Guest Contributor, Author at Nemours Blog - Page 3 of 6

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Dynamic Dan!

This blog post is written by Amy, the mother of Dan, a mucopolysaccharidosis (MPS) patient who passed away in 2016 at the age of 19. Amy is a Nemours nurse and her son’s story inspires us and others every day. When Dan was born in September 1996, we were told he was a healthy baby. He joined his sister, Haley, who was 2 years old and we thought our lives were perfect. We had this sweet little family with a precious little girl and strapping baby boy. We had just moved to a new house, both had good jobs, life was good. As Dan developed, he hit all his milestones except for one; he wasn’t talking by the age of 2. He had about 20 ear infections in his first 2 years of life and the pediatrician thought his lack of language was due to him not hearing well. We went to an ENT at […]

Expert Question and Answer

Expert Q&A: Osteogenesis Imperfecta (OI)

Questions about osteogenesis imperfecta (OI), or “brittle bone disease,” are answered by pediatric orthopedics experts at Nemours Children’s Health. Q: When should people with OI get rods in the bones in the legs? A: We view realigning and rodding the bones in the legs, femurs and the tibias as a way to address deformity or bowing that is interfering with each patient’s motor development or causing recurrent fractures. We feel there is no minimum age, this is something that we really do value, continually assessing on an individualized basis to help each patient reach their potential. Q: How would you describe the use of orthotics in patients with OI? A: The word orthotics generally refers to all types of braces or things we put on patients’ arms or legs to help them function better. We use them on a case-by-case basis. Years ago we used to use heavy long leg […]

Expert Question and Answer

Expert Q&A: COVID-19 Vaccine for Kids

In this video, recorded on June 2, 2021, Kenneth Alexander, MD, PhD, Division Chief, Infectious Diseases at Nemours Children’s Hospital, and April Novotny, RN, MSN, CEN, CENP, Chief Nurse Executive and Vice President of Clinical Services at Lakeland Regional Health, share the latest updates on the COVID-19 vaccine for kids, as well as insights on how COVID-19 has been impacting children and what parents can do to help their children have a safe summer and a successful return to school in the fall. Learn more about: How COVID-19 is impacting kids today How to talk with your teen about the COVID-19 vaccine Why your child shouldn’t get the COVID-19 vaccine at the same time as routine vaccines Tips for safely rejoining society after being vaccinated If you have a question for Dr. Alexander, post it in the comments section on Facebook. If my child already had covid, do they still need the […]

The bridge to a brighter future

The bridge to a brighter future

When Erin Pitts faced spinal surgery as a teen, she never imagined it would impact her life in other ways. Diagnosed with scoliosis at a young age, initially the care plan for the Jacksonville, Fla., resident was to pursue a non-surgical approach to correct the curves in her spine using a back brace. When her complex scoliosis proved resistant to treatment, however, surgery became the best option for long-term results. The experience ended up changing not only her health, but also her career trajectory. Pitts first learned of her condition in the sixth grade, when she began experiencing intense lower back pain. As her condition gradually began limiting her daily activities, her mom made an appointment with her pediatrician. He referred her to Nemours for an orthopedic assessment, where she became a patient of Eric Loveless, MD, department chair of orthopedics at Nemours and a board-certified pediatric surgeon who performs […]

Expert Question and Answer

Expert Q&A: Vascular Anomalies

In this Q&A, pediatric ENT physician Steven Andreoli, MD, and pediatric interventional radiologist, Craig Johnson, DO, discuss and answer parents’ questions about vascular anomalies. The experts begin by discussing common types of vascular anomalies. An infantile hemangioma is a type of birthmark that happens when a tangled group of blood vessels grows in or under a baby’s skin. Infantile hemangiomas become visible in the first few days to weeks after a baby is born. Hemangiomas that are visible at birth are called congenital hemangiomas. They grow differently and are treated differently. Infantile hemangiomas are much more common than congenital hemangiomas. There are two main types of infantile hemangiomas: infantile and deep. A lymphatic malformation is a clump of abnormal lymph vessels that form a growing, disorganized, spongy cluster of cysts. Lymphatic malformations appear as masses (unusual growths), but they are benign (not cancerous). A venous malformation is a place in the body where veins haven’t developed in the usual […]

