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Nemours Children’s Health, Florida

From Pain to Pirouettes: Katie’s Story

In the world of competitive dance, every movement is crucial. For Kiara “Katie” Rodriguez, her dance journey took an unexpected turn when, at the age of 15, when she began experiencing hip pain. What felt like a pulled muscle led her to Nemours Children’s Health, Celebration, where she met with her pediatrician, Dr. Janette Magarino. “We all agreed it might be a pulled muscle,” says Katie. “So, we were told to rest and ice the area and take an anti-inflammatory. However, being the type to not complain, I would just dance through the pain.” As a dedicated dancer, Katie spends five hours a day, six days a week perfecting her craft. As she continued to dance, the pain got worse. “When I was home, the pain was unbearable and at times would leave me screaming or crying,” says Katie. “I couldn’t deal with the pain so I often would lose […]

22q Awareness Day: Jason’s Story

Jason’s story began with a seemingly innocent complaint, ear pain. Concerned for her son, Andrea Salicia vividly remembers the moment she first suspected something was wrong with her son Jason. While feeding him, she noticed that he was twitching, and it didn’t appear to be normal newborn behavior. A few days later, in a terrifying incident, Jason began gasping for air during a feeding, followed by a more severe twitch. Panicked, Salicia rushed him to the Nemours Children’s Hospital, Florida emergency room. It was there that a nurse informed her that Jason’s “twitches” were actually seizures, prompting further investigation. This nurse also thought that he might have a condition called DiGeorge syndrome but didn’t want to say anything until it was confirmed. The medical team then performed a spinal tap and various tests, which led to a diagnosis of 22q11.2 deletion syndrome, also known as 22q or DiGeorge syndrome, at […]

Arianna’s Journey with Bilateral Retinoblastoma (In Mom’s Words)

Para leer este blog en español, haz clic aquí! It all began when Arianna was just one year old. We noticed that one of her eyes was red and had a strange white spot in her pupil. Worried, we took her to her pediatrician, who immediately sensed that something was not right. We were referred to an ophthalmologist and then to a hospital, where she was diagnosed with a large mass in her eye. This mass was pushing her eye outward, so an emergency surgery was performed that same day to remove it. The surgery was successful, or so we thought. However, a few days later, the pathology results delivered the most devastating news: the mass was malignant. It was cancer. Arianna began chemotherapy treatment, going through six exhausting sessions. After that, she was discharged, but unfortunately, proper follow-up was not done to evaluate her other eye. Three years later, […]

Celebrating Erin Baker: A Remarkable PT and Advocate for National Physical Therapy Month

This National Physical Therapy Month, we have the privilege of spotlighting Erin Baker, a Physical Therapis (PT) and Assistive Technology Practitioner (ATP) at Nemours Children’s Hospital, Florida. Amber Yampolsky, Nemours Children’s Rehab Manager, Erin’s co-worker, and one of Amber’s direct reports, shares her perspective on what makes Erin such an outstanding Nemours Children’s Physical Therapy team member. Erin and Amber’s journey began before their time at Nemours, back when they were acquaintances working at a different hospital in Central Florida. However, their professional paths converged when they both joined the rehabilitation department at Nemours Children’s Hospital, Florida. Erin’s journey at Nemours began before Amber’s. She arrived with a clear mission: to specialize in Assistive Technology practice within the rehab department. Shortly after, Amber came to Nemours, determined to make a mark in the field of pediatric inpatient rehabilitation. Erin’s dedication is second to none. She has not only specialized in Assistive Technology […]

Jade’s Scoliosis Story

Jade has always been passionate about dance and yoga. One of her favorite hobbies is practicing yoga with her aunt. When Jade was 11 years old, her aunt noticed that her left rib was bulging out during one of their yoga stretches. This realization, along with Jade’s complaints of back and rib pain, raised concerns for her parents, especially since her mother was diagnosed with severe scoliosis at a young age. Based on her experience, Jade’s mom knew she had to act quickly so she immediately scheduled an appointment with their pediatrician to get a back check. At age 11, Jade was diagnosed with scoliosis and recommended to Nemours Children’s Health, Jacksonville. Jade and her family met with Anna Rambo, MD, an orthopedic surgeon at Nemours Children’s Health, Jacksonville. After their first appointment, they knew they made the right decision in choosing Nemours. They immediately loved everything about Dr. Rambo. […]

Childhood Cancer Awareness Month: Charlie’s Story (In Mom’s Words)

