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Rocco’s Journey with Nemours Children’s (In Mom’s Words)

We were at our favorite skate park with friends when my son, Rocco, fell off his skateboard and hurt his leg. We headed straight to the ER, where we found out that Rocco had a closed triplane fracture of his right ankle. While in the ER, they also noticed his blood pressure was high. My first thought was, ‘He just broke his ankle, of course it’s high.’ But the nurse insisted that we make a follow-up appointment with his pediatrician. After a few days of Rocco being home, we checked his blood pressure, and it was still very high. So, we made an appointment with the pediatrician. Rocco’s father was 13 years old when he went into kidney failure. Because of this family history, I asked them to do a full kidney workup on Rocco. A day later, we received a phone call asking us to go to our local […]

Finding His Voice: Noah’s Story

For years, Tiffany knew something wasn’t quite right with her son Noah’s voice. From birth, his cry was softer than expected and his voice high-pitched. He struggled with reflux, swallowing difficulties, and vocal strain. “I had been asking doctors about Noah’s voice since birth,” shared Tiffany. “But every year, they dismissed it as reflux.” Finally, when Noah was 9, a referral for voice therapy led him to Nemours Children’s Health, Winter Garden. Here, he met speech-language pathologist, Katie Slone, CCC-SLP. Mrs. Slone dug deeper, requesting further tests to get to the root of the issue. The answer? Noah had a congenital laryngeal web, a condition where tissue partially blocks the airway, affecting the sound of his voice. With a diagnosis in hand, Noah began voice therapy at Nemours Children’s. Under Mrs. Slone’s guidance, he worked on techniques to improve his voice while his family weighted long-term treatment options. “Mrs. Slone […]

Associate Highlight: Yeraldi Geronimo, CCC-SLP, BE

Yeraldi is more than just a speech-language pathologist, she’s a key part in helping children communicate with confidence. As a member of the plastic surgery department at Nemours Children’s Hospital, Florida, Yeraldi works closely with children with cleft lip and palate, craniofacial conditions, and other diagnosis that affect communication. “I have always known that I wanted to work with children,” shares Yeraldi. “My interest in the field was sparked when my mother introduced me to a friend who worked as a Speech-Language Pathologist (SLP). After observing her work one day, I was immediately captivated by the profession. What resonated most with me was witnessing the profound impact of effective communication and the ability to help children find their voice.” One of her favorite aspects of working at Nemours Children’s is the culture of teamwork. “I feel incredibly fortunate to work alongside such a talented, supportive, and intelligent group of professionals,” […]

MPS Awareness Day: Eddie’s Story

Eddie has been a patient at Nemours Children’s Hospital, Delaware since he was just 2½ years old. Now 21, he’s spent nearly two decades navigating Morquio A syndrome and making trips to Delaware from Wisconsin to receive the care he needs. His journey began when his parents noticed developmental differences. “I was 2 years old, and my mom started worrying about my chest bone because it looked abnormal,” shares Eddie. For the next nine months, his family saw many different doctors to seek answers. Finally, they discovered a doctor who immediately recognized his symptoms and diagnosed Eddie with Morquio, and recommended they see Dr. William Mackenzie at Nemours Children’s. Morquio A syndrome (also known as mucopolysaccharidosis IVA or MPS IVA) is one of a group of disorders called mucopolysaccharidosis (MPS). In MPS, there’s either not enough of the enzyme that breaks down a type of sugar called glycosaminoglycans (or mucopolysaccharides) or none at all. […]

Return to the Court: Jesse’s Story

Basketball has always been a huge part of Jesse Williams’ life. As a 17-year-old athlete, he’s spent years honing his skills on the court. But when persistent knee pain escalated into something more concerning, Jesse found himself facing a challenge that would test his resilience—both physically and mentally. Jesse was first diagnosed with osteochondritis dissecans (OCD) of the knee at 15 after noticing he could feel his bone moving around. “I had knee pain in seventh grade, but a year later, during a summer in ninth grade, I noticed a piece of bone floating around in my knee that I could poke around,” Jesse shared. A visit to the doctor confirmed the diagnosis, and he was told he would need surgery to repair the damage. OCD is when a piece of bone and the attached cartilage break down and become loose. The loose piece can break away completely from the end of the bone. […]

OI Awareness Week: The Benyo Family

When Carrie Benyo’s femur broke at just eight weeks old, her family wasn’t surprised. Osteogenesis Imperfecta (OI) ran in their family, and Carrie quickly became familiar with the challenges that came with it—multiple fractures and the need for specialized care. So when her daughter, Vaeda, was born, Carrie didn’t wait for the first fracture to seek answers. Through cord blood testing at birth, Vaeda was diagnosed with OI Type 1 when the results came back just four weeks later. Determined to find the best care for her daughter, Carrie discovered Nemours Children’s Hospital, Delaware, a nationally recognized leader in OI treatment. “I wanted the best specialists I could find for her,” shares Carrie. What started as a search for Vaeda’s care soon became a turning point for Carrie, too. “When they said they could treat me too I started seeing them as well. Before that I did not have routine […]

