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Realizing the Promise of Telehealth for Children , Powered by Nemours Children's Health System

Realizing the Promise of Telehealth for Children

BY: Mayra Alvarez, The Children’s Partnership Debbie Chang, Nemours Children’s Health System Deb Watson, Winter Park Health Foundation Pediatric providers, health centers, schools and school districts, school nurses, parents, child care centers, state government officials, national associations, non-profit advocacy organizations, health plans, and academic institutions filled the room at GuideWell Innovation Center in Orlando on January 26. The purpose? Convened by The Children’s Partnership, Nemours Children’s Health System, and the Winter Park Health Foundation, this diverse group of experts in children’s health traveled to Florida from thirteen different states to brainstorm on ways telehealth in school and child care settings can improve care and access for children, and to lay the groundwork for building a Roadmap for Action. As we prepared for the day, a key topic of conversation was the thriving school and child care telehealth programs in Delaware, Florida, New York, North Carolina, and Texas.  The telehealth programs […]

The Flu–When to Go From R&R to the ER

There are steps you can take to avoid the flu coming into your house. While there’s no guaranteed way — including being vaccinated — to have 100% protection from the flu, there are things you and your family can do to make spreading the flu less likely: Wash your hands well and often with soap, especially after using the bathroom, after coughing or sneezing, and before eating or preparing food. Never pick up used tissues. Don’t share cups and eating utensils. Stay home from work or school when you’re sick with the flu. Cover your mouth and nose with a tissue when you cough or sneeze, then put it in the trash. If a tissue isn’t available, cough or sneeze into your upper arm, not into your hands. But what if your child does catch the flu? When should you switch from R&R to the ER? Nemours pediatric pulmonologist Dr. Chris Makris, […]

Taking Lessons from Crohn's Disease | Promise, powered by Nemours Children's Health System

Taking Life Lessons from Crohn’s Disease

Contributed by Darcy Galnor, whose daughter is a patient of Nemours Children’s Specialty Care, Jacksonville. The morning our daughter was diagnosed with Crohn’s Disease started like any other. We woke up as just a regular young(ish) couple with two kids, jobs and life’s typical stressors. (I guess maybe not entirely typical, unless taking our 5-year-old daughter for a colonoscopy is considered an everyday event). We’d been chasing the cause of her diarrhea for months, maybe even years. Dairy? Nope. Gluten? Nope. Strawberries (her favorite food)? Nope. As we sat in the waiting room, anxiously watching for the doctor to tell us the results, we attempted to distract ourselves with work. Both of us had tablets rested on our thighs, cell phones on the arms of our chaisr. My husband downing coffee. Me biting my nails. Then, the doctor appeared. “She has inflammation throughout most of her GI tract. We’ll wait […]

Precision Medicine Saves Lives: One Family’s Story | Promise: Powered by Nemours Children's Health System

Precision Medicine Saves Lives: One Family’s Story

When one-year-old Piper’s body began to swell one afternoon, her parents thought she was having an allergic reaction. They had no idea that they were about to embark on a journey of rare illness, complex treatments, and advocacy for children’s health. Piper’s parents, Erin and Chris Lee, took their daughter to her pediatrician, expecting a quick diagnosis and an easy solution. But Piper wasn’t allergic to anything. Instead, they learned her kidneys were failing; Piper would have to be admitted to Nemours/Alfred I. duPont Hospital for Children immediately. There, pediatric nephrologists proposed genetic testing for Piper. That’s because, although it was clear that Piper’s kidney function was declining, the cause of her decline wasn’t so obvious. In order to proceed with the best treatment for Piper, her doctors needed to know just what kind of kidney disease they were dealing with. They needed the help of precision medicine, a newer […]

Meet Emmy: An Atrial Septal Defect Success Story | Promise: Powered by Nemours Children's Health System

Meet Emmy: An Atrial Septal Defect Success Story

When Jill’s third child, Emmy, was born with a hole in her heart, Jill wasn’t too worried. Her two older sons also had the condition—called Atrial Septal Defect (ASD)—and theirs had cleared up over time. In children with ASD, blood recirculates inside the heart, and doesn’t reach the rest of the body as well as it should. Dr. Mary Mehta, Pediatric Cardiologist at Nemours Children’s Specialty Care, Pensacola, worked with the family to track Emmy’s condition. It didn’t improve, and it soon became clear that Emmy would need complex and invasive surgery to repair the hole in her heart. When Emmy was just three years old, the right side of her heart began to enlarge, presenting more risks: asthma-like symptoms and other coronary issues.  It was time to prepare for open heart surgery. Emmy’s family met with Dr. Peter Wearden, Cardiothoracic Surgeon at the Nemours Cardiac Center at Nemours Children’s Hospital […]

Life-Changing Spine Surgery Expertise From Overseas, Promise, Powered by Nemours Children's Health System

Life-Changing Spine Surgery Expertise From Overseas

For the past year, Dr. Peter Gabos, pediatric spine surgeon at Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., has been traveling to Belize City, Belize, with Spine Overseas. This nonprofit organization brings together healthcare, education, and technology in order to provide contemporary spine surgery and care in places where this care doesn’t currently exist. Through the generous support of multiple medical device and equipment companies, Spine Overseas has been able to bring state-of-the-art technology to Central America. “I joined Spine Overseas when adult spine surgeon [and Spine Overseas cofounder] Dr. John Williams told me they needed a pediatric surgeon to help kids with severe spinal deformities in Belize City,” says Dr. Gabos. “When I read their mission statement, I jumped at the opportunity.” Meeting a Friend for Life One child Dr. Gabos recently helped is 8-year-old Alex, who was previously diagnosed with asthma due to significant difficulty breathing. But […]

Donate Blood: Why Should You Give?, Promise, Powered by Nemours Children's Health System

Donate Blood: Why Should You Give?

