What began as an upset stomach evolved into a journey with Crohn’s Disease for Nemours Children’s patient, Alejandra.
“It all started with an upset stomach that continued over time, immediately after eating, at the age of 8,” shares Alejandra. The persistent discomfort became a daily challenge that began to affect her quality of life. “Physical activities also had to be reduced, including physical education (PE), as performance declined considerably. Psychological aspects also erupted, with certain levels of anxiety.”
From the moment they walked through the doors of Nemours Children’s Hospital, Florida, Alejandra and her family found themselves in capable hands, guided by a team of dedicated specialists. After the family’s recent move from Miami, they were diligent in their search for the best possible care for Alejandra. Their research led them to Dr. Pablo Palomo and the gastroenterology team at Nemours.
The journey to a diagnosis was not straightforward. It required a series of medical studies, including endoscopy, colonoscopy, and MRI, to confirm or rule out the possible diagnosis. Once Crohn’s disease was identified, the treatment plan was swift and effective. Alejandra began receiving Humira (adalimumab), a medication that quickly alleviated her symptoms. “This improved my quality of life, as the pain, stomach discomfort, and deprivation of certain “common” foods negatively impacted my overall well-being,” says Alejandra.
“The experience with Nemours services and its staff exceeds any expectations,” says Alejandra. “The friendliness of its employees, as well as the genuine interest in helping patients, are some of the characteristics that distinguish Nemours. Every patient wants to be listened to and cared for with compassion. This has been precisely what we have found at Nemours. From the lobby to the physicians, nurses, and technicians, everyone contributes greatly to the high quality of service. The care provided by Dr. Palomo and Nemours in general has contributed extraordinarily to my recovery and has given me back a quality of life that allows me to successfully carry out my daily activities.”
“We are so proud of Alejandra’s journey,” shares GI Family Support and Advocacy Coordinator, Maria Lester. “She’s been learning about her condition, finding her voice, and pushing through the tough times, all while doing it with her big, beautiful smile. Her strength and positivity inspire everyone around her. Her amazing, dedicated parents are her biggest supporters, always there with so much love and care. Our team is honored to be a part of their journey.”
With a new sense of direction, 13-year-old Alejandra is now setting her sights on the opportunities that lie ahead. “Going through this experience, where my health was affected, but later restored thanks to God and treatment at Nemours, has led me to consider studying medicine and helping others just as they have helped me,” she shares. “I am more aware of the importance of maintaining a balanced diet and being intentional about taking care of my body and overall well-being.”
Reflecting on her journey, Alejandra offers this advice to others who may be facing similar challenges, “The most important thing when we go through adversity is to seek help. That’s what healthcare professionals and specialists are for. Receiving a diagnosis that radically changes our lives can be overwhelming. However, it’s essential to seek information and be diligent with ourselves, and our loved ones. We must set realistic goals that help us overcome obstacles. Parental support is vital because treating a medical condition isn’t limited to the help of a healthcare institution, but also to family care and self-respect. My parents have been part of the entire process and are involved in my treatment and recovery, which includes physical activity, learning more about recommended foods and nutrients, and maintaining a healthy emotional state. Stay informed about your condition and consider the different options available for your care and well-being. If I’ve been able to manage my condition, you can too.”
