenzie and Dr. Jeffrey Campbell at Nemours. Following the surgery, Peter showed remarkable improvements in various areas, including potty training, communication, and education. However, his journey was far from over as Peter was still experiencing complications with his foot. Further examinations with Dr. […]

During an annual scoliosis screening at Sayuri’s middle school, one of the nurses noticed something unusual about her back. “I remember the nurse checking my back and pointing out that I twisted more to one side, and there was asymmetry with one side rising higher than the other,” Sayuri shares. “She told me that the case is most likely mild or moderate, as the condition was common and those of a higher severity were rare. I was sent home with a letter to my parents to get my back checked.” Sayuri’s initial X-rays confirmed the nurse’s suspicions. “When I got my x-rays done, I was told that I had moderate scoliosis, with a recommendation for a back brace to keep the curve from progressing,” says Sayuri. The diagnosis of adolescent idiopathic scoliosis, characterized by a severe S curve, meant that her life would require some adjustments. As Sayuri grew older, […]