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When Piper was just four months old, her parents faced an unexpected concern: their pediatrician noticed her head size was not typical. After a series of tests, Piper was diagnosed with microcephaly. By the time she was nine months old, she was missing developmental milestones, and by her second birthday, she had also been diagnosed with cerebral palsy. Piper’s journey also brought unique challenges with communication and mobility. As a nonverbal child, Piper relies on creative ways to express herself, and her family has embraced learning to understand her cues. Piper is also not yet mobile, affecting her ability to move around and get from one place to another on her own. In 2022, the family relocated to Florida and began researching the best care options for Piper. “We spent a lot of time looking for facilities that could meet Piper’s needs,” her mother, Christy explains. “Nemours was the best […]

Six-year-old Mia is a vibrant, outgoing little girl who lights up every room she enters. Born with several rare and complex medical conditions, Mia has already undergone more surgeries than many will face in a lifetime. Her resilience, boundless energy, love for singing and dancing, and dreams of becoming a nurse (or the next Taylor Swift!) inspire everyone around her. Mia’s medical journey began the day she was born, bringing with it a unique set of challenges. Diagnosed with Pierre Robin Sequence, complete tracheal rings, infantile scoliosis, hip dysplasia, ulnar dysplasia, an ectopic pelvic kidney, and clubfeet, Mia quickly showed she was ready to tackle whatever came her way. “Mia was immediately transported to Nemours Children’s Hospital, Delaware from our local hospital right after she was born,” shares her mother, Janelle. “She was in the NICU for 65 days. I drove back and forth, from Wildwood NJ to Wilmington DE, […]

At just seven years old, Seth has already overcome more challenges than most face in a lifetime. Seth’s health challenges began when he was just three years old. What initially seemed like persistent allergies turned out to be something much more serious. After multiple doctor visits, his family discovered a tumor growing in his sinus tract. The day after Christmas in 2020, they rushed to the Nemours Children’s Hospital, Delaware emergency department, expecting a routine visit. Instead, they never went home. Seth was diagnosed with rhabdomyosarcoma, a rare and aggressive cancer. The tumor not only blocked his airway but also led to severe complications, including serious blood clots. Within his first week at Nemours Children’s, he underwent multiple emergency surgeries. “He had surgery Monday, Wednesday, Friday, and Sunday that week,” shares Deborah, his great-aunt who has cared for him since infancy, and has been by his side throughout his entire […]

For 15-year-old Bryan, his journey toward better health has been a collaborative effort powered by determination and expert care. Diagnosed with Down syndrome at birth, Bryan has faced challenges his entire life, but as he’s gotten older it’s been his obesity related fatigue that has significantly affected and limited his daily activities. With the support from his family and the dedicated team at Nemours Children’s Hospital, Delaware, Bryan is now thriving. Bryan joined Nemours Children’s Bariatric Program in 2022 after transitioning from another hospital to be closer to home. The bariatric program is dedicated to helping teens with obesity achieve better health through expert care and support. The program specializes in laparoscopic sleeve gastrectomy, a minimally invasive weight loss surgery that reduces the size of the stomach to help teens eat less and feel less hungry. As the only pediatric weight management program and hospital accredited by the Metabolic and […]

Brooke knows firsthand the challenges of living with back pain. As a dedicated gymnast, she had always been active and driven, but last fall, her world shifted when lingering pain from a back injury turned into something much more debilitating. “My back pain heavily influenced my everyday life,” Brooke shared. “I had to quit gymnastics and was in pain all the time. I couldn’t go an hour without some sort of pain or ache throughout my back.” The search for answers was anything but easy. From August to November, Brooke and her family visited multiple doctors, only to leave each appointment without a diagnosis. Their frustration continued until September, when they found Dr. Shah at Nemours Children’s Hospital, Delaware. “He immediately knew what was wrong and how to address it,” shares Brooke. “No other doctor had been able to at that point.” Dr. Shah diagnosed Brooke with spondylolysis, a condition […]

On the second day after Nello’s birth, a doctor, in the hospital, initially diagnosed him with hemihypertrophy. However, due to additional side effects associated with the condition, we understood that further testing would be necessary to confirm and fully understand his diagnosis. Prior to receiving treatment at Nemours Children’s Hospital, Delaware, we found ourselves frequently visiting doctors to rule out potential diagnoses and ultimately determine the full scope of his medical condition. We discovered Nemours Children’s because someone recommended Dr. Thacker, an orthopedic doctor, and we made an appointment immediately. For 14 years, Dr. Thacker has been our trusted physician. His charismatic personality, exceptional bedside manner, and genuine empathy create a uniquely comforting patient experience. During appointments, I never feel rushed; instead, he makes me feel like the most important patient of the day. Our first visit to Nemours immediately impressed us with its efficient and organized environment. The clinicians […]