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Plastic Surgery

Amazingly Resilient: Addison’s Story

Meaghan remembers the early days of her daughter Addison’s life vividly. Diagnosed with a cleft palate just days after birth, Addison’s journey began with a challenge. “She was having a very difficult time breastfeeding and just didn’t seem interested in eating,” recalls Meaghan. Suspecting a possible lip tie, she asked a nurse to check Addison’s mouth. Instead, the nurse discovered a cleft palate. From that moment, Meaghan began the process of feeding Addison using a bottle with a valve. The cleft palate diagnosis impacted the Addison’s family’s daily routine significantly. With a 3-year-old son already keeping them busy, adjusting to Addison’s needs meant slowing down their usually fast-paced days. “In the very beginning, it would take about 45 minutes to an hour for one feeding,” says Meaghan. “With Addison struggling to eat, we had to take each day at a time.” However, with perseverance and patience, Addison began to improve […]

Coordinated Care: Micah’s Story

Micah’s journey began with some unexpected twists and turns, before he even entered this world. “Before Micah was born, we received the news that he might have Down syndrome through routine blood work during pregnancy,” shares his mother, Kaitlyn. “It was a whirlwind of emotions, but we leaned on the support and expertise of Nemours from the very beginning.” Kaitlyn’s family have been seeing providers at Nemours Children’s throughout the Delaware Valley ever since her firstborn arrived prematurely. Her GYN office recommended Nemours Children’s, and they found the care to be exceptional, so they continued with Micah’s treatment there. It was his team at Nemours that diagnosed Micah with Trisomy 21, commonly known as Down syndrome, along with clubfoot and a cardiac concern – coarctation of the aorta. Nemours became their beacon of hope, with a multidisciplinary team ready to address Micah’s complex needs. From the Trisomy 21 Clinic to […]

Cleft and Craniofacial Awareness Month: Brody’s Story

Brody’s journey began before he was born. During a routine anatomy scan, Beth and her husband learned that one of their twins, Brody, would be born with a cleft lip and possibly a cleft palate. “I was pregnant with twins through IVF and was sent to Nemours Fetal Care,” shares Beth. “After finding out about Brody’s diagnosis, we did a lot of research and compared to teams in Tampa. After a facetime with Dr. Kellogg to ask him questions, we knew we found Brody’s doctor and team.” Upon Brody’s birth, he encountered difficulties due to his cleft lip and palate. “Prior to surgical intervention, Brody struggled with feedings; milk would come out his nose, he drooled a lot, and I don’t think he was able to hear well,” Beth shared. These challenges emphasized the need for specialized care, which they found at Nemours Children’s Hospital, Florida. Despite living over two […]

A Journey With Craniosynostosis: Georgia’s Story

At 11 months old, Georgia has already shown incredible resilience and strength throughout her life. Diagnosed with isolated nonsyndromic unilateral craniosynostosis at 8 weeks of age, Georgia’s journey has been a whirlwind of medical appointments, treatments, and hopeful recovery. Karin and Edwin knew early on that something was different about their daughter, Georgia’s, head shape. They voiced their concerns during her 1-month and 2-month check-ups. At her 2-month appointment, the nurse practitioner conducted a thorough examination. It was then that they noticed an absence of the soft spot on the top of Georgia’s head. This was a critical moment for her family. Craniosynostosis is a condition where one or more seams between the bones in a child’s skull close too soon. This premature closure prevents the skull from growing properly and results in an abnormal head shape. If left untreated, craniosynostosis can increase intracranial pressure, leading to developmental problems, headaches, […]

From Patient to Pre-Med: Maddie’s Story

At 13 years old, Maddie Walsh was diagnosed with melanoma. This unexpected turn led her to Nemours Children’s Hospital, Florida, where she found a supportive community that became like family. Maddie’s journey began with the discovery of a change in a mole she had since childhood. A dermatologist family member recognized the signs and urged her to seek medical attention. Following a biopsy and consultations with various pathologists, Maddie received the diagnosis of malignant melanoma from Chief of the Division of Plastic and Craniofacial Surgery, Dr. Brian Kellogg. “I was 13 when I first heard I was going to see a plastic surgeon. I was very confused because I only knew them by the stereotypes on TV,” says Maddie. “However, I quickly learned that was far from what Dr. Kellogg and his team does. When I first heard the word ‘cancer,’ my mind jumped to the worst. I was terrified. […]

