Our precious newborn, Lottie was the cutest bundle of joy we could have ever imagined. At just weeks old, our pediatrician noticed a heart murmur at her routine visit. We had no idea until a visit to the Nemours Children’s Cardiac Center in Delaware that she had any cardiac issues whatsoever. After an echocardiogram, Lottie was diagnosed with Tetralogy of Fallot (TOF). Her diagnosis included TOF with valvar and subvalvar pulmonary stenosis, with large secundum ASD and additional posterior muscular VSD. After we received Lottie’s diagnosis, we were very anxious, knowing our child could have “TET spells” a condition where she would have had lack of oxygen and blood to her organs, including her brain. Constant monitoring and always watching for any signs, knowing that her condition was inevitably going to worsen. As a nurse, I knew immediately she would need open heart surgery and I felt like my whole world came […]