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seizures

Explore Griffin’s inspiring journey with complex medical conditions and how his family found hope at Nemours Children’s Hospital, Delaware.

Meet these Nemours Children’s patients from Orlando and Delaware with life-threatening diagnoses. Together with their families and the Nemours Federal Affairs Team, our young advocates will meet with members of Congress in Washington, D.C.

My name is Alex Gaudlap. Also known as Raymond’s mom. Our journey with Nemours Children’s Health started in the fall of 2017 when we relocated back to New Jersey from Camp Lejeune, North Carolina due to Raymond not hitting developmental milestones appropriately. The doctors down South assured me Raymond was fine, but my motherly instinct told me he wasn’t. From the moment we stepped foot into Nemours Children’s, I felt like our concerns were listened to. Raymond’s first appointment at Nemours was with a neurologist in the Deptford location. Since we were new patients and basically starting from the beginning with tests, she ordered a routine EEG. We never would have thought that his first test would give us answers, but it did. Raymond was diagnosed with a rare form of epilepsy; that gave us some indication to why he had a global developmental delay. After receiving the epilepsy diagnosis, […]

One evening shortly before Aiden’s 7th birthday, his father noticed Aiden was unable to speak, drooling, and had a facial droop with left sided weakness. I was working as a pediatric nurse at a community hospital, where he brought Aiden. We thought he was having a stroke.  He was transferred to the Emergency Department at Nemours Children’s Hospital, Delaware, where he had a full work up and was diagnosed with epilepsy and started on medications within 24 hours of arrival. Aiden tells us he had several episodes before anyone saw him and was very scared.  Fortunately, we don’t think he had many seizures before treatment. It still impacted his life, unfortunately limiting some of his activities, however he is definitely coming into his own and doing so well. He even wants to go into the medical field to be a surgeon. Epilepsy and the resulting seizures were a frequent part […]

Infantile spasms (IS) is a rare, but serious type of seizure associated with a unique, very abnormal brain wave pattern that can have a catastrophic effect on a young, developing brain.  What do these seizures look like? These seizures can be subtle and consist of repetitive movements occurring in clusters. These movements are brief and consist of head drops or head bobs with brief jerks followed by flexion or extension in the child’s extremities. The eyes may widen and roll up.  How are they different from sudden startles? These seizures typically occur in clusters of repetitive movements, often when the child is waking up from sleep. After these clusters, the child may cry or become irritable.  What are other symptoms that I may see? At times, the child may cease to make further developmental gains, or have regression in their developmental milestones. What age does Infantile Spasms tend to occur? At any […]