Nemours Blog - Page 19 of 34 - Powered by Nemours Children's Health System

Living a Full Life with Osteogenesis Imperfecta: Adira’s Story

Contributed by Adira’s mom Ashley. The first inkling that something wasn’t right came at my first ultrasound. My baby’s femur was bent at a 90-degree angle when it was supposed to be straight. A subsequent ultrasound showed fractures in her skull and irregular shaped ribs.  I was referred to a large prenatal referral center for an amniocentesis that confirmed a diagnosis of Osteogenesis Imperfecta (OI).  Consultations with the prenatal group suggested that this form of OI was very severe and incompatible with life.   I was devastated and searched the internet to find help. Miraculously, I connected with a mother who had been in a similar situation.  She referred me to the Osteogenesis Imperfecta Program at Nemours Children’s Hospital, Delaware.  We met the entire OI team the same day and geneticist, Dr. Michael Bober told us, “I promise you that we will do everything we can for your baby.”  Additional […]

A Heart to Remember: Vea’s Story

For the Tsoflias family, the past year has been a roller coaster of emotion, disbelief, heartbreak and ultimately, hope. It all began when a routine 20-week ultrasound revealed an abnormality. Brittany, an expectant first-time mom, was referred to Nemours Children’s fetal cardiologist, Shubhika Srivastava for a fetal echo and soon learned that her baby had a very rare congenital heart defect called Ebstein’s Anomaly.  The defect is linked to an abnormality in the tricuspid valve, causing it to leak and if left unchecked, would result in heart failure. To correct the defect, surgery would be required.  Knowing that her baby would need highly specialized heart care immediately after birth, Brittany delivered Vea through the Advanced Delivery Program at Nemours Children’s Hospital, Delaware. “What an amazing experience. I felt special, says Brittany, because everyone went above and beyond for me.” Recognized as a surgical expert in this type of complex heart […]

Eating the Rainbow

Eating the Rainbow

We know eating fruits and veggies can provide tons of health benefits and are an important part of a balanced diet. But why is it so important to “eat the rainbow?” Fruits and veggies are dense in phytochemicals and micronutrients – vitamins and minerals – that our bodies need to function properly and grow, but not all fruits and veggies are equal. Depending on the color, different nutrients may be more abundant in some fruits and veggies than in others. Let’s explore how eating the rainbow can provide our bodies with different nutrients and what they can do for us!   Red Orange/Yellow Green Blue/Purple White/Brown Examples Raspberries, strawberries, tomatoes, red bell peppers, cranberries, and watermelon Oranges, orange bell peppers, carrots, mango, yellow bell peppers, yellow squash, lemons Leafy vegetables, broccoli, kale, kiwi, avocado, green grapes, cucumbers, peas, zucchini Blueberries, blackberries, eggplant, plums, purple cabbage, purple grapes Bananas, cauliflower, ginger, […]

The Emotional Rollercoaster of a Cleft Lip and Palate Diagnosis: Fred’s Story

It was a wonderful yet traumatic time in our lives.  Even with the support and love from our families and friends, we still felt alone and confused. Who could possibly know what it’s like to be told that your beautiful baby boy will be born with a cleft lip and palate?   We were referred to Dr. E.J. Caterson, Chief, Plastic Surgery at Nemours Children’s Hospital, Delaware. During our first visit, Dr. Caterson shared with us that his passion for craniofacial surgery had been influenced by his youngest son who had been born with a cleft lip.  We immediately felt heard and understood on so many levels. His soft-spoken and kind demeanor, along with his genuine concern calmed our fears. His detailed surgical plan inspired confidence.  We trusted him.  Fred had his first corrective surgery at 4 months. He also had a GPP, which is not done at many institutions. The GPP […]

Fire Safety: What to Know in Case of Fire

Fire Safety: What to Know in Case of Fire

Did you know that winter months are peak time for fire-related deaths? In the event of a fire, you may have as little as two minutes to escape. Home and apartment fires can start and spread quickly. It is important to create a fire escape plan and practice it regularly with your family. Create a Fire Escape Plan The best way to start planning a fire escape plan according to the National Fire Protection Association (NFPA) is to draw a map of your home or apartment showing all doors and windows. The NFPA says families should: Plan two ways to escape from each room. Make sure all doors and windows leading outside open easily. Identify secondary routes: a window onto an adjacent roof or a collapsible ladder from a second-floor window. If you live in a multi-story building, plan to use the stairs – never the elevator. Designate an outside meeting […]

Holidays and the Pandemic: 5 Ways to Avoid a Recipe for Weight Gain

Holidays and the Pandemic: 5 Ways to Avoid a Recipe for Weight Gain

Kids tend to gain more weight during extended breaks from school, like over the summer. We’ve seen a similar trend when COVID-19 restrictions were in place. A recent report from the Centers for Disease Control and Prevention (CDC) showed kids gained weight more quickly during the early months of the pandemic as compared to the previous year. There are many reasons why, but it seems without the structure of school many kids eat more and move less. The COVID-19 pandemic really messed up our daily routines. School closures, remote work, and stay-at-home orders meant going to bed later, eating at different times, snacking more, being less active, and spending more time in front of screens. This fall, things started to get back to normal as children returned to school and other activities. But just as we have gotten back into our routines, here come the holidays. Holiday weight gain is […]