Did you know that every three seconds, someone in the United States needs a blood donation? Even though nine out of 10 people will need blood products in their lifetime, less than 10 percent of the eligible population opts to donate blood. The thing is, regular blood donations by healthy people ensure that safe blood will be available whenever and wherever it’s needed — for children and adults alike. And there’s a constant need for blood supply because blood can only be stored for a limited time before use. How Does It Help? A decision to donate your blood can save a life — or even several lives — if blood is separated into its components (red blood cells, platelets, and plasma), which can be used individually for patients with specific conditions. Red Blood Cells Red blood cells, made in bone marrow, contain hemoglobin and carry oxygen to the body. So who […]

Bald Is Beautiful: Losing Locks for Childhood Cancer

A brave contingent of donors had their heads shaved to raise funds and awareness for childhood cancer at a recent Nemours-sponsored St. Baldrick’s Foundation event, held at Iron Hill Brewery on the Wilmington Riverfront. St. Baldrick’s supports the Nemours Center for Cancer and Blood Disorders at Nemours/Alfred I. duPont Hospital for Children by supplying all new patients and their families with a “day pack” filled with bilingual resource materials to help guide them through the overwhelming experience of a childhood cancer diagnosis. Among the “shavees” was Candice Morris, a home health nurse from Magnolia, Del., who was inspired by one of her young patients’ bravery in the face of cancer. About 30 minutes after Candice submitted to the razor, her mother and son went for it, too! Many thanks to the volunteer stylists from Currie of Wilmington, Iron Hill for providing a private room, and event organizers/Nemours oncology nurses Nicole Roselli and […]

Nemours Patients Sparkle at “Fire and Ice” Prom

The guests arrived at the Nemours/Alfred I. duPont Hospital for Children’s 2016 “Fire and Ice” prom in glittering gowns and sharp suits, groomed to perfection and shivering a little on a breezy April evening. They exited classic cars that had chauffeured them to the hospital, letting their illness take a back seat on this festive evening. They danced, posed for photos, laughed and reveled with nearly 100 fellow Nemours patients who are facing or recovering from serious health concerns. The Nemours prom, a labor of love for dedicated staff and volunteers, is now in its fourth year. Teens with cancer, sickle cell disease, heart and kidney disease, and other conditions are treated to a themed extravaganza that rivals any high school prom. An outpouring of community support ensures the guests enjoy a wonderful event at no cost to their families. Dresses, tuxedos, makeup and hair styling, food, decorations, gifts, music and photography are […]

Childhood Cancer Infographic: Hope for a Better Tomorrow

On the heels of the Childhood Cancer Action Days, May 16th and 17th in Washington, D.C., we thought this would be a great opportunity to share our pediatric cancer infographic from the Nemours Center for Cancer and Blood Disorders. Learn More About… Nemours Center for Cancer and Blood Disorders Giving to Nemours

8 Safety Tips for Your Child’s Hospital Stay from the experts at Nemours Children's Health System

8 Safety Tips for Your Child’s Hospital Stay

If your child is in need of a hospital stay, it’s easy to get caught up in the whirlwind of information, emotions and distractions that can come at you at a feverish pace. But your child’s support system should be consistent and calm — and that starts with you and your child’s entire family. National Patient Safety Awareness Week (March 13–19) is the perfect time to proactively think about how you could help your child’s hospital stays be as safe as possible. Here are some tips from Children’s Hospitals’ Solutions for Patients Safety to help prepare you, just in case: Be your child’s patient advocate. Don’t be shy or feel like you can’t speak up. Ask questions about your child’s care, raise any safety concerns, and/or ask caregivers to double-check their charts before they act. Write down your questions to make sure caregivers address them. Maybe say something like: “Excuse […]

Welcome to Promise

At Nemours Children’s Health System, we’re always looking for new ways to improve the well-being of all children and families, not just the ones we see in our clinics and hospitals. So, we’ve focused on building a conversation with parents throughout the country, to address the common (and not-so-common) health issues that so many of us face. We decided to do what any forward-thinking children’s health system would: we built a blog. Here, you’ll find wisdom, understanding and practical advice from our physicians and care teams. It’s all meant to address your everyday questions, and provide answers you can be confident in. We welcome your input, feedback and discussion, as well. It’s all part of what we’re here for. Get to know our doctors, browse a list of topics, and stop back often. We’ll post new insights on your child’s health every week. You may not always be able to call […]

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