Making a Comeback: Cole’s Story

For 14-year-old Cole, sports have always been a huge part of life. Whether it’s football, wrestling, basketball, or lacrosse, he thrives on the competition and camaraderie of being part of a team. But with one play, Cole’s season was brought to an abrupt halt. “I was playing football, went to make a tackle, and my knee buckled,” Cole recalls. His coaches and the team mom suspected right away that it was his ACL. An MRI confirmed their fears—Cole had torn his ACL and meniscus, injuries that would require surgery and months of physical therapy. Cole’s family knew exactly where to turn. As a baby, he had spent time in the NICU at Nemours Children’s Hospital, Delaware, so when it came time to find expert care for his knee, Nemours Children’s was the clear choice. Under the care of Dr. Su and his team, Cole underwent surgery that rebuilt his ACL […]

OI Awareness Week: Koa’s Story

When Viana first walked through the doors of Nemours Children’s Hospital, Delaware, she felt something she hadn’t in days: relief. Her son, Koa, had been diagnosed with osteogenesis imperfecta (OI), a rare genetic disorder often called “brittle bone disease.” Before Koa was even born, doctors warned Viana that his chances of survival were low. “Almost every doctor I saw just gave me the same answer, that he wouldn’t live,” she shared. But Viana believed in her baby – and found a team at Nemours Children’s who believed in him, too. Now one year old, Koa is doing more than surviving, he’s thriving. Thanks to specialized OI care, bone-strengthening medications, and the compassionate support of his OI team including medical care and orthopaedic care, Koa is living a full and joyful life. Though OI can be life-threatening, new research from Nemours Children’s is shedding light on a more hopeful future for […]

Associate Highlight: Charlie Cericola, OTR

At Nemours Children’s Health, we are so proud of our occupational therapy teams, who are dedicated to helping children reach their highest level of independence and function. One of those standout professionals is Charlie Cericola, a Certified Hand Therapist and Occupational Therapist on our Outpatient Therapy Services team at Nemours Children’s Hospital, Delaware. Charlie’s path to occupational therapy at Nemours Children’s started with an interest in the human hand! “I am fascinated by the form and function of the human hand,” shares Charlie. “I’m an occupational therapist by training and I spent many years working in a teaching hospital in Bronx, NY. That position afforded me the opportunity to rotate through the various therapy settings and I soon discovered that loved working in outpatient hand therapy. At that time, I was also working through early intervention, treating children in some underserved areas in south Bronx and Queens. Becoming a hand […]

Chasing Dreams: Lizzy’s Story

For 15-year-old Elizabeth, softball has always been more than just a game—it’s a passion. As a high school varsity catcher and a dedicated travel ball player, Lizzy had her sights set on playing at the collegiate level. Then came a play that changed her season. During a game, Lizzy was catching when a runner crashed through her left arm, leaving her with a superior labrum anterior and posterior tear and a small rotator cuff tear. The injury sidelined her, keeping her from the sport she loved and limiting her daily activities. Lizzy was taken straight from the field to Nemours Children’s Hospital, Delaware where initial tests ruled out broken bones. However, with persistent pain and swelling, an MRI was scheduled the following week. The results revealed a labral tear, leading Lizzy to Dr. Alvin Su at Nemours Children’s Health, Deptford. From the start, Dr. Su and his team approached Lizzy’s […]

Finding Support: Frankie’s Story

At just 5 years old, Frankie is already proving that determination knows no bounds. Born with Arthrogryposis Multiplex Congenita (AMC), she has trouble with her joint moving the way it should. But with the expertise of the orthopedics team at Nemours Children’s Hospital, Delaware – including Dr. Jennifer Ty for upper extremities and Dr. Reid Nichols for lower extremities – Frankie has gained strength, confidence, and the tools she needs to thrive. During her mother, Lindsay’s, 11-week ultrasound, doctors noticed an unusual positioning of Frankie’s arms. This was a moment that changed everything for Lindsay and her family. “The rest of the day is a blur,” Lindsay shares. “We started genetic testing, but there were no solid answers. It was very overwhelming.” Uncertainty followed Lindsay and her family throughout the pregnancy, with no definitive diagnosis until Frankie’s arrival. But one pivotal meeting at 36 weeks helped to ease some of […]

A Path to Better Hearing: Yara’s Story

When Yara was born, her family received news that they hadn’t anticipated – she didn’t pass her newborn hearing screening. While she was a happy baby who responded to sounds and hit developmental milestones, follow-up tests eventually confirmed that she had mild hearing loss. “At first, I had so many questions and concerns about her future – how this might affect her education, her ability to grow into adulthood with this diagnosis,” Yara’s mother, Ashley shares. “But as a family, we knew we would navigate this challenge together.” After receiving a referral from their pediatrician, Yara’s family turned to Nemours Children’s Hospital, Florida for answers. It was when they met Dr. Morgan Wilcox, pediatric audiologist, that they finally felt they fully understood Yara’s diagnosis. “We immediately felt at ease with Dr. Wilcox and her comforting and reassuring approach,” says Ashley. “She explained everything clearly, answered all our questions, and helped […]

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Page 2 of 22

Page 2 of 22