Advocating for Maternal and Child Health – Why It’s Essential

Advocating for Maternal and Child Health – Why It’s Essential

About 700 mothers die each year from pregnancy-related causes in this country, with about 60% of these deaths considered to be preventable. Black mothers are 3-4x more likely to die from pregnancy-related complications than White women, and are at higher risk of giving birth to pre-term babies. Black babies are 2x more likely to die as infants than White babies. The Nemours National Office is advocating on Capitol Hill to address these disparities to help give all moms and babies the opportunity to be healthy. Along with March of Dimes (MOD), Children’s Hospital of Philadelphia (CHOP) and the Ann & Robert H. Lurie Children’s Hospital of Chicago, we are partnering on the Hot Topics in Neonatology: 2021 Cindy Pellegrini Maternal & Child Health Advocacy Event. This virtual event honors Cindy Pellegrini who passed away in 2019, leaving behind a legacy as a tireless advocate for maternal and child health. It […]

When COVID-19 Hits Home

When COVID-19 Hits Home

Well, it happened. After almost two years of the pandemic, COVID-19 has found its way into our house. As an emergency room pediatrician turned medical writer and editor for Nemours KidsHealth, I thought I was as prepared as anyone can be. I read and write about COVID-19 every day. But even with all that experience I still learned more than I ever wanted to know in the last four weeks, which felt like four months. As mom to two boys ages 10 and 6 years, I learned that having a child with COVID-19 is hard (and a little bit scary), but planning, patience and creativity can help you come out on the other side. Here is what I learned. Don’t Play the Blame Game We spent the pandemic having a healthy respect for the virus. We followed all the guidelines. We didn’t eat at restaurants, we had outdoors Thanksgiving and […]

Gathering Safely for the 2021 Holidays

Gathering Safely for the 2021 Holidays

As the holidays approach, you might have mixed feelings. On the one hand, who isn’t excited about gathering with family and friends for traditional holiday meals and celebrations? On the other, the COVID-19 pandemic is not over, and you might be worried the coronavirus will spread even more as people gather for festivities. Fortunately, you and your family members can reduce the risk of getting infected with coronavirus. Virtual gatherings are still the safest way to get together. But if your family will be meeting other families in person this year, the CDC has provided tips for keeping safe as we celebrate: Get vaccinated. The best way to protect people both young and old from getting very sick or even dying from COVID-19 is to vaccinate everyone who is eligible. This includes everyone ages 5 and up. And for people over 18 who are already fully vaccinated, a booster shot […]

Ashley's Epilepsy Story -- From Fear to Fearless

Ashley’s Epilepsy Story — From Fear to Fearless

It was like any other ordinary day for 13-year-old Ashley. In eighth grade at the time, Ashley, from Washington Township, New Jersey, came home after a long day at school, hoping for a quick nap before heading to youth group that night. She headed to her fridge to grab a drink, and the next thing she remembers is waking up with paramedics surrounding her. “I was placed on oxygen and had an IV in my arm,” says Ashley, now 24. “The only thing that came to my mind was fear.” Ashley learned from doctors at her local hospital that 1 in 26 people may have a seizure within their lifespan, epilepsy related or not. After her electroencephalographs (EEGs) and an electrocardiography (EKG) results came back normal, Ashley and her family waited to see if she had any more seizures to determine if it might be epilepsy. “I had so much […]

Mindful Snacking

Mindful Snacking

When selecting a snack, it is important to think about a few key factors including timing, hunger level, portion size and nutritional value. Timing As a rule of thumb, it is helpful not to go more than about 4 hours without eating, even if it is something small. Long periods of time without eating can increase hunger later in the day, making it challenging to practice portion control when you finally get a chance to eat. It is also very challenging to make healthy choices when you are feeling extremely hungry. Snacks help to bridge the gap between meals and can help lessen hunger to an appropriate level prior to the next meal. Be cautious of grazing! Grazing is a term used to describe constant snacking. It is important to allow time (approximately 2-4 hours) between meals and snacks to give the digestive system a break. Most children should aim […]

Tips for Needle Anxiety

Tips for Needle Anxiety

With the Pfizer COVID-19 vaccine approved for ages 5-11, there are going to be a lot more young and brave individuals stepping up to receive their shots. But what about those who have trouble with the thought of coming face to face with a needle? Even though it may seem scary, the more people that receive the vaccine, the closer we get to herd immunity. Here are some tips and tricks to ease the fear of needles. Distract yourself while you’re waiting. Bring along a game, book, music, or movie — something you’ll get completely caught up in so you’re not sitting in the waiting room thinking about the shot. Some doctors’ offices schedule “shot clinics” where they do nothing but give shots so the wait time is shorter. Concentrate on taking slow, deep breaths. Breathe all the way down into your belly. Deep breathing can help people relax — and concentrating on […]

Page 19 of 34

Page 19 of 34

Page 19 of 34