Mila’s Cleft Journey

During Liane Rensing’s 20-week ultrasound, it was discovered that her baby, Mila, had a cleft lip. This diagnosis expanded when Mila was born with a right-sided incomplete unilateral cleft lip and a complete cleft palate. The first year of her life brought challenges to the Rensing family as they learned to navigate caring for Mila. “We learned how to feed and take care of her with feeding devices like special nipples and bottles,” explains Liane. “We had to figure out how to tape specifically designed appliances to Mila’s nose and forehead to prepare her for her cleft surgeries. Miami felt like our second home since we traveled there for Mila’s numerous surgeries and appointments.” In their pursuit of finding the best care for Mila as she grew older, the Rensing family discovered Nemours Children’s Health. Their first experience with Nemours Children’s was with an audiology test and sleep consultations with […]

La Trayectoria de Ashley con Microtia

Sigue la trayectoria de Ashley Garcia, una niña de 10 años que supera la microtia con cuidado personalizado en el hospital infantil de Nemours en Delaware.

The Pioneering Women Behind Fentanyl-Related Syndrome Discovery

You may have seen in the news recently—in stories airing on NBC, and published in The Philadelphia Inquirer[PA1]  and USA Today—, the extraordinary study conducted by researchers at Nemours Children’s Hospital, Delaware. The study revealed that at least 10 babies have what doctors believe to be a new syndrome related to exposure to fentanyl in the womb. Erin Wadman, LCGC, Karen Gripp, MD, and Erica Fernandes, DO, along with their colleagues, published their findings in Genetics in Medicine Open. Get to know the women behind this groundbreaking research here:  What inspired you to pursue this research study? Wadman: The opportunity presented itself to me from working in outpatient genetics and the Cleft and Craniofacial clinic. I was noticing a pattern of patients who had similar physical differences but who also had no genetic diagnosis on genetic testing. All these patients had significant exposures to fentanyl during the pregnancy. From there, we knew we were on […]

From Immobility to Independence: Yanex’s Story

Yanex’s story began at just nine months old, when his primary care physician noticed something amiss. Keyshla, his mother, recalls that during a routine check-up, she expressed concerns about Yanex’s lack of developmental progress. He wasn’t attempting to sit or crawl, and his movements were limited to lifting his head when placed face down. However, it was Yanex’s head shape that raised the most concern for his doctor. During this check-up, Yanex’s physician ordered an X-ray. That day, the report arrived with a diagnosis of craniosynostosis. Craniosynostosis, a problem where one or more seams between bones in a child’s skull closes too soon, had a significant impact on Yanex’s life prior to treatment. “Yanex only looked comfortable when he was in the car seat, stroller, swing or while being held,” says Keyshla. “He was also exclusively breastfeeding for over a year. Yanex was not independent in the slightest, as if […]

22q Awareness Day: Jason’s Story

Jason’s story began with a seemingly innocent complaint, ear pain. Concerned for her son, Andrea Salicia vividly remembers the moment she first suspected something was wrong with her son Jason. While feeding him, she noticed that he was twitching, and it didn’t appear to be normal newborn behavior. A few days later, in a terrifying incident, Jason began gasping for air during a feeding, followed by a more severe twitch. Panicked, Salicia rushed him to the Nemours Children’s Hospital, Florida emergency room. It was there that a nurse informed her that Jason’s “twitches” were actually seizures, prompting further investigation. This nurse also thought that he might have a condition called DiGeorge syndrome but didn’t want to say anything until it was confirmed. The medical team then performed a spinal tap and various tests, which led to a diagnosis of 22q11.2 deletion syndrome, also known as 22q or DiGeorge syndrome, at […]

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