Expert Question and Answer

Expert Q&A: Sleep Apnea

During this Q&A session, pediatric otolaryngologists, sometimes called ENTs (ear, nose, and throat specialists), Nicole Aaronson, MD, and Steven Andreoli, MD, discuss sleep apnea. Q: Are there any connections between sleep apnea and heart conditions? A: Some of the rare complications of long-term sleep apnea can impact the heart. Children with congenital heart diseases are monitored very closely for sleep apnea symptoms to avoid extra strain on the heart during sleep. A child that is showing signs of heavy breathing, disordered or irregular breathing, should have a sleep study.  Q: How do I know if my child needs a sleep study? A: If your child is younger than 2 years old and shows signs of sleep apnea symptoms, they should have a sleep study. Also, obese kids might need a sleep study.  Q: Are there any differences between adult and children’s sleep apnea? A: There is some crossover there, but […]

Expert Question and Answer

Expert Q&A: Cerebral Palsy

During this Q&A session, Kathleen Miller-Skomorucha, occupational therapist, and Carrie Sewell Roberts, social worker, answer questions about maximizing the potential of your child with cerebral palsy (CP) by working with your care team to set goals. Carrie is a social worker and mom to a 13-year-old daughter with CP. Throughout this discussion, she shares with us different examples of what has worked for her family, but also a plethora of resources families can use for their own means. When you’re thinking about setting goals for your child’s future, an important first step is to set a framework. For example, there’s a structure called “Person-Centered Future Planning.” She talks about ways families can use resources like the ones below to work with their child and care team to create shared goals. Kathleen is an occupational therapist who treats patients with CP. She shares her unique perspective as a therapist, discussing goals for therapy. It’s important […]

Expert Question and Answer

Expert Q&A: Kids and COVID-19

During this Q&A session, pediatric cardiologists Gul Dadlani, MD, and Deepika Thacker, MD, answer questions from parents about kids and COVID-19. While COVID-19 transmission rates in children have been lower than adults, it can still be significant for your child. Symptoms are typically milder in children, and children can also be asymptomatic. Q: How will the COVID-19 variants affect children? A: Multiple variants of the virus are circulating globally. The UK variant (B.1.1.7) is reported to be more contagious and serious. Cases caused by the South African variant (B.1.351) and Brazilian variant (P.1) were reported in January 2021. There have been no signs of more serious disease in children caused by these variants yet, but only time will tell. Visit cdc.gov to stay up to date on the latest information about variants of the virus that causes COVID-19. Q: Why are the rates rising in kids? A: As rates of COVID-19 cases […]

Expert Question and Answer

Expert Q&A: Adenoids & Tonsils

Dr. Nicole Aaronson and Laura Eisel, PA-C, discuss and answer questions about adenoids and tonsils. Watch this video to learn more about: What adenoids and tonsils do Symptoms and treatment of enlarged adenoids Symptoms and treatment of tonsillitis Adenoidectomies and tonsillectomies View the video on Facebook to leave a question in the comments section.

Curve Alert

Curve Alert: Don’t Miss That Scoliosis Screening

Because of the COVID pandemic, you may be putting off visits to your child’s pediatrician. But a missed well visit could mean missing a scoliosis screening. What is scoliosis? Scoliosis is an S-shaped curve in the spine.  It is a condition that occurs equally in boys and girls; however, the curve tends to increase more often in girls. Small curves usually don’t cause problems. But large curves can cause health problems like pain or trouble breathing. What causes scoliosis? The most common form of scoliosis is idiopathic which means “cause unknown.” Kids of any age — even infants — can have idiopathic scoliosis. But it’s usually found when a child begins going through puberty. How do you know your child might have scoliosis? Most often, parents, pediatricians or school nurses may notice one or more of the following signs of scoliosis: One shoulder blade more prominent Ribcage is shifted to one […]

Expert Question and Answer

Expert Q&A: Returning to School Sports

Dr. Emelynn Fajardo and Dr. Zach Stinson discuss and answer questions about returning to school sports. This broadcast originally aired on Facebook Live.

Nemours Launches “Do Gooders” Program

Nemours Launches “Do Gooders” Program

Each year associates at Nemours Children’s Health participate in Nemours Cares Week, proudly supporting the communities in which we live, work, heal, and play. Nemours associates from across our many locations donate their time, resources, and funds to help those in our communities who need it most. This year, even with COVID restrictions firmly in place, we were still able to package 1,600 pounds of food and over 2,600 essential items, all donated by Nemours associates. We sent more than 600 bags of items to our community partners and raised money through virtual food drives, providing over 12,000 meals to help fill the needs gap. New this year, Nemours launched the “Do Gooders” Program, which aims to support children who want to give back to their communities while also supporting self-esteem and creative thinking. Two incredibly creative young ladies were chosen this year, who saw their civic project come to life! […]

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Page 3 of 6