In February 2023, we noticed a sore develop on Charlie’s side. But being a normal 3-year-old little boy, we shook it off as a stick poke or a bug bite from playing outside. As time progressed, not only did the sore get bigger, but Charlie started falling asleep on the couch and experiencing fevers of 102-103 degrees. We took Charlie to Nemours Children’s Hospital, Florida’s Emergency Room in Orlando where the doctors closely examined him before calling in Dr. Alexander, an infectious disease specialist. Dr. Alexander was very kind and helped us think through different ideas of what this could be. They took a biopsy and sent us home on an antibiotic and instructions to follow up with our pediatrician. A week later, there had been no signs of healing. Charlie’s lymph node in his armpit near the wound had become swollen. After following up with his pediatrician two times […]

Aurelia’s Story (In Mom’s Words)

The day before we were admitted to Nemours Children’s Hospital, Florida, my daughter, Aurelia, had had a bit of a cough, a fever, and was vomiting. I took her to two different urgent cares, and they both told us it was just a virus, and she was fine. That night I slept in the bed with her because I was concerned about her fever.  In the middle of the night, she started having trouble breathing and her lips turned blue. We took her to the emergency room and she was transferred to Nemours Children’s. There, she was diagnosed with septic shock, pneumonia, and heart failure due to strep and human metapneumovirus. She was put on a ventilator but she still wasn’t getting enough oxygen, so she was put on ECMO to see if that would give her heart and lungs time to heal. An ECMO machine is similar to a heart-lung by-pass machine used in […]

From Concussion to Clarity: Sammy’s Story

In 2020 and again in 2021, Sammy had two serious falls, both caused by fainting. Each time, Sammy was told she just had a concussion. However, the second time, her symptoms never went away. “I had a horrible headache that never left, the light continued to bother me and I wasn’t able to focus on stuff the way I normally did,” says Sammy. “I felt very limited during this time. I played volleyball and it would affect my ability to play. Being outside under the sun would cause me to get lightheaded and feel pain. I couldn’t touch my head much and I rarely pulled my hair up, unless it was for a game. It was even hard to sleep at night because of all the pressure I felt.” While in an appointment with Dr. Leto Barone for a different condition, he asked Sammy about her concussion. As she explained […]

A Life Worth Admiring: Aila’s Story

When Aila was just 2 years old, her parents started to notice that something was off. Each time Aila tried to walk, she was always holding onto something. She seemed to struggle when she wasn’t gripping her toy stroller. After going to see a local physical therapist, Aila’s family found out that she had SMA. SMA, or spinal muscular atrophy, is a genetic disorder that can affect your muscles, nerve cells, and spinal cord. People with SMA may experience a decline in strength and limited mobility. As Aila grew older, she had to use a wheelchair. She discovered that she could not complete tasks, like basic hygiene actions, on her own and frequently needed assistance. When she was about 7 years old, Aila began seeing doctors at Nemours Children’s Hospital, Florida. Her family was making 6-hour drives for Aila to be treated at Nemours Children’s. After countless hours of research […]

Overcoming Hip Dysplasia: Julieth’s Journey

Discover the inspiring story of Julieth, who was diagnosed with hip dysplasia at a young age. Learn about her treatment at Nemours Children’s Health and the impact it had on her life.

World Childhood Cancer Awareness Day: Ethan’s Story

Nine months ago, Annie and Ben Grayshan got the news no parents ever want to hear, “Your child has cancer.” Their son Ethan was 7 years old when recurring vomiting led to a visit with his pediatrician in April 2022. His doctor suspected a stomach bug. The vomiting persisted and Ethan was sent for allergy testing and then to a GI specialist. After starting antibiotics for a potential parasite, Ethan began to experience fatigue and headaches, common side effects of the antibiotics. But after a few days with no improvement, his parents took him to an ER where a CT scan showed a mass on Ethan’s brain. The Grayshans were then airlifted to the ER at Wolfson Children’s Hospital in Jacksonville. Within 48 hours he had undergone two brain surgeries. One to relieve the hydrocephalus, which had been causing his symptoms, and another to remove the tumor. A diagnosis of […]

Hope of a Warrior – Sebastian’s Story

To read this in Spanish, click here! One day in May of 2022, Sebastian came home sad after school, causing me to worry about his unusual behavior as he is a very happy child. I asked Sebastian if something was wrong and if he was being bullied at school. He assured me he was just unusually exhausted. The following day, Sebastian was in the same down mood, but had a fever this time. I took Sebastian quickly to our local doctor, where he was diagnosed with a stomach bug and prescribed antibiotics. He eventually felt better, but not much time passed before the same symptoms returned. We went to another doctor who gave him the same diagnosis and prescribed more antibiotics. I wondered how it could be a stomach bug if he had no GI symptoms, but I followed the doctor’s advice. Rapid breathing was later added to Sebastian’s symptoms, […]

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