As conflicts in Ukraine escalate, children may see and hear things about the crisis through news headlines, social media, friends discussing the topic at school, or overheard conversations from adults. Situations like this can lead to feelings of uncertainty, anxiety, and fear. Children might have questions about the images, stories, and conversations they are seeing and hearing. Parents and caregivers should address them. Here are some tips on how to approach these conversations with children: Find Out What They Know Ask your kids questions to find out what information they already know about. They may have formed a completely different picture of the situation than you have. Take the time to listen to what they think, and what they have seen or heard. Consider your child’s age and development. Younger kids may not grasp the difference between fact and fantasy. For most kids, it’s not until they are 7 or […]

Contributed by Skyler’s mom Danielle. At my 20-week ultrasound, I couldn’t wait to learn if I was having a boy or a girl.  It was gender reveal day, but it also turned out to be the day I learned that my little girl, Skyler, would be born with a cleft lip. Before meeting Dr. Edward J. Caterson, a cleft surgeon expert at Nemours Children’s Hospital, Delaware and, his nurse practitioner, Kim Giordano, MSN, CPNP- BC, CORLN, I was so scared, fearing the worst. But as soon as I met them, I felt a huge sense of relief.  Most importantly, Dr. Caterson and Kim were always there for me when I needed them most—to answer my questions or to just reassure me.   Quite surprisingly, when Skyler was born she had no trouble latching on and breast-feeding despite her cleft lip. She has continued to surprise us, with her resiliency after […]

Contributed by Adira’s mom Ashley. The first inkling that something wasn’t right came at my first ultrasound. My baby’s femur was bent at a 90-degree angle when it was supposed to be straight. A subsequent ultrasound showed fractures in her skull and irregular shaped ribs.  I was referred to a large prenatal referral center for an amniocentesis that confirmed a diagnosis of Osteogenesis Imperfecta (OI).  Consultations with the prenatal group suggested that this form of OI was very severe and incompatible with life.   I was devastated and searched the internet to find help. Miraculously, I connected with a mother who had been in a similar situation.  She referred me to the Osteogenesis Imperfecta Program at Nemours Children’s Hospital, Delaware.  We met the entire OI team the same day and geneticist, Dr. Michael Bober told us, “I promise you that we will do everything we can for your baby.”  Additional […]

For the Tsoflias family, the past year has been a roller coaster of emotion, disbelief, heartbreak and ultimately, hope. It all began when a routine 20-week ultrasound revealed an abnormality. Brittany, an expectant first-time mom, was referred to Nemours Children’s fetal cardiologist, Shubhika Srivastava for a fetal echo and soon learned that her baby had a very rare congenital heart defect called Ebstein’s Anomaly.  The defect is linked to an abnormality in the tricuspid valve, causing it to leak and if left unchecked, would result in heart failure. To correct the defect, surgery would be required.  Knowing that her baby would need highly specialized heart care immediately after birth, Brittany delivered Vea through the Advanced Delivery Program at Nemours Children’s Hospital, Delaware. “What an amazing experience. I felt special, says Brittany, because everyone went above and beyond for me.” Recognized as a surgical expert in this type of complex heart […]

We know eating fruits and veggies can provide tons of health benefits and are an important part of a balanced diet. But why is it so important to “eat the rainbow?” Fruits and veggies are dense in phytochemicals and micronutrients – vitamins and minerals – that our bodies need to function properly and grow, but not all fruits and veggies are equal. Depending on the color, different nutrients may be more abundant in some fruits and veggies than in others. Let’s explore how eating the rainbow can provide our bodies with different nutrients and what they can do for us!   Red Orange/Yellow Green Blue/Purple White/Brown Examples Raspberries, strawberries, tomatoes, red bell peppers, cranberries, and watermelon Oranges, orange bell peppers, carrots, mango, yellow bell peppers, yellow squash, lemons Leafy vegetables, broccoli, kale, kiwi, avocado, green grapes, cucumbers, peas, zucchini Blueberries, blackberries, eggplant, plums, purple cabbage, purple grapes Bananas, cauliflower, ginger, […]

It was a wonderful yet traumatic time in our lives.  Even with the support and love from our families and friends, we still felt alone and confused. Who could possibly know what it’s like to be told that your beautiful baby boy will be born with a cleft lip and palate?   We were referred to Dr. E.J. Caterson, Chief, Plastic Surgery at Nemours Children’s Hospital, Delaware. During our first visit, Dr. Caterson shared with us that his passion for craniofacial surgery had been influenced by his youngest son who had been born with a cleft lip.  We immediately felt heard and understood on so many levels. His soft-spoken and kind demeanor, along with his genuine concern calmed our fears. His detailed surgical plan inspired confidence.  We trusted him.  Fred had his first corrective surgery at 4 months. He also had a GPP, which is not done at many institutions. The